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HDSA San Francisco Bay Area Chapter

I am thrilled to announce that the HDSA San Francisco Bay Area Affiliate has a NEW STATUS.  We are now the

HDSA San Francisco Bay Area CHAPTER 

It’s very exciting and it could not have happened without the help and support of the Leadership Team; Uma Thontakudi, Steve McConoughey and Jay Denhart-Lillard.

Many thanks go to the Board members who helped the Affiliate realize its goal of become an official Chapter. Everyone on the Board is a volunteer as Huntington’s Disease Society of America is 90% volunteer based.

List of SF Bay Area Chapter Board Members

  • Therese Crutcher-Marin – President
  • Uma Thontakudi – Vice President
  • Jay Denhart-Lillard – Secretary
  • Keith Marin – Treasurer
  • Steve McConoughey
  • Brad Bechtel
  • Ragheb Ashar
  • Fran Marin
  • Heather Williams
  • Nishtha Agale

Advisory Board Members

  • Dr. Michael Geschwind-UCSF
  • Dr. Alexandra Nelson-UCSF
  • Dr. Cameron Dietiker-UCSF
  • Dr. Sharon Sha-Stanford
  • Dr. Kyan Younas-Stanford

We Can Never Lose Hope…           

I’m a Huntington’s disease (HD) advocate, President for the HDSA San Francisco Bay Area Chapter, a blogger and an author.  Visit my website  https://theresecrutchermarin.com

 

March 1, 2023 by
Helping Others, Volunteers

Volunteer For Your Health with Huntington’s Disease Society of America

Over the years at my annual physical with my primary doctor, Dr. Shariati, who I’ve seen for years and consider her a friend, we always talked about my involvement with the nonprofit, Huntington’s Disease Society of America (HDSA).  As she checked my vitals and other important parts of my body, we talked about Huntington’s disease, and she said, “people who volunteer live longer”.

When you think about this statement, it boils down to helping people and adding this activity to your life can have a positive impact on your own well-being from relieving stress, depression and loneliness.  Why is Volunteering Important?

Giving back or giving to others is just as important to a healthy lifestyle as fulfilling their own dreams. As a Huntington’s Disease advocate, volunteering for the HDSA San Francisco Bay Area Affiliate is fulfilling my dream by helping Huntington’s Disease families in my community.

Please reach out to me at [email protected] or go to VolunteerMatch.org and review the volunteer opportunities in the San Francisco Bay Area.

       

We Can Never Lose HOPE….

 

 

 

 

January 4, 2023 by
Helping Others, Volunteers

April is National Volunteer Month

April is National Volunteer Month, when we celebrate the work that volunteers do year-round. April 10-16 is National Volunteer Week; organizations across the country will recognize their volunteers for helping them achieve their mission.

The mission of Huntington’s Disease Society of America (HDSA) is, “Dedicated to improving the lives of everyone affected by Huntington’s Disease (HD) and their families“.

It takes many hands to continuously fulfill HDSA’s mission and as Chair for HDSA San Francisco Bay Area Affiliate, I’m honored to work by the side of many dedicated volunteers, in the San Francisco Bay Area, who work tirelessly in the fight against Huntington’s disease.

Huntington’s Disease, the cruelest disease on the planet, has NO CURE and affects families for generations.  Because it is genetic, when a child has a parent with the disease, they are “at risk” and have a 50/50 chance of inheriting the mutated huntingin gene that causes the disease. What is Huntington’s disease

We Can Never Lose HOPE….

Author Therese Crutcher-Marin

I’m a HD advocate, Chair for HDSA San Francisco Bay Area Affiliate, an author and a blogger.

 

Visit my website at:  https://theresecrutchermarin.com

 

 

 

 

 

 

 

 

April 14, 2021 by
HDSA San Francisco Bay Area AFFILIATE, Volunteers

HDSA San Francisco Bay Area Affiliate Can Use Your Expertise

Author Therese Crutcher-Marin, HD Advocate

“The best way to find yourself, is to lose yourself in the service of others” –Gandhi

Volunteers are the lifeblood of our mission work at the nonprofit, Huntington’s Disease Society of America (HDSA)!  Huntington’s Disease is a rare, fatal, genetic brain disorder with NO CURE.  41,000 Americans have the disease and 200,000+ live at risk.  What Is Huntington’s disease? 

Volunteers are critical in helping HDSA soar to new heights of success since its inception nearly 5 decades ago.  

  • Volunteers contribute their time, passion, and skills, while bringing invaluable enthusiasm and talent to their work at HDSA. https://sanfrancisco.hdsa.org/   OR facebook.com/hdsasanfranciscobayarea
  • Volunteers embrace HDSA’s strategic plan to help carry out our plan of work which includes coordinating nationwide fundraising events and becoming Huntington’s Disease (HD) advocates in their communities.

To review volunteer opportunities where you can use your expertise, please visit VolunteerMatch website at:  volunteermatch.org   OR visit “How To Get Involved With HDSA”

 

 

 

We Can Never Lose HOPE……

March 4, 2021 by
Volunteers

Volunteer Appreciation Week

National Volunteer Week is April 19-25 this year and it’s an opportunity to celebrate the impact of volunteer service and the power of volunteers to tackle society’s greatest challenge, to build stronger communities and be a force that transforms the world. 

I’m shouting out a Huge THANK YOU  to all the Huntington’s Disease Society of America (HDSA) volunteers across the country.  Thank you, Thank you, Thank you and Thank you.   

I’ve been a volunteer for the nonprofit, Huntington’s Disease Society of America, Inc. (HDSA) for the past four (4) years and currently I serve as the Chair for the San Francisco Bay Area Affiliate. To find out more about the affiliate, click here: San Francisco Bay Area Affiliate

HDSA is 90% volunteer based which is incredible with 55 Chapters/Affiliate across the U.S.  All the Chapters/Affiliates that are all managed by volunteers and each of them host a Team Hope Walk every year to raise dollars for research, to support 50 Centers of Excellence and other resources to improve the lives of everyone affected by HD and their families.  For more information on Huntington’s disease, click here:  http://hdsa.org

I’m blessed to work with awesome people who are passionate about helping in the fight against Huntington’s disease in the Bay Area.  These folks, volunteers, give unselfishly of their time and energy even though they have family members struggling with Huntington’s disease (HD) and who are they themselves at risk for the disease.

We Can Never Lose HOPE……………

      Therese at the 2018 HDSA Annual Convention in LA.

 

April 20, 2020 by