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Therese-Author

May is Huntington’s Disease Awareness Month

 

Facts about Huntington’s disease:

1. Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities, usually during their prime working years, and has no cure … yet.

2.  Today, there are approximately 41,000 symptomatic Americans living with Huntington’s disease and more than 200,000 at-risk of inheriting HD. 10% of all HD cases are children with Juvenile HD.

3.  Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. 10% of all cases are Juvenile HD  juvenile-onset-hd/

For more information about Huntington’s disease, click here:  http://hdsa.org

We Can Never Lose Hope…

Kate Miner, her mother & 2 sisters.

Kate Miner, actress, musician, and HD advocate comes from an HD family. To read the article about her family, visit.   Kate Miner-I come from an hd family

Trey Grey, drummer, HD gene positive and HD advocate shares his story.  https://grottonetwork.com/navigate-life/health-and-wellness/huntington-disease-story/

Author Therese Crutcher-Marin

My author website:  https://theresecrutchermarin.com

Therese-Author

Author Therese Crutcher-Marin

To view my Youtube video about the nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  Please click on link.

Author Therese Crutcher-Marin

youtu.be/WatchingTheirDance 

It’s a poignant remembrance of a love forged in crisis“. KIRKUS REVIEWS

Goodreads Review:  https://www.goodreads.com/review 

John and I will donate 100% of the purchase price from the nonfiction book, Watching Their Dance to the nonprofit, Huntington’s Disease Society of America (HDSA). For the past three (3) years, I have been donating $7.00 to HDSA when a book is purchased.

On my Author Website: theresecrutchermarin.com a new book is $16.99, free shipping & I’ll send 6 “Help Fight HD” wristbands. On Amazon, Prime for new book is $11.50 and used books range from $5-$11.  amazon.com/WatchingTheirDanceMarrying-Huntingtons

Author Therese Crutcher-Marin Book Signing in Auburn CA

Therese at the 2018 HDSA Annual Convention in LA.

Author Therese Crutcher-Marin

Therese-Author

Angels Are All Around Us

There are always angels everywhere

Perhaps we only think to look for them at Christmas, when their wings can be seen, when their haloes glow with light

But they are always there

There in the quiet corners, there in the shadows, there in their ordinary clothes, and they are beautiful

Make room for the angels   

They will catch you unaware, and fill your heart in ways you never imagined


From my family to yours, Merry Christmas and remember to look for angels.  

 

 

From the Netflix series, “Call the Midwife”.

Therese-Author

Happy Thanksgiving to You and Your Family

         My family wishes you peace, love and harmony

                      on this Thanksgiving Day 2019.

Thanksgiving is a holiday that’s all about gratitude — after all, “thanks” is                                                    right there in the name.

From John, Therese, Keith, Vanessa, Fran and Scott in Northern California!

We Can Never Lose HOPE………………….

Therese-Author

Hang On To A Dream…………….

What is life without dreams?  Or, another way to put it, what are the goals you wish to achieve in your life because you need to set goals in order turn your dreams into reality.

I would venture to say, most people have dreams (goals); whether it be a dream of owning a certain car, a dream vacation, dream home, dream of a spending your life with someone you love, etc.

Article on Differences between goals and dreams

Growing up in Kansas, my dreams were not grandiose; they were pretty simple dreams that I thought would make me happy, i.e. falling in love and sharing my life with my soulmate, going to college, having children and serving my fellowman.

HDSA 2019 Convention

After discovering Huntington’s disease could steal the people I loved, I dreamed of “A World Free of Huntington’s Disease“. I have hung on to that dream for 41 years and will never let go of it and will work towards it until I die.

This is also the Huntington’s Disease Society of America (HDSA) Vision Statement.  hdsa.org/about-hdsa/  

We Can Never Lose HOPE….

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease.  As of January 1, 2020, a dream of mine will come to fruition.  A new, official HDSA San Francisco Bay Area Affiliate will begin operating and Amy Fedele is the Co-Chair and I’m the Chair.  The Stanford and UCSF Centers of Excellence Teams are involved and it is our hope to increase our presence in the San Francisco Bay Area that has a population of 7.1 million.

My author website is: https://www.theresecrutchermarin.com

You can read about my HD journey and the book I published, Watching Their Dance.  100% of the profits are being donated to the nonprofit, HDSA.  

 

 

 

 

 

 

 

 

 

 

 

Therese-Author

Miracles Happen Every Day

Sometimes we witness a miracle, a wonder, and overlook the meaning/purpose/impact that the experience can have on our lives. I think folks think of a miracle as a tremendous, jaw dropping event.  To appreciate these special moments in my life, I have changed my perception of what a miracle is.

An encounter I experienced this week at the Homeless Center was about a young man who I’ve seen many times.  I’m an interviewer, asking what services they need that day and I feel I’m a sounding board acknowledging their story, plans, and goals.  The young man,  who I have seen many times, shared that he had been sober for 14 days and that he was being admitted into a 90-day rehab program in a couple of weeks.  I consider this a miracle, so, I congratulated him, gave him a hug, and wished him well.

A while back, one of John’s cousin’s made a statement that made me ponder for a moment, and recognize that what happened in my life was indeed a miracle. The conversation was about divorces in our world today.  The cousin said, “It’s a miracle that you and John didn’t divorce with all you have been through”.  I had to agree.

                              

We Can Never Lose HOPE………….

I’m a Huntington’s Disease advocate having lost my three sisters-in-law to this horrific disease that has no cure.  100% of the proceeds from the book is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA), to help in the fight against the disease.  What is Huntington’s disease:  http://www.hdsa.org

To purchase the book, go to https://www.amazon.com/Watching-Their-Dance-Marrying-Huntingtons.  It’s also available on many other book websites.

 

A Love Story, Therese-Author

What If?

In 2016, after John tested negative for the mutated huntingtin gene that causes the cruelest disease on the planet, Huntington’s disease (HD), I thought a lot about “WHAT IF“.

In 1978, when the four Marin siblings discovered they had a 50/50 chance of inheriting HD, I was so scared I broke off the relationship with John. Luckily, I was lead back to John by an epiphany.  What is Huntington’s disease 

“What If” I hadn’t found my way back to John?  I would have lost so much and paid a heavy price. Guilt would have been tattooed on my heart forever for walking away from my soulmate, my true love, a man who had never hurt me.  I would have felt ashamed for not being strong and I would never have known three wonderful women, my sisters-in-law, Lora, Marcia and Cindy.  Also, I would have missed out on knowing the two most important people in my world today; our children Keith and Vanessa.

My advice is to LISTEN TO YOUR HEART……….

 

 

 

We Can Never Lose Hope………….

Watching Their Dance is John’s and my love story while living in the shadow of Huntington’s Disease. I share the tools I found in life to live happily, even with the losses we experienced, with this huge uncertainty looming over us.  The themes of my book are mindfulness, forgiveness, hope and love.

The book is online at Amazon, B&N, iBooks, and many other book websites. My author website: https://www.theresecrutchermarin.com

 

Therese-Author

We Wish You a Merry Christmas

              Merry Christmas from the Marin Family

        May your day be filled with Laughter, Joy, Friends, and Family   

              

We Can Never Lose Hope……..

Therese-Author

Bray Vineyards in Plymouth California

John and my good friend Oliver Bray, who John has known since grade school, built Bray Vineyards from the ground up.  Ollie lives in Martinez, where they grew up, and is a successful attorney like his father, Frank Bray.  https://www.brayattorneys.com/attorney-bios

In 1996 Oliver Bray and Robin Bray established Bray Vineyards on 50 acres of prime Shenandoah Valley vine land. They have created a lovely, peaceful place, with great wine. Address: 10590 Shenandoah Rd, Plymouth, CA 95669, USA.  https://www.brayvineyards.com/ 

Ollie, John and John’s three sisters, Lora, Marcia and Cindy went to Alhambra High School together and were all good friends.  Ollie was a sponsor for the 2018 HDSA Sacramento Team Hope Walk last September. The three Marin sisters all died of complications from Huntington’s disease. John is the only survivor of a family devastated by Huntington’s disease. https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1486

California-Shenandoah Valley wineries    Take a day and visit the many wineries in the Shenandoah Valley and do some wine tasting.  You won’t be disappointed. The wineries are in Amador County off Highway 50 before you hit Placerville California. If you enjoy the wine, you might want to be in the Bray Wine Club like we are.  John and I look forward to our quarterly shipment of Bray wine.

We Can Never Lose Hope…………..

Therese-Author

Happy 4th of July America!

Fun Facts Regarding 4th of July and “Our Declaration of Independence”

Today in history:   https://www.loc.gov/item/today-in-history/july-04/

50 Facts about the Declaration of Independence: https://www.landofthebrave.info/declaration-of-independence-facts.htm

-It could be argued that “Independence Day” should be July 2nd, 1776.  

-It was on July 2nd 1776 that our “Continental Congress” voted in favor of independence.

-On July 4th it was officially adopted and published in local papers.  Only our president of congress, John Hancock and secretary, Charles Thompson had signed the declaration on the 4th of July 1776.

-John Adams, later to be our president, thought July 2nd should be our day of independence.

To reminisce just a bit:  When I was growing up in Kansas, I loved sparklers.  My sisters and I had so much fun running around on the five acre backyard property of my Aunt Mary and Uncle’s Bill’s home.  Kansas has thunderstorms all summer long so no one worried about fires.  We also shot off bottle rockets with my cousins, Mike, Rick, Tim, Larry Mike, Kevin and Grant. Great memories!

From my family to yours, Have a wonderful 4th of July! 

 

 

 

 

We Can Never Lose Hope…………