During the summer of 2017, John and I trekked across the Midwest in our RV for three months, to promote my just published book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.
I had spent a lot of time searching for Huntington’s Disease Society of America (HDSA) Team Hope Walks and HD support groups that I could attend on the trip. Once that was complete, we mapped out the trip.
Two other places that I wanted to visit, was the Woody Guthrie Center in Tulsa Oklahoma, where I would hold a book discussion. https://woodyguthriecenter.org/ (Woody died from Huntington’s Disease (HD) complications.) https://en.m.wikipedia.org/wiki/Woody_Guthrie
The second place was Woody’s hometown of Okemah Oklahoma, where the Woody Guthrie Folk Festival has been held for the past 21 years. John and I spent four (4) days at WoodyFest and had a really great time. https://www.woodyfest.com/
Woody Guthrie Publications is administered by Woody Guthrie’s daughter Nora Guthrie and his granddaughter, Anna Canoni. https://www.woodyguthrie.org/contact.htm
Her grandfather, Woody, and grandmother, Marjorie, are my hero’s and I’m proud to be an HD Advocate, helping to make a difference and hoping I will see a therapy/cure in my lifetime.
We Can Never Lose HOPE………………