Author Therese Crutcher-Marin, HD Advocate
From the moment I began writing my nonfiction book, I knew what the title would be; Watching Their Dance. It made sense to me because that is what I had done for 24 years, watched my three dear sisters-in-law, Lora, Marcia and Cindy struggle with Huntington’s disease, each with their own unique dance.
When I first heard about the disease, it was referred to as 
Huntington’s Chorea. The word Chorea is described as an abnormal involuntary movement derived from the Greek word “dance”. It is characterized by brief, abrupt, irregular, unpredictable, non-stereotyped movements.
The picture is from Chris Furbee’s movie, Huntington’s Dance, that he produced. https://www.facebook.com/huntingtons.dance/
The nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family at Risk for Huntington’s is my inaugural book. It’s an inspirational love story while living with the uncertainty of my husband, John, inheriting the fatal brain disorder, Huntington’s disease, which has no cure.
Subscribe to my blog on my author page and I’ll email you the first chapter of the book. Author website: https://theresecrutchermarin.com
We Can Never Lose HOPE………….
This except from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s takes place in Sept. 1980 just after John and I returned from our honeymoon. My mom and grandmother were visiting and helping me set up our new apartment in Cirby Woods Apt. complex in Roseville California.
together. Little would they know the challenge that lay quietly beneath our joy. Every day, I consciously reminded myself to live in the present. It was the small stuff I savored: waking up next to John, seeing him every night, eating dinner together, talking about our day, feeling his arms around me. Those moments were precious, and I selfishly saved them just for me.”
