Happy New Year To My Fellowman Around The World!
On this day, the beginning of the new year, I want to take a moment to be thankful, and to remind myself to continue having forgiveness & hope in my heart, and to keep kindness and mindfulness in my everyday activities.
2019 is here and what a great year 2018 was for my family as my father is healthy at 89 years old and my sisters and children are also healthy and happy. It has been a joyous year for the Huntington’s disease community; with the positive outcome of Ionis HTTRx drug and Genentech/Roche moving quickly to setup clinical trials around the world for the now HG6042 drug. Ionis HTTRx program and its future
My sister, Jen, and our dad
John & our children & their spouses
To learn about Genentech/Roche plan, click below on video.
We Can Never Lose HOPE…….
Therese is the author of Watching Their Dance, an inspirational love story while living in the shadow of Huntington’s disease. It can be purchased on her Author Website or Amazon
100% of the profit from the book is being donated to the nonprofit Huntington’s Disease Society of America (HDSA). December 2017, she donated $9,015.00 to HDSA which was the profit from 2017 book sales.
into a Family At Risk for Huntington’s
“That smell of coffee brewing in the morning, crawling into bed with freshly clean sheets, a warm hug from a loved one, that first, perfect bite of pasta…they always say it’s the little things in life that make a big difference and that has always proven true. You just have to see it and have the right vision. Open your eyes and witness all of the things around you that you have, be grateful and be thankful.
People often say that when you wake up in the morning, say five things your grateful for to yourself. By doing this, it will make all of the bad things, obstacles, or difficulties in your life not seem as bad. Looking at the greatness in your life, no matter how small, can truly make you feel more upbeat, fulfilled, and happy.”
I found this article on 
Over the years, I’ve often said Huntington’s disease taught me many lessons. The first and most poignant lesson that helped me live a meaningful, happy life AT RISK with John, was mindfulness………..a mental state achieved by focusing one’s awareness on the present moment, while calmly acknowledging and accepting one’s feelings, thoughts, and bodily sensations, used as a therapeutic technique.
In order to maintain my sanity, staying in the present was key to enriching my life with John. Being mindful took practice and focus and some days I did I did it better than others.