As a person who sees the glass half full instead of half empty, I’m looking for a return to some sense of normality and to having access to the vaccine and being able to relax and be hopeful. It will be a relief to see the job market rebound. Bye, bye 2020 and welcome 2021.
I blog a lot about kindness and the need for it in our world today. On December 27, 2019, a fire broke out at an old hotel in Minneapolis Minnesota that had been converted to apartments for the homeless. There was an outpouring of help for the 200 displaced by the fire.
“Those displaced from the apartments, many of them homeless with nowhere else to stay, were offered help helter-skelter as news broke about the fire and donations began pouring in. Buses were brought in to provide immediate warmth and temporary shelter. The Red Cross and the Salvation Army soon arrived to hand out blankets, food, water and baby wipes.”
Though there is much difficulty in finding these folks a new place to live, I was impressed by the community and how quickly they reached out to help.
On this day, the beginning of the new year, I want to take a moment to be thankful, and to remind myself to continue having forgiveness & hope in my heart, and to keep kindness and mindfulness in my everyday activities.
2019 is here and what a great year 2018 was for my family as my father is healthy at 89 years old and my sisters and children are also healthy and happy. It has been a joyous year for the Huntington’s disease community; with the positive outcome of Ionis HTTRx drug and Genentech/Roche moving quickly to setup clinical trials around the world for the now HG6042 drug. Ionis HTTRx program and its future
My sister, Jen, and our dad
John & our children & their spouses
To learn about Genentech/Roche plan, click below on video.
We Can Never Lose HOPE…….
Therese is the author of Watching Their Dance, an inspirational love story while living in the shadow of Huntington’s disease. It can be purchased on her Author Website or Amazon
100% of the profit from the book is being donated to the nonprofit Huntington’s Disease Society of America (HDSA). December 2017, she donated $9,015.00 to HDSA which was the profit from 2017 book sales.
John and I volunteer on Monday’s at a Homeless Center in Auburn; I interview the clients and John is the shower guy. After being interviewed, they pick out clean clothes then go to the shower. (There are 4 shower stalls and John cleans them after every client) https://www.aubsda.org/
Yesterday, the center held a Thanksgiving Dinner for our clients. It was awesome and I have never seen so many smiles at one time on their faces.
So, two weeks before the dinner, and in order to know how much food we needed, the interviewers, that’s me, asked clients if they would attend the dinner.
It nearly broke my heart when many of them nodded, then dropped their head and said, “Yes, thank you, thank you. I don’t have anywhere to go to have a Thanksgiving meal”.
I’m posting this puzzle picture because it portrays how the homeless feel. Forsaken, forgotten, lost, abandoned, isolated. John and I feel that the homeless are part of our community, like a piece in a puzzle, and if we can make one day a little bit better for them, then we have helped our fellowman.
One of my favorite songs is The Wind Beneath My Wings by Bette Midler; from the movie Beaches. The song depicts the relationship between two woman, Bette Midler and Barbara Hersey, and their undying friendship, love and devotion despite their differences. I love Bette Midler as an actress and singer. https://en.wikipedia.org/wiki/Beaches_(film)
Whenever I hear it on the radio, I think of my husband, John Anthony Marin, my rock, my ever positive influencer in my life, the most resilient person I know, who kept me from shrinking into the depth of despair as each sister-in-law left this world because of Huntington’s disease. http://www.hdsa.org
John was the wind that supported me as we traveled through turbulent times in our life; he is still my biggest supporter and I would fall to the earth without him. We now travel together into a smooth, calm breeze of peace and tranquility.
100% of the proceeds from Therese’s book sold in the U.S. will be donated to HDSA. http://www.hdsa.org Therese and John donated $9,015.00 to HDSA that is the profit from book sales since Therese published in April 2017.