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Hospice

Hospice, Love

My Journey’s End

Author Therese Crutcher-Marin

“My Journey’s End is a place to which someone or something is going or being sent.”

Throughout my life I’ve had several My Journey’s End;  the first was during college when the Marin siblings discovered they were at risk for Huntington’s Disease and I walked away from John because I was scared. After an epiphany, I was sent to John, the love of my life and my Journey’s End for love ended.

Another My Journey’s End occurred during my career in healthcare.  In 1991, our children were young and I was working part time managing the Lifeline program at our local hospital in Auburn.  I was looking for another part time position to become full time; my anxiety would lessen when I was working full time.  One day I ran into the Hospice Director and she asked me to consider the Hospice Support Services Manager position, a part time position. We had just moved Marcia, my sister-in-law with HD, to our town and I was managing her care.  I believe I was sent to Hospice, destined, to work and learn from the dying.  I see this as My Journey’s End as far as my career and was blessed to work in Hospice for the last ten years of my healthcare career.

Three years prior, Lora, John’s oldest sister, had died from bad fall and Cindy was showing symptoms of Huntington’s disease.  Both Marcia and Cindy were on my hospice program and died peacefully at a Residential Care Facility in Auburn.

We Can Never Lose HOPE……….

I’m a Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a writer and blogger.  My website is: https://theresecrutchermarin.com

Caregiving, Hospice

November Is Hospice Month

Every November for the last ten (10) years of my healthcare career, was focused on promoting Hospice Care in Sutter Auburn Faith Hospice service area.  What is Hospice?

Since I became a volunteer for the nonprofit, Huntington’s Disease Society of America (HDSA), I’m pleased Hospice care is talked about more openly to Huntington’s disease families.  Hospice care supports the patient and the family.

We live in a society that doesn’t like to discuss death, so I like to post information that can help families when confronted with a terminal disease diagnosis.  It’s good to know that Medicare & Medicaid have a hospice benefit.  Most private insurance have one also.  The Outreach Committee that I managed took advantage each November to promote hospice care, educate the community and visit doctors offices.  Patients can be admitted to hospice with a referral from a doctor who believes the patient has six months or less to live. Article:  When-is-it-time-to-contact-hospice

Article:  huntingtons patients would benefit from more hospice involvement researchers argue

To watch a video on Hospice Care, visit: https://youtu.be/sYG5VqRvPiU

Therese at the 2018 HDSA Annual Convention in LA.

I’m a Huntington’s disease advocate and a hospice advocate.  My two (2) sisters-in-law, Marcia and Cindy, who had Huntington’s disease, were on my hospice program and died peacefully with no pain.

You can read about my journey with Huntington’s disease and my hospice work on my author website: https://www.theresecrutchermarin.com

We Can Never Lose HOPE…….

Hospice

November is National Hospice & Palliative Care Month

The last 10 years of my healthcare career was in Hospice at Sutter VNA and Hospice in Auburn California.  “Hospice is specialized type of care for those facing a life-limiting illness, their families and their caregivers. Hospice is quality of life and living each day as fully as possible.

What is hospice-care

How to have a talk about hospice care

I’m not a clinical person, I faint at the sight of blood, but empathy is my middle name.  As the Hospice Support Services Supervisor, I lead a Community Outreach Committee, recruited and trained hospice volunteers that I placed in a family’s home, developed & implemented a marketing plan each year, supervised the CBAG program (Children’s Bereavement Art Group) and the local hospice thrift store that I started from ground up.

Cicely Saunders, founder of Hospice.

Every November was an exciting time for the Outreach Committee because it afforded us the opportunity to reach out to doctors and the community to help them understand the benefits of hospice care.

About Dame Cicely Saunders 

We Can Never Lose HOPE…..

100% of the profits from Watching Their Dance are being donated to the nonprofit, Huntington’s Disease Society of America, (HDSA).  

The book is available on Therese’s author website https://www.theresecrutchermarin.com & many book websites like Amazon

 

Family, Hospice

Hospice Care for End Stage Huntington’s Disease Patients

I haven’t written about Hospice care for awhile, so I thought I’d post this article on the benefits of palliative and hospice care, at the end of life, which applies to everyone, because none of us get out of this alive.

https://www.neurologyadvisor.com/movement-disorders/defining-needs-for-palliative-hospice-care-huntington-disease/article/701506/

The last 10 years of my career in healthcare was in hospice care and it was the most fulfilling work I have ever done in my life.  It was privilege to be allowed into community folks homes to support the patient and family as they prepare for the inevitable loss of their loved one. For info on Hospice care, go to:   https://www.nhpco.org/ 

If you have a loved one challenged with a chronic disease, talk to their doctor about hospice care before there is a medical crisis.  Hospice care is covered under Medicare, Medicaid and most private insurances also cover it.   https://medicare.com/coverage/medicare-cover-hospice-care/

My two sisters-in-law, Marcia & Cindy, we’re patients on the hospice program that employed me.

 

We Can Never Lose Hope……..