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HDSA San Francisco Bay Area AFFILIATE

We Need Your Support in the Fight Against Huntington’s Disease

Author Therese Crutcher-Marin

After much discussion and evaluation, the Leadership Team of the HDSA San Francisco Bay Area Affiliate made the decision to move the San Jose Team Hope 10K Run & 5K Walk to a 100% VIRTUAL event on Sept. 18.

Even though we cannot meet in-person, please run/walk in solidarity with with the San Francisco Bay Area Huntington’s Disease community. A VIRTUAL run/walk is a real run/walk, but on your terms: You get to choose your own course, you can run/walk in your in your house, driveway, neighborhood, local park, hike trail, and even on treadmill!

You can make a difference in the fight against Huntington’s Disease by signing up for the fundraiser or making a donation to HDSA.

Signup here: app.donorview.com/Pqe0v

Running team at the 2019 San Jose Team Hope 10K Run & 5K Walk @ Campbell Park.

In the San Francisco Bay Area, we need to raise dollars to support the HDSA Stanford Center of Excellence and UCSF Center of Excellence. Also, the fundraiser pays the facilitators of HD support groups in Mill Valley, Palo Alto and El Cerrito.

The event raises funds to further research and support the many HDSA’s online free resources available to HD families across the U.S.

We Can Never Lose HOPE…

August 24, 2021 by crutcht

HDSA San Francisco Bay Area AFFILIATE

HDSA San Francisco Bay Area Affiliate Receives An Award

Author Therese Crutcher-Marin, HD Advocate

I wish to thank the Board members of the Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Affiliate for their hard work and dedication during the 2020 COVID-19.

The SF Affiliate officially began operating January 2020 and even with the pandemic, the Board stepped up and began several outreach projects, recruited valuable volunteers and organized two (2) Virtual Team Hope Walks. Because of their relentless commitment, at the 36th HDSA Annual Convention, the Affiliate received the HDSA Affiliate of the Year Award.

As the Chair for the SF Affiliate, I’m privileged to work side by side these awesome volunteers. You can see all the HDSA awards by visiting https://hdsa.org/about-hdsa/annual-convention/

We Can Never Lose HOPE………

I’m a Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author. Visit my website: https://theresecrutchermarin.com

Please make a donation to the nonprofit, Huntington’s Disease Society of America, to help fight HD.

June 22, 2021 by crutcht

HDSA San Francisco Bay Area Affiliate Can Use Your Expertise

Author Therese Crutcher-Marin, HD Advocate

“The best way to find yourself, is to lose yourself in the service of others” –Gandhi

Volunteers are the lifeblood of our mission work at the nonprofit, Huntington’s Disease Society of America (HDSA)! Huntington’s Disease is a rare, fatal, genetic brain disorder with NO CURE. 41,000 Americans have the disease and 200,000+ live at risk. What Is Huntington’s disease?

Volunteers are critical in helping HDSA soar to new heights of success since its inception nearly 5 decades ago.

Volunteers contribute their time, passion, and skills, while bringing invaluable enthusiasm and talent to their work at HDSA. https://sanfrancisco.hdsa.org/ OR facebook.com/hdsasanfranciscobayarea
Volunteers embrace HDSA’s strategic plan to help carry out our plan of work which includes coordinating nationwide fundraising events and becoming Huntington’s Disease (HD) advocates in their communities.

To review volunteer opportunities where you can use your expertise, please visit VolunteerMatch website at: volunteermatch.org OR visit “How To Get Involved With HDSA”

We Can Never Lose HOPE……

March 4, 2021 by crutcht

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here: https://sanfrancisco.hdsa.org/yoga

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author. My HD Advocate/Author website is https://theresecrutchermarin.com

March 2, 2021 by crutcht

HDSA San Francisco Bay Area AFFILIATE

Huntington’s Disease Education Day Hosted by UCSF Center of Excellence

The HDSA Center of Excellence

at University of California, San Francisco Medical Center

is Hosting an FREE EDUCATION DAY ON MARCH 17th – 6:00 pm-8:30 pm

Register here: http://sanfrancisco.hdsa.org/edday

Topics Presented:

Update on Clinical Trials-Dr. Cameron Dietiker
CRISPR- Bruce Conklin, MD
Medications for Huntington’s Disease Patients-Dr. Alexandra Nelson
Basic Science-Julia Kaye, PhD/Steve Finkbeiner, PhD of the Finkbeiner Lab

UCSF Center of Excellence Team: (not all team members are shown)

Zoom Link will be emailed to the registered participants the day before the event.

March 1, 2021 by crutcht

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here: https://sanfrancisco.hdsa.org/yoga

(Zoom link will be sent the morning of the event)

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author. My website is https://theresecrutchermarin.com

February 28, 2021 by crutcht

HDSA San Francisco Bay Area AFFILIATE, Huntington's Disease

SAVE THE DATE-Education Day Hosted by UCSF Huntington’s Disease Center of Excellence

TO THE SF BAY AREA HUNTINGTON’S DISEASE COMMUNITY

The HDSA Center of Excellence

at University of California, San Francisco Medical Center

is Hosting an FREE EDUCATION DAY ON MARCH 17th – 6:00 pm-8:30 pm

Register here: http://sanfrancisco.hdsa.org/edday

Topics Presented:

Update on Clinical Trials-Dr. Cameron Dietiker
CRISPR- Bruce Conklin, MD
Medications for Huntington’s Disease Patients-Dr. Alexandra Nelson
Basic Science-Julia Kaye, PhD/Steve Finkbeiner, PhD of the Finkbeiner Lab

We Can Never Lose HOPE…

February 27, 2021 by crutcht

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here: https://sanfrancisco.hdsa.org/yoga

(Zoom link will be sent the morning of the event)

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author. My website is https://theresecrutchermarin.com

February 27, 2021 by crutcht

HD Advocates, HDSA San Francisco Bay Area AFFILIATE

HDSA San Francisco Bay Area Affiliate Celebrates One Year

The San Francisco Bay Area Affiliate, one of the 55 Chapters/Affiliates across the U.S., of the nonprofit, Huntington’s Disease Society of America, is celebrating its first year of operation. Despite the pandemic, team members shifted to zoom monthly meetings, virtual events and have developed a Strategic Plan for 2021 to help in the fight against Huntington’s disease, provide Education Days at Stanford & UCSF Center of Excellence, organize outreach projects so HD families can find services to help their family.

I’m Therese Crutcher-Marin, the Chair for the Affiliate. Amy Fedele

HD Advocate Amy Fedele

is co-chair and Cole Holderman is secretary.

On Saturday, January 11, 2020, the first Affiliate meeting was held at UCSF with 22 attending from Genetech, HOPES, community folks, UCSF & Stanford Centers of Excellence, and HDSA social workers/staff.

Author Therese Crutcher-Marin, HD Advocate

I want to thank everyone involved in the Affiliate in 2020 for their time and dedication and I’m excited to kickoff 2021 at our first meeting on Wednesday, January 6, 2021. At this first meeting of the year, we’ll be discussing the strategies to implement the 2021 Strategic Plan to outreach to the HD community in the Bay Area.

We Can Never Lose HOPE………

Visit my My Author Website and check out my nonfiction book, Watching Their Dance.

January 4, 2021 by crutcht

HDSA, HDSA San Francisco Bay Area AFFILIATE

Make An End of Year Donation to Huntington’s Disease Society of America

Author Therese Crutcher-Marin, HD Advocate

I’ve been blogging for five (5) and for the first time I’m asking American’s, directly from my heart to yours, to donate to the nonprofit, Huntington’s Disease Society of America. HDSA Organization HDSA is a small nonprofit, 90% volunteer based, and no less important than the American Cancer Society, MS Society, Alzheimer’s Assoc. and Parkinson’s Foundation. Huntington’s Disease (HD) families suffer like families of these diseases.

HD is one of 7,000 Rare Diseases in the world with NO CURE. In the U.S., HD affects a small population; approximately 41,000 Americans live the disease and 200,000 live at risk. I’m a volunteer and Chair for HDSA San Francisco Bay Area Affiliate, having lost my three (3) sisters-in-law to HD complications.

I’m reaching out to you because it has been an unusual year with the pandemic which has affected everything in our lives. Please consider making your year-end donation to HDSA so the nonprofit can continue supporting Huntington’s disease (HD) families across the U.S. DONATE TO HDSA

Resources/programs funded by HDSA are: 50 Centers of Excellence (HD) clinics, local HD support groups, Disability Chats, Telehealth Program, National Youth Alliance Program, education and research. HDSA also funds two yearly fellowships, Berman Topper Fellowship Donald King Summer Research Fellowship , and the Human Biology Project.

HDSA has high ratings as a nonprofit. Please see HDSA’s Charity Navigator ratings.