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HDSA San Francisco Bay Area AFFILIATE

HDSA San Francisco Bay Area AFFILIATE

HDSA San Francisco Bay Area Affiliate Receives An Award

Author Therese Crutcher-Marin, HD Advocate

I wish to thank the Board members of the Huntington’s Disease Society of America (HDSA) San Francisco Bay Area Affiliate for their hard work and dedication during the 2020 COVID-19.

The SF Affiliate officially began operating January 2020 and even with the pandemic, the Board stepped up and began several outreach projects, recruited valuable volunteers and organized two (2) Virtual Team Hope Walks.  Because of their relentless commitment, at the 36th HDSA Annual Convention, the Affiliate received the HDSA Affiliate of the Year Award.

As the Chair for the SF Affiliate, I’m privileged to work side by side these awesome volunteers.  You can see all the HDSA awards by visiting https://hdsa.org/about-hdsa/annual-convention/

We Can Never Lose HOPE………

I’m a Huntington’s disease advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  Visit my website:  https://theresecrutchermarin.com

Please make a donation to the nonprofit, Huntington’s Disease Society of America, to help fight HD.

 

HDSA San Francisco Bay Area AFFILIATE, Volunteers

HDSA San Francisco Bay Area Affiliate Can Use Your Expertise

Author Therese Crutcher-Marin, HD Advocate

“The best way to find yourself, is to lose yourself in the service of others” –Gandhi

Volunteers are the lifeblood of our mission work at the nonprofit, Huntington’s Disease Society of America (HDSA)Huntington’s Disease is a rare, fatal, genetic brain disorder with NO CURE.  41,000 Americans have the disease and 200,000+ live at risk.  What Is Huntington’s disease? 

Volunteers are critical in helping HDSA soar to new heights of success since its inception nearly 5 decades ago.  

  • Volunteers contribute their time, passion, and skills, while bringing invaluable enthusiasm and talent to their work at HDSA. https://sanfrancisco.hdsa.org/   OR facebook.com/hdsasanfranciscobayarea
  • Volunteers embrace HDSA’s strategic plan to help carry out our plan of work which includes coordinating nationwide fundraising events and becoming Huntington’s Disease (HD) advocates in their communities.

To review volunteer opportunities where you can use your expertise, please visit VolunteerMatch website at:  volunteermatch.org   OR visit “How To Get Involved With HDSA

 

 

 

We Can Never Lose HOPE……

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here:  https://sanfrancisco.hdsa.org/yoga  

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  My HD Advocate/Author website is https://theresecrutchermarin.com

 

 

 

HDSA San Francisco Bay Area AFFILIATE

Huntington’s Disease Education Day Hosted by UCSF Center of Excellence

The HDSA Center of Excellence 

at University of California, San Francisco Medical Center

is Hosting an FREE EDUCATION DAY ON MARCH 17th – 6:00 pm-8:30 pm

              Register here:  http://sanfrancisco.hdsa.org/edday

Topics Presented:

  • Update on Clinical Trials-Dr. Cameron Dietiker
  • CRISPR- Bruce Conklin, MD
  • Medications for Huntington’s Disease Patients-Dr. Alexandra Nelson
  • Basic Science-Julia Kaye, PhD/Steve Finkbeiner, PhD of the Finkbeiner Lab

UCSF Center of Excellence Team: (not all team members are shown)

Zoom Link will be emailed to the registered participants the day before the event.

         

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here:  https://sanfrancisco.hdsa.org/yoga  

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  My website is https://theresecrutchermarin.com

 

 

 

HDSA San Francisco Bay Area AFFILIATE, Huntington's Disease

SAVE THE DATE-Education Day Hosted by UCSF Huntington’s Disease Center of Excellence

TO THE SF BAY AREA HUNTINGTON’S DISEASE COMMUNITY

The HDSA Center of Excellence 

at University of California, San Francisco Medical Center

is Hosting an FREE EDUCATION DAY ON MARCH 17th – 6:00 pm-8:30 pm

                                            Register here:  http://sanfrancisco.hdsa.org/edday

Topics Presented:

  • Update on Clinical Trials-Dr. Cameron Dietiker
  • CRISPR- Bruce Conklin, MD
  • Medications for Huntington’s Disease Patients-Dr. Alexandra Nelson
  • Basic Science-Julia Kaye, PhD/Steve Finkbeiner, PhD of the Finkbeiner Lab

We Can Never Lose HOPE…

 

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here:  https://sanfrancisco.hdsa.org/yoga  

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  My website is https://theresecrutchermarin.com

 

 

 

HD Advocates, HDSA San Francisco Bay Area AFFILIATE

HDSA San Francisco Bay Area Affiliate Celebrates One Year

The San Francisco Bay Area Affiliate, one of the 55 Chapters/Affiliates across the U.S., of the nonprofit, Huntington’s Disease Society of America,  is celebrating its first year of operation.  Despite the pandemic, team members shifted to zoom monthly meetings, virtual events and have developed a Strategic Plan for 2021 to help in the fight against Huntington’s disease, provide Education Days at Stanford & UCSF Center of Excellence, organize outreach projects so HD families can find services to help their family.   

I’m Therese Crutcher-Marin, the Chair for the Affiliate.  Amy Fedele 

HD Advocate Amy Fedele

is co-chair and Cole Holderman is secretary. 

On Saturday, January 11, 2020, the first Affiliate meeting was held at UCSF with 22 attending from Genetech, HOPES, community folks, UCSF & Stanford Centers of Excellence, and HDSA social workers/staff.  

Author Therese Crutcher-Marin, HD Advocate

I want to thank everyone involved in the Affiliate in 2020 for their time and dedication and I’m excited to kickoff 2021 at our first meeting on Wednesday, January 6, 2021.  At this first meeting of the year, we’ll be discussing the strategies to implement the 2021 Strategic Plan to outreach to the HD community in the Bay Area.  

We Can Never Lose HOPE………

Visit my My Author Website and check out my nonfiction  book,  Watching Their Dance.

 

HDSA, HDSA San Francisco Bay Area AFFILIATE

Make An End of Year Donation to Huntington’s Disease Society of America

Author Therese Crutcher-Marin, HD Advocate

I’ve been blogging for five (5) and for the first time I’m asking American’s, directly from my heart to yours, to donate to the nonprofit, Huntington’s Disease Society of America.  HDSA Organization  HDSA is a small nonprofit, 90% volunteer based, and no less important than the American Cancer Society, MS Society, Alzheimer’s Assoc. and Parkinson’s Foundation.  Huntington’s Disease (HD) families suffer like families of these diseases.

HD is one of 7,000 Rare Diseases in the world with NO CURE.  In the U.S., HD affects a small population; approximately 41,000 Americans live the disease and 200,000 live at risk.  I’m a volunteer and Chair for HDSA San Francisco Bay Area Affiliate, having lost my three (3) sisters-in-law to HD complications.  

I’m reaching out to you because it has been an unusual year with the pandemic which has affected everything in our lives.   Please consider making your year-end donation to HDSA so the nonprofit can continue supporting Huntington’s disease (HD) families across the U.S.  DONATE TO HDSA

Resources/programs funded by HDSA are: 50 Centers of Excellence (HD) clinics, local HD support groups, Disability Chats, Telehealth Program, National Youth Alliance Program, education and research.  HDSA also funds two yearly fellowships, Berman Topper Fellowship   Donald King Summer Research Fellowship , and the Human Biology Project.

HDSA has high ratings as a nonprofit.  Please see HDSA’s Charity Navigator ratings.

To make a donation, please visit:  HDSA Donation Page  

Thank you in advance for your generosity.

Below are HDSA accomplishments:

We Can Never Lose HOPE……………

 

 

 

 

Fundraising, HDSA San Francisco Bay Area AFFILIATE

A Virtual 10K Run & 5K Walk for Huntington’s Disease

It’s count down time!  Eighteen (18) days until the San Jose VIRTUAL Team Hope 10K Run & 5K Walk to help in the fight against Huntington’s disease.  (June 20th)

It’s FREE to join!  Donations are welcomed and appreciated!

Join, signup, here for the Run and Walk

The HDSA San Jose Team Hope 10K Run & 5K Walk is usually held at Campbell Park on the Los Gatos Creek Trail, but due to the Coronavirus, the event was changed to a VIRTUAL fundraiser.

     FUNDRAISE FOR PRIZES!

Due to the economic impact of COVID-19, we anticipate raising most of our funds through peer-to-peer fundraising.  And we want to reward you for your hard work and effort!  

Local RAFFLE: (gift cards will be mailed)

Photo by alykat on Foter.com / CC BY

RAISE $500 & YOU’LL BE ENTERED INTO A RAFFLE FOR:

$100 Gift Card for “The Table” restaurant in Willow Glen
$100 Gift Certificate from “Sprouts Farmers Market”

MORE REASONS TO RUN & WALK

To help support and reward your amazing fundraising achievement to support the HDSA mission, HDSA is launching new Incentives!

$100+: HDSA Team Hope T-Shirt

$125+: HDSA Family is Everything Brandanna (facecovering)

$500+: HDSA Team Hope Contigo Water Bottle

$1,000+: HDSA Portable Cooler Totebag

$2000+: HDSA Stadium Blanket

The T-shirts and Face coverings will be shipped on a regular basis as the fundraising goals are met.  The water bottle, cooler and stadium blanket will be shipped in December for fundraising achievements through November 30, 2020

We Can Never Lose HOPE….