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HDSA Fundraising events

HDSA Fundraising events

Hounds 4 Huntington’s Costume Dog Walk

It’s Halloween time so dress up your dog, your kids and yourself and help in the fight against Huntington’s disease (HD) by participating in the fundraising event, on October 26, 2019 for the nonprofit, Huntington’s Disease Society of America (HDSA), at Shollenberger Park in Petaluma, California. Shollenberger Park

To register your pooch, go to:https://app.donorview.com/QV7R                             

$25 for first dog & $10 for each additional dog.   

Humans are FREE!   

Huntington’s disease (HD) is a rare, fatal, genetic brain disorder that is like having all the symptoms of ALS, Parkinson’s and Alzheimers at the same time.  There is NO CURE.  Learn more about Huntington’s Disease here

There will be contests to enter your dog in; i.e. best costume (dog), biggest dog, smallest dog, shaggiest dog, best behaved dog and a Chinese raffle with lots of wine prizes.

The park trail is a flat 2-mile loop that takes you along the Petaluma River and is wheelchair accessible.

We Can Never Lose HOPE…………..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease.  To read my HD journey, an inspirational Love story while living in the shadow of HD, see my author website https://www.theresecrutchermarin.com

 

 

HDSA Fundraising events

The San Francisco Team Hope Walk Results Are In

The San Francisco Team Hope Walk last Saturday, October 5th, was a huge success, raising over $50,000.00 with 300 participants.

Saturday was a beautiful, clear day and the walk on Chrissy Field offered a gorgeous view of the San Francisco Golden Gate Bridge.  It was an awesome sight.

Team Hope Walk’s are HDSA fundraisers but it also serve other purposes.  HD families gather as a community to support one another, to share stories and not feel forlorn and isolated.  They know they are with their people; folks who are living the same life as they are.  What is Huntington’s Disease?

By participating, they don’t feel alone and are happy they can do something to help HDSA move forward in research and providing services to HD patients and their families; i.e. HD support groups, Centers of Excellence to be cared for by doctors/therapists, nurses who are Huntington’s Disease specialist.  If a family is new to HD, they can gather information and resources regarding HD.

This year in the U.S., approximately 99 Team Hope Walks will have been organized, raising money, heightening awareness and supporting the HD community. Huntington’s Disease Society of America Website (HDSA)

   

You can still donate to the event until December 31, 2019.  http://www.hdsa.org/thwsanfrancisco

We Can Never Lose HOPE…..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease.  We just announced that as of January 1, 2020, we will be a HDSA San Francisco Bay Area Affiliate.  Amy Fedele is the Co-Chair, I’m the Chair.  The Stanford and UCSF Centers of Excellence Teams are involved and it is our hope to increase our presence in the SF Bay Area that has a population of 7.1 million.

My author website is: https://www.theresecrutchermarin.com

You can read about my HD journey and the book I published, Watching Their Dance.  100% of the profits are being donated to the nonprofit, HDSA.  

 

 

HDSA Fundraising events

KPIX5 Bay Area Focus, Dr. Geschwind on Huntington’s Disease & Upcoming SF Hope Walk

On September 26th, 2019 Dr. Geschwind, from UCSF Center of Excellence, and myself were interviewed by Michelle Griego from KPIX5 Bay Area Focus. The segment aired last Sunday.  WhatIsHD?

A huge thank you to Michelle and KPIX5 staff for giving us the opportunity to promote the HDSA San Francisco Team Hope Walk this Saturday, October 5th.

To register, visit http://www.hdsa.org/thwsanfrancisco

Dr. Michael D. Geschwind is a neurologist at the UCSF Memory and Aging Center who specializes in assessing and treating rapidly progressive dementias, including prion diseases such as Creutzfeldt-Jakob disease. He helped establish a hospital program for the assessment of rapidly progressive dementias at UCSF Medical Center, the first of its kind in the country.

In his research, Geschwind studies cognitive dysfunction in movement disorders, such as Huntington’s disease, corticobasal degeneration, progressive supranuclear palsy and other parkinsonian dementias. https://www.ucsfhealth.org/michael.geschwind

To watch the video, click here:  https://www.youtube.com/watch?v=S0ENBjOlAe4

We Can Never Lose HOPE…….

HDSA Fundraising events

HDSA Pacific Region

Author Therese Crutcher-Marin

The Pacific Region of the Huntington’s Disease Society of America (HDSA) has many events coming up in October.  Check them out below and attend, if you can, to help in the fight against Huntington’s disease (HD).  HD is a rare, fatal, genetic brain disorder with NO CURE.  what is HD?

HD Freeze on Sept. 28th.   http://www.hdsa.org/freezehd

San Francisco Team Hope Walk & 5K Fun Run on Oct. 5th.  http://www.hdsa.org/thwsanfrancisco

San Diego Team Hope Walk on Oct. 6, 2019.  https://hdsa.donordrive.com/index.cfm

Monday Night Football, Tacos, & Beer to Bash HD on Oct. 21st in San Jose  https://app.donorview.com/jME5

Hounds 4 Huntington’s Dog Costume Walk on Oct. 26th in Petaluma  https://app.donorview.com/QV7R

Tuscan AZ Team Hope Walk on Oct. 26th  https://hdsa.donordrive.com/index.cfm

Orange County Team Hope Walk on Oct. 26th  https://hdsa.donordrive.com/index.cfm?

We Can Never Lose HOPE…………..

100% of the proceeds from the nonfiction book, Watching Their Dance, is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA) to help in the fight against Huntington’s disease.

Therese’s Author Website: https://www.theresecrutchermarin.com

 

HDSA Fundraising events

10K Timed Run for Huntington’s Disease-June 22 in Campbell CA

The 1st San Jose Team Hope 5K Walk & 10K Timed Run is fast approaching! 

Mark your calendars and help in the fight against the cruelest disease on the planet; Huntington’s disease (HD).  What is Huntington’s Disease?

To register, go here:  http://www.hdsa.org/thwsanjose

Walkers are: $25, 10K Runners: $60, Children under 12 are: $10.

The San Jose Earthquake Soccer organization, “The Quakes”,  will have games and prizes at the event.  https://www.sjearthquakes.com/        https://twitter.com/SJEarthquakes

The dollars from this fundraiser supports the nonprofit, Huntington’s Disease Society of America (HDSA)’s mission to help everyone affected by Huntington’s disease and their families by providing local services and programs in the San Francisco Bay Area.

     

We Can Never Lose HOPE…………….

Amy Fedele and myself at the HDSA NorCal Chapter Team Hope Walk

    

 

 

HDSA Fundraising events

San Jose CA 10K Timed Run for Huntington’s Disease

After many months of planning the San Jose 5K Walk & 10K Timed Run is about two (2) weeks away.

DATE:  June 22nd

WHERE:  Campbell Park Campbell CA https://www.google.com/maps/dir/38.226216,-122.6391552/campbell+park

REGISTERhttp://www.hdsa.org/thwsanjose

WHY: To support the nonprofit, Huntington’s Disease Society of America (HDSA)  http://www.hdsa.org

TIME:  Check-in 8 am.  Runners start @ 9 am and Walkers @ 9:15.

RUNNERS: Pick up bibs at Campbell Sports Basement 1875 S Bascom Ave Suite 240, Campbell on Friday, June 21 from 5-9 pm or date of event.

RACE DIRECTOR:  Therese Crutcher-Marin-theresecrutchermarin@gmail.com  530 906-8415

     

We Can Never Lose HOPE……

What Is Huntington’s Disease?

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

 

HDSA Fundraising events

Inaugural San Jose Team Hope 5K Walk & 10K Timed Run

Huntington’s Disease Society of America (HDSA) Chapters/Affiliates have hosted Team Hope Walks across the United States for years.  What is Huntington’s disease?  

Since their inception in 2007, Team Hope Walks have occurred in over 100 different cities and have raised more $18 million for the cause. What is Team Hope Walk? 

A group of Huntington’s disease (HD) advocates, in the San Francisco Bay Area, and myself are hosting a Team Hope Walk and adding a 10K Timed Run.  The event is the San Jose Team Hope 5K Walk and 10K Timed Run

We added the Timed Run to bring in folks from outside the HD community to heighten HD awareness and also raise more money to help in the fight against this horrific disease.

The EVENT is being held on the Los Gatos Creek Trail, it’s beautiful, located in the Campbell Park in Campbell.

DATE:   June 22, Saturday.

RUNNERS can pick up their bibs at Sports Basement in Campbell on Friday, June 21, from 5-9 pm. Or the next morning.

TIME:  Check-in starts at 8 am.  10K Runners start at 9 am and Walkers at 9:15 am.

REGISTER: http://www.hdsa.org/thwsanjose

Cost: Runners: $60   Walkers: $25  Children under 12: $10

We Can Never Lose HOPE………..

I’m a Huntington’s disease advocate having lost my three sisters-in-law, Lora, Marcia and Cindy to this horrific disease.  Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is a nonfiction book that I published and 100% of the proceeds are being donated to the nonprofit, HDSA.  You can find it on many book websites like Amazon. https://www.amazon.com/Watching-Their-Dance

 

HDSA Fundraising events

The Hobb’s Family

At this year’s Chico California Team Hope Walk, Debra Hobbs will volunteer at the walk for the first time with HDSA’s Pacific Region. Since 2007, Team Hope Walk have occurred in over 100 cities and is a fundraising campaign designed to provide hope and support for those affected by Huntington’s disease (HD).

This is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.

“This is my first time ever doing something like this, and I will do my best,” said Debra. “I have only been to one other walk and I really enjoyed it. To me it brought everyone together and it educated the ones who didn’t know about HD.”

Her story began in 2009 when her husband was diagnosed with HD. She has been with him for over 36 years and has stayed by his side through thick and thin. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

“He went into a deep depression and then he lost his job,” Debra explains. “We lost our home a few years later, because of bad judgment on his part due to HD.”

They would pull through the hard times and settled into their new lives. As the disease progressed, she would eventually become his caretaker.

Debra and her husband lived their entire life in Chico, which includes starting a business there. She wanted to give back to the community as she considered them family.

“I feel that people need to know about HD, and what it does to our loved ones,” said Debra. “My family is being torn apart because of this disease. HD has taken the love of my life away from me. So we need to bring awareness and raise money to find a cure.”

HDSA’s Pacific Region will be hosting the Chico California Team Hope Walk on May 11th from 9:00 AM – 12:00 PM at Cedar Grove Park. For more information, go to http://www.hdsa.org/thwchico.

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Each child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of Huntington’s disease are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

​To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit http://www.HDSA.org or call 1(800) 345-HDSA.

Author Therese Crutcher-Marin will be working at the event and selling her nonfiction book, WatchingTheir Dance.  100% of the proceeds from the book is being donated to HDSA to help in the fight against Huntington’s disease.  Author Website:  https://www.theresecrutchermarin.com

HDSA Fundraising events

A Chico Fundraiser to Fight Huntington’s Disease

If you haven’t been to Chico California, make a day of it starting with the HDSA Chico Team Hope Walk.  Then after the fundraiser, check out Sierra Nevada Brewing Company in Chico, take a tour and also have lunch or dinner at their restaurant.  https://sierranevada.com/beer/

The Chico Team Hope Walk begins 9 a.m. and the cost is $25.00 and if you registered by 4-1-19, you will receive a T-shirt.

To register:  http://www.hdsa.org/thwchico

The Team Hope Walk program is Huntington’s Disease Society of America’s (HDSA) signature grassroots fundraising campaign designed to provide hope and support for those touched by this devastating disease, Huntington’s disease (HD). HDSA is a premier nonprofit improving the lives of everyone affected by Huntington’s disease.

All proceeds support HDSA’s mission to improve the lives of people affected by HD and their families. http://www.hdsa.org

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. #HDSA

John and I will be helping with the event and I’ll also be selling my nonfiction book, Watching Their Dance, at the event. 100% of the profit is being donated to HDSA. So far, I’ve gifted $14,100.00 to HDSA.

Author website: https://www.theresecrutchermarin.com

 

HDSA Fundraising events

HDSA 2018 NYC Marathon Team

The results are in for one of the biggest fundraiser for Huntington’s Disease Society of America (HDSA) held on November 4, 2018.

The 26 runners on the 2018 HDSA NYC Marathon Team, raised      $114,560.00!

                 Thank you so much

          

To read about the 26 HDSA Team runners, go to: https://www.crowdrise.com/o/en/campaign/huntingtons-disease-society-of-america-nyc-2018

Our daughter, Vanessa, and daughter-in-law, Fran, were on the HDSA 2016 NYC Marathon Team and raised $110,000.00.                    

Our son Keith, son-in-law, Scott, Scott’s parents, John and I traveled to New York and cheered them on.  We had so much fun while the runners raised money to help in the fight against Huntington’s disease.What-is-HD

To apply to be on the 2019 HDSA NYC Marathon Team, go to this page in March to sign up: https://hdsa.org/how-to-help/nyc-marathon-team/

We Can Never Lose Hope…………..