Please join the first San Jose VIRTUAL Team Hope 10K Run & 5K Walk on June 20th at 10 a.m. (PST), a fundraiser for the nonprofit, Huntington’s Disease Society of America (HDSA).
The Coronavirus has impacted our daily lives and interfered with many fundraising activities, but the Huntington’s disease community is resilient and we carry on, changing our events so we can continue to provide local resources to help HD families in the San Francisco Bay Area.
The VIRTUAL Run and Walk is FREE to Join. Donations are very appreciated.
On Saturday, May 2nd, 2020, the Marin Family Team raised over $1,000.00 to help in the fight against Huntington’s Disease (HD) by participating in a VIRTUAL Team Hope Walk hosted by the nonprofit, Huntington’s Disease Society of America (HDSA). http://hdsa.org
HDSA is a premier nonprofit dedicated to improving the lives of everyone affected by Huntington’s disease: a rare, fatal, genetic brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimer simultaneously, and there is NO CURE.
Keith & Fran Marin and Jody Sorenson, Fran’s mom
Since the fundraising event was VIRTUAL, my husband, John, myself and my 90-year old dad, Jim, walked in our neighborhood as did folks across the country. Our children and their spouses also walked and even though the HD community couldn’t be together, because of the Coronavirus, I felt a sense of camaraderie and solidarity in my heart.
Why a HDSA Virtual Team Hope Walk? Because Family is Everything. While COVID-19 disrupts everyone’s lives, HD continues to impact the lives of so many families near and dear to us. And even though stay at home orders and social distancing may keep us physically apart, the spirit of the HD Community will not be broken.
The HD community will come together on May 02, 2020 @ 10 a.m. (PST) with photos and videos and stories of the community walking TOGETHER to support HDSA’s mission to improving the lives of everyone affected by Huntington’s disease.
A VIRTUAL walk is a real walk, but on your terms: You get to choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill!
Sign up now and participate in the virtual walk by raising money and awareness. Your family, friends,colleagues and health care providers can join your Virtual Team Hope Walk on MAY 2nd, 2020, 10 AM (PST).
*Join the HDSA Familyon May 2nd as we kick offHuntington’s Disease Awareness Month with the LARGEST TEAM HOPEEVENT EVER!
A Heart 4 Huntington’s Beer Event at Lagunitas Brewing Company in Petaluma is the first fundraiser for the NEW HDSA San Francisco Bay Area Affiliate. Purchase Tickets here
Mark your calendars for Monday, February 3rd from 5:30-8:30 p.m. Bring your friends and family for a night to listen to live music and dance, have a beer(s), wind down from your Monday and help in the fight against Huntington’s disease (HD). Food truck on site . What is Huntington’s disease?
It’s Halloween time so dress up your dog, your kids and yourself and help in the fight against Huntington’s disease (HD) by participating in the fundraising event, on October 26, 2019 for the nonprofit, Huntington’s Disease Society of America (HDSA), at Shollenberger Park in Petaluma, California. Shollenberger Park
Huntington’s disease (HD) is a rare, fatal, genetic brain disorder that is like having all the symptoms of ALS, Parkinson’s and Alzheimers at the same time. There is NO CURE. Learn more about Huntington’s Disease here
There will be contests to enter your dog in; i.e. best costume (dog), biggest dog, smallest dog, shaggiest dog, best behaved dog and a Chinese raffle with lots of wine prizes.
The park trail is a flat 2-mile loop that takes you along the Petaluma River and is wheelchair accessible.
We Can Never Lose HOPE…………..
Author Therese Crutcher-Marin
I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease. To read my HD journey, an inspirational Love story while living in the shadow of HD, see my author website https://www.theresecrutchermarin.com
The San Francisco Team Hope Walk last Saturday, October 5th, was a huge success, raising over $50,000.00 with 300 participants.
Saturday was a beautiful, clear day and the walk on Chrissy Field offered a gorgeous view of the San Francisco Golden Gate Bridge. It was an awesome sight.
Team Hope Walk’s are HDSA fundraisers but it also serve other purposes. HD families gather as a community to support one another, to share stories and not feel forlorn and isolated. They know they are with their people; folks who are living the same life as they are. What is Huntington’s Disease?
By participating, they don’t feel alone and are happy they can do something to help HDSA move forward in research and providing services to HD patients and their families; i.e. HD support groups, Centers of Excellence to be cared for by doctors/therapists, nurses who are Huntington’s Disease specialist. If a family is new to HD, they can gather information and resources regarding HD.
I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease. We just announced that as of January 1, 2020, we will be a HDSA San Francisco Bay Area Affiliate. Amy Fedele is the Co-Chair, I’m the Chair. The Stanford and UCSF Centers of Excellence Teams are involved and it is our hope to increase our presence in the SF Bay Area that has a population of 7.1 million.
Dr. Michael D. Geschwind is a neurologist at the UCSF Memory and Aging Center who specializes in assessing and treating rapidly progressive dementias, including prion diseases such as Creutzfeldt-Jakob disease. He helped establish a hospital program for the assessment of rapidly progressive dementias at UCSF Medical Center, the first of its kind in the country.
In his research, Geschwind studies cognitive dysfunction in movement disorders, such as Huntington’s disease, corticobasal degeneration, progressive supranuclear palsy and other parkinsonian dementias. https://www.ucsfhealth.org/michael.geschwind
The Pacific Region of the Huntington’s Disease Society of America (HDSA) has many events coming up in October. Check them out below and attend, if you can, to help in the fight against Huntington’s disease (HD). HD is a rare, fatal, genetic brain disorder with NO CURE. what is HD?
100% of the proceeds from the nonfiction book, Watching Their Dance, is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA) to help in the fight against Huntington’s disease.