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HDSA Fundraising events

HDSA Fundraising events

San Jose Virtual Team Hope 10K Run and 5K Walk for Huntington’s Disease

Please join the first San Jose VIRTUAL Team Hope 10K Run & 5K Walk on June 20th at 10 a.m. (PST), a fundraiser for the nonprofit, Huntington’s Disease Society of America (HDSA).

The Coronavirus has impacted our daily lives and interfered with many fundraising activities, but the Huntington’s disease community is resilient and we carry on, changing our events so we can continue to provide local resources to help HD families in the San Francisco Bay Area. 

The VIRTUAL Run and Walk is FREE to Join.  Donations are very appreciated.

To sign up, visit: HDSA San Jose Virtual Fundraiser

We Can Never Lose HOPE….     #LetsTalkAboutHD

HDSA Fundraising events

The Marin Family Team Raises Over $1,000.00 for Huntington’s Disease

 

On Saturday, May 2nd, 2020, the Marin Family Team raised over $1,000.00 to help in the fight against Huntington’s Disease (HD) by participating in a VIRTUAL Team Hope Walk hosted by the nonprofit, Huntington’s Disease Society of America (HDSA).  http://hdsa.org

HDSA is a premier nonprofit dedicated to improving the lives of everyone affected by Huntington’s disease: a rare, fatal, genetic brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimer simultaneously, and there is NO CURE.

Keith & Fran Marin and Jody Sorenson, Fran’s mom

Since the fundraising event was VIRTUAL, my husband, John, myself and my 90-year old dad, Jim, walked in our neighborhood as did folks across the country.  Our children and their spouses also walked and even though the HD community couldn’t be together, because of the Coronavirus, I felt a sense of camaraderie and solidarity in my heart.

To make a donation, go to:  https://app.donorview.com/Donation/DonationInfo

We Can Never Lose Hope……..           #LetsTalkAboutHD

 

HDSA Fundraising events

A VIRTUAL Team Hope Walk to Raise Funds for Huntington’s Disease Research

Why a HDSA Virtual Team Hope Walk? Because Family is Everything. While COVID-19 disrupts everyone’s lives, HD continues to impact the lives of so many families near and dear to us. And even though stay at home orders and social distancing may keep us physically apart, the spirit of the HD Community will not be broken

 

 

The HD community will come together on May 02, 2020 @ 10 a.m. (PST) with photos and videos and stories of the community walking TOGETHER to support HDSA’s mission to improving the lives of everyone affected by Huntington’s disease.

To JOIN the Walk is FREE!  Signup at: https://sanfrancisco.hdsa.org/…/2020-san-francisco-team-hop… OR https://pacificreg.hdsa.org/ab…/2020-san-jose-team-hope-walk

Share photos, videos & stories to social media using #VirtualTeamHopeWalk

#LetsTalkAboutHD #MayisHDAwarenessMonth  #WeCanNeverLoseHOPE

HDSA Fundraising events

Patrick Mahomes Jersey Auctioned Off by HDSA

Huntington’s Disease Social of America is auctioning off a Kansas City Chief, Patrick Mahomes, Jersey to kickoff HD Awareness Month.

For information on Huntington’s disease visit:    http://hdsa.org

This jersey is authenticated to be #19 of only 100 created and signed. It represents he history-making game in which Mahomes threw for over 300 yards.

Make your bid here.  lMakeYourBidHere
Ends Sunday, May 2nd.
 
For more information, contact Rosalie Hamiltonrosalie.hamilton@gmx.com
#LetsTalkAboutHD #WeCanNeverLoseHope
HDSA Fundraising events

May 2nd-VIRTUAL Team Hope Walk

A VIRTUAL walk is a real walk, but on your terms: You get to choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill!

Sign up now and participate in the virtual walk by raising money and awareness. Your family, friends,colleagues and health care providers can join your Virtual Team Hope Walk on MAY 2nd, 2020, 10 AM (PST).  

 

*Join the HDSA Family on May 2nd as we kick off  Huntington’s Disease Awareness Month with the LARGEST TEAM HOPE EVENT EVER!

 

*Register today for the Virtual Team Hope Walk at pacificreg.hdsa.org

       

      JOIN AS A VIRTUAL WALKER FOR FREE! 

 

We Can Never Lose HOPE…….

HDSA Fundraising events

Lagunitas Brewing Company Hosts a Fundraiser for Huntington’s Disease

A Heart 4 Huntington’s Beer Event at Lagunitas Brewing Company in Petaluma is the first fundraiser for the NEW HDSA San Francisco Bay Area Affiliate.  Purchase Tickets here
 
Mark your calendars for Monday, February 3rd from 5:30-8:30 p.m.  Bring your friends and family for a night to listen to live music and dance, have a beer(s), wind down from your Monday and help in the fight against Huntington’s disease (HD).  Food truck on site .  What is Huntington’s disease?  
Lagunitas Brewing Company is very generous and offers their venue free on Monday & Tuesday evenings to local nonprofits and they also supply the beer free.  https://lagunitas.com/taproom/petaluma
Also, a popular local Sonoma County band, with a large following, Poyntlyss Sistars Rockin’ Show 
Band are donating their time.   http://www.psband.net/
To purchase tickets, visit:   https://app.donorview.com/ljwEp 
HDSA Fundraising events

Hounds 4 Huntington’s Costume Dog Walk

It’s Halloween time so dress up your dog, your kids and yourself and help in the fight against Huntington’s disease (HD) by participating in the fundraising event, on October 26, 2019 for the nonprofit, Huntington’s Disease Society of America (HDSA), at Shollenberger Park in Petaluma, California. Shollenberger Park

To register your pooch, go to:https://app.donorview.com/QV7R                             

$25 for first dog & $10 for each additional dog.   

Humans are FREE!   

Huntington’s disease (HD) is a rare, fatal, genetic brain disorder that is like having all the symptoms of ALS, Parkinson’s and Alzheimers at the same time.  There is NO CURE.  Learn more about Huntington’s Disease here

There will be contests to enter your dog in; i.e. best costume (dog), biggest dog, smallest dog, shaggiest dog, best behaved dog and a Chinese raffle with lots of wine prizes.

The park trail is a flat 2-mile loop that takes you along the Petaluma River and is wheelchair accessible.

We Can Never Lose HOPE…………..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease.  To read my HD journey, an inspirational Love story while living in the shadow of HD, see my author website https://www.theresecrutchermarin.com

 

 

HDSA Fundraising events

The San Francisco Team Hope Walk Results Are In

The San Francisco Team Hope Walk last Saturday, October 5th, was a huge success, raising over $50,000.00 with 300 participants.

Saturday was a beautiful, clear day and the walk on Chrissy Field offered a gorgeous view of the San Francisco Golden Gate Bridge.  It was an awesome sight.

Team Hope Walk’s are HDSA fundraisers but it also serve other purposes.  HD families gather as a community to support one another, to share stories and not feel forlorn and isolated.  They know they are with their people; folks who are living the same life as they are.  What is Huntington’s Disease?

By participating, they don’t feel alone and are happy they can do something to help HDSA move forward in research and providing services to HD patients and their families; i.e. HD support groups, Centers of Excellence to be cared for by doctors/therapists, nurses who are Huntington’s Disease specialist.  If a family is new to HD, they can gather information and resources regarding HD.

This year in the U.S., approximately 99 Team Hope Walks will have been organized, raising money, heightening awareness and supporting the HD community. Huntington’s Disease Society of America Website (HDSA)

   

You can still donate to the event until December 31, 2019.  http://www.hdsa.org/thwsanfrancisco

We Can Never Lose HOPE…..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to the disease.  We just announced that as of January 1, 2020, we will be a HDSA San Francisco Bay Area Affiliate.  Amy Fedele is the Co-Chair, I’m the Chair.  The Stanford and UCSF Centers of Excellence Teams are involved and it is our hope to increase our presence in the SF Bay Area that has a population of 7.1 million.

My author website is: https://www.theresecrutchermarin.com

You can read about my HD journey and the book I published, Watching Their Dance.  100% of the profits are being donated to the nonprofit, HDSA.  

 

 

HDSA Fundraising events

KPIX5 Bay Area Focus, Dr. Geschwind on Huntington’s Disease & Upcoming SF Hope Walk

On September 26th, 2019 Dr. Geschwind, from UCSF Center of Excellence, and myself were interviewed by Michelle Griego from KPIX5 Bay Area Focus. The segment aired last Sunday.  WhatIsHD?

A huge thank you to Michelle and KPIX5 staff for giving us the opportunity to promote the HDSA San Francisco Team Hope Walk this Saturday, October 5th.

To register, visit http://www.hdsa.org/thwsanfrancisco

Dr. Michael D. Geschwind is a neurologist at the UCSF Memory and Aging Center who specializes in assessing and treating rapidly progressive dementias, including prion diseases such as Creutzfeldt-Jakob disease. He helped establish a hospital program for the assessment of rapidly progressive dementias at UCSF Medical Center, the first of its kind in the country.

In his research, Geschwind studies cognitive dysfunction in movement disorders, such as Huntington’s disease, corticobasal degeneration, progressive supranuclear palsy and other parkinsonian dementias. https://www.ucsfhealth.org/michael.geschwind

To watch the video, click here:  https://www.youtube.com/watch?v=S0ENBjOlAe4

We Can Never Lose HOPE…….

HDSA Fundraising events

HDSA Pacific Region

Author Therese Crutcher-Marin

The Pacific Region of the Huntington’s Disease Society of America (HDSA) has many events coming up in October.  Check them out below and attend, if you can, to help in the fight against Huntington’s disease (HD).  HD is a rare, fatal, genetic brain disorder with NO CURE.  what is HD?

HD Freeze on Sept. 28th.   http://www.hdsa.org/freezehd

San Francisco Team Hope Walk & 5K Fun Run on Oct. 5th.  http://www.hdsa.org/thwsanfrancisco

San Diego Team Hope Walk on Oct. 6, 2019.  https://hdsa.donordrive.com/index.cfm

Monday Night Football, Tacos, & Beer to Bash HD on Oct. 21st in San Jose  https://app.donorview.com/jME5

Hounds 4 Huntington’s Dog Costume Walk on Oct. 26th in Petaluma  https://app.donorview.com/QV7R

Tuscan AZ Team Hope Walk on Oct. 26th  https://hdsa.donordrive.com/index.cfm

Orange County Team Hope Walk on Oct. 26th  https://hdsa.donordrive.com/index.cfm?

We Can Never Lose HOPE…………..

100% of the proceeds from the nonfiction book, Watching Their Dance, is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA) to help in the fight against Huntington’s disease.

Therese’s Author Website: https://www.theresecrutchermarin.com