Browsing Category

HDSA Fundraising events

HDSA Fundraising events

San Jose Team HOPE Timed 10K Run & 5K Walk Will Be IN-PERSON

The 3rd Annual HDSA San Jose Team Hope 10K Timed Run & 5K Walk was approved by the City of Campbell to hold an IN-PERSON event on June 19th, 2021 at Campbell Park.
10K Runners can pick up their bibs at Campbell Sports Basement on Friday, June 18 from 5-7 pm. 1875 S Bascom Ave Suite 240, Campbell, CA
Get your running and walking shoes on and sign up for the fundraiser to help in the fight against Huntington’s Disease. SIGN UP HERE: hdsa.org/thwsanjose

Runners will be timed courtesy of Record Timing, owner Shawn Laughlin. https://live.recordtiming.com/

Author Therese Crutcher-Marin

I’m the Coordinator for the Run/Walk and we’re so happy that we’ll be seeing and hugging our Huntington’s Disease families and friends in-person.

Please make a donation to the upcoming fundraiser HERE.
We Can Never Lose HOPE…

HDSA Fundraising events

Virtual Trivia Night with Lagunitas, Bear Republic and HenHouse Beer

Please join us on April 25, 2021 for our upcoming Virtual Trivia Night with local  beers in Sonoma County; Lagunitas, Bear Republic and HenHouse Breweries. 

Signup here:  https://sanfrancisco.hdsa.org/trivianight

Open to San Francisco North bay residents/or anyone who will pick up their beer in Petaluma.

Must be 21 or older to participate.

$40 per person, each person will receive a total of 4 beers compliments of HenHouse, Bear Republic and Lagunitas.  (while supplies last)

Form a trivia team (any number of people can be a team), enjoy local brews, and compete for a case of beer (24 – 16 oz cans) from HenHouse, Lagunitas or Bear Republic in Sonoma County.  Lagunitas, Bear Republic and HenHouse.

Please pick up your beer at 15 Cleveland Lane, Petaluma on Saturday April 24 from 10:00 am to 6:00 pm, and Sunday April 25 from 10:00 am to 3:00 pm.

Call Vanessa Garrett at 530 906-3950 to arrange pick up.

Call Therese Crutcher-Marin at 530 906-8415 to arrange delivery. Delivery only by prearranged circumstances.

This event is a fundraiser for the nonprofit, Huntington’s Disease Society of America.

We Can Never Lose HOPE……….

 

HD Awareness, HDSA Fundraising events

KSRO Talks with Therese Crutcher-Marin About Huntington’s Disease

Listen to the in-depth talk I had with Michelle Marques, host of Sonoma County Focus on radio station KSRO in San Francisco North Bay. 

Click here to listen to the interview:  https://www.ksro.com/episode/sonoma-county-focus-fundraiser-for-huntingtons-disease-society-of-america/

Heightening awareness of Huntington’s Disease is important so I was grateful to have twenty minutes to talk about the disease.  I also shared information regarding the HDSA San Francisco Bay Area Affiliate upcoming Virtual Trivia Night with Sonoma County Beer fundraiser on April 25, 2021.

Enjoy a night of Trivia while sipping on HenHouse, Bear Republic & Lagunitas beer!

Sunday, April 25, 2021 5:00 pm – 8:00 pm

Open to San Francisco North Bay residents/or anyone who can pick up their beer in Petaluma.

Must be 21 or older to participate.

$40 donation per person; each person will receive a total of 4 beers, a combination of HenHouse, Bear Republic & Lagunitas.  (while supplies last)

Form a trivia team (any number of people can be a team), enjoy local brews, and compete for a case of beer (24 – 16 oz cans) from one of the 3 beers.

Register Here:  https://sanfrancisco.hdsa.org/trivianight

 

We Can Never Lose HOPE…………..

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  Visit my website:  https://theresecrutchermarin.com 

 

HDSA Fundraising events

Thank you to Lagunitas, HenHouse and Bear Republic Breweries

Author Therese Crutcher-Marin, HD Advocate

I want to thank HenHouse, Lagunitas and Bear Republic Breweries in Sonoma County CA for donating 10 cases each to  the nonprofit, Huntington’s Disease Society of America (HDSA) for our upcoming Virtual Trivia Night with Local Beer.

 

 

Huntington’s Disease Society of America‘s (HDSA) mission is to improve the lives of everyone affected by Huntington’s disease and their families.  Since there is NO CURE, HDSA strives to have local resources available to Huntington’s disease families; i.e., two (2) HD clinics, one at Stanford and one at UCSF Medical Center; three (3) monthly HD support groups in Palo Alto, Mill Valley and El Cerrito, two (2) Education Days and many online resources.  HDSA also offers Fellowships to young scientists.

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here:  https://sanfrancisco.hdsa.org/yoga  

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  My HD Advocate/Author website is https://theresecrutchermarin.com

 

 

 

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here:  https://sanfrancisco.hdsa.org/yoga  

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  My website is https://theresecrutchermarin.com

 

 

 

HDSA Fundraising events, HDSA San Francisco Bay Area AFFILIATE

Stretch It Out For Huntington’s Disease-A Gentle Yoga Class

JOIN US FOR A VIRTUAL YOGA CLASS

AMANDA SHREWSBURY, INSTRUCTOR

OPEN TO ALL LEVELS AND ABILITIES!

Saturday, MARCH 6, 2021 10:00 AM TO 11:00 AM

Register Here:  https://sanfrancisco.hdsa.org/yoga  

(Zoom link will be sent the morning of the event)

Amanda Shrewsbury has been teaching yoga since 2014 and is a 200-Hour Registered Yoga Teacher (RYT) through Yoga Alliance. Over the years she has taught yoga to individuals of all ages, and has experience teaching a variety of yoga styles including power yoga, gentle yoga, and chair yoga. Her primary goal as a yoga instructor is to connect others with the ability to be gentle with their mind and body. She has been involved with the HD community since 2020 as a volunteer, and is a health advocate who has plans to obtain a Master’s degree in Genetic Counseling to continue to give back to others.

We Can Never Lose HOPE……

Author Therese Crutcher-Marin

I’m a Huntington’s disease advocate, the Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author.  My website is https://theresecrutchermarin.com

 

 

 

HDSA Fundraising events

Amaryllis Holiday Sale Helps in the Fight Against Huntington’s Disease

Order your Amaryllis Holiday Kits Today!   

The amaryllis commonly symbolizes strength and determination. The Huntington’s disease community has adopted this flower to represent hope and celebrate the advancements in HD research.

Order you Amaryllis flower kit(s) here 

The nonprofit, Huntington’s Disease Society of America (HDSA) receives $5.00 from every kit purchase.  Please designate San Francisco Bay Area Affiliate to receive the credit for the sale.

Amaryllis- Individual Kits

Amaryllis bulbs are among the easiest bulbs to grow indoors and the most rewarding. These premium Dutch bulbs need minimal attention but you will be rewarded with spectacular blooms to brighten up the dark winter days.
Planting Amaryllis and watching them grow is a fun activity for the entire family.

Each Amaryllis kit will contain everything you
need to have your own spectacular Amaryllis
this winter including:
• One 26/28 cm Amaryllis Bulb
• Decorative Pot
• Professional Growing Medium
• Planting Care and Aftercare Instructions
Each kit costs only $10.00 (plus s&h)

Author Therese Crutcher-Marin

We Can Never Lose HOPE…….

 

 

HDSA Fundraising events

VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA

Author Therese Crutcher-Marin

A global audience of nearly 4,000 tuned into the Virtual 6th Annual Freeze HD event on Saturday, September 26th which raised $200,000 to support the fight against Huntington’s disease (HD).  Due to the COVID-19 pandemic, the Huntington’s Disease Society of America (HDSA) transitioned the world’s largest and most-anticipated HD fundraising event to a virtual format.

Hosted live by actor Scott Porter from a secure location in Los Angeles, Freeze HD featured an incredible online auction, live music with Brian Logan Dales from The Summer Set and dozens of videos from celebrities offering their support in the fight against HD.

Missed the show? No problem! CLICK HERE TO WATCH THE RECORDING OF THE VIRTUAL 6TH ANNUAL FREEZE HD. Donations are still being accepted to support the event by visiting HDSA.org/freezehd!

HD is described as a combination of ALS, Parkinson’s & Alzheimer’s. This devastating brain disorder, with no cure, is known as the quintessential family disease because each child of a parent with HD has a 50% chance of inheriting the gene that causes HD.

“Each year, Freeze HD is star-studded call to action to stop Huntington’s disease in its tracks.   While we missed gathering in person, hosting the event virtually reached the global HD community and allowed more families to connect and be inspired in this fight,” said HDSA’s President & CEO Louise Vetter.  More about the nonprofit Huntington’s Disease Society of America

We Can Never Lose HOPE….

 

 

 

HDSA Fundraising events

Kate Miner-HD Advocate, Singer, Musician and Actress

Author Therese Crutcher-Marin

Kate’s mother and two sisters tested positive in 2015 for the mutated huntingtin gene. Kate tested negative. Her sister, Jenne, is on the Huntington’s Disease Society of America (HDSA) Board of Trustee.  jenne-coler-dark-interview

In 2017, I conducted an interview with Kate Miner. One question I asked:

Tell us about your involvement in Freeze HD and other ways you are trying to educate people about the disease.  

Kate:  We decided to host a fundraiser as a sort of coming out party to our family and friends many of whom, like us, had no idea what HD was before it affected our family. We rented out a fun music venue in Echo Park called The Bootleg Theater and proceeded to raise over 200k. The event brought out big names like Academy Award winner Annette Bening and an array of television stars.  Kate Miner FB page

THE 6TH ANNUAL FREEZE HD GOES VIRTUAL & FREE!

Join hosts

& Kate Miner on Sept 26 at the Virtual 6th Annual Freeze HD! REGISTER TODAY: HDSA.ORG/FREEZEHD

                         

In 2019 the Freeze HD raised over $420,000.00.  That is amazing!

We Can Never Lose HOPE…