Browsing Category

HDSA Fundraising events

HDSA Fundraising events

Kate Miner-HD Advocate, Singer, Musician and Actress

Author Therese Crutcher-Marin

Kate’s mother and two sisters tested positive in 2015 for the mutated huntingtin gene. Kate tested negative. Her sister, Jenne, is on the Huntington’s Disease Society of America (HDSA) Board of Trustee.  jenne-coler-dark-interview

In 2017, I conducted an interview with Kate Miner. One question I asked:

Tell us about your involvement in Freeze HD and other ways you are trying to educate people about the disease.  

Kate:  We decided to host a fundraiser as a sort of coming out party to our family and friends many of whom, like us, had no idea what HD was before it affected our family. We rented out a fun music venue in Echo Park called The Bootleg Theater and proceeded to raise over 200k. The event brought out big names like Academy Award winner Annette Bening and an array of television stars.  Kate Miner FB page

THE 6TH ANNUAL FREEZE HD GOES VIRTUAL & FREE!

Join hosts

& Kate Miner on Sept 26 at the Virtual 6th Annual Freeze HD! REGISTER TODAY: HDSA.ORG/FREEZEHD

                         

In 2019 the Freeze HD raised over $420,000.00.  That is amazing!

We Can Never Lose HOPE…

HDSA Fundraising events

Stretch It Out For Huntington’s Disease-A Yoga Class

STRETCH IT OUT FOR HUNTINGTON’S DISEASE
Do you need some essential oils in your life? Well, this is your chance to win a free aromatherapy rollerball from Love Your Brain Foundation! Sometime during our class on Saturday, we will announce the winner of this raffle. The way it works is easy:
1. Invite friends to this Facebook event or share the link to the HDSA fundraiser page with them directly. https://sanfrancisco.hdsa.org/stretchitout   Each friend you reach out to counts as one raffle entry. I know many of you have already invited friends to the page, so we will accept the following as “invites”: 1) new invites (have not seen link or page before), or 2) personal follow ups to people you have already invited, encouraging them to come to the event
2. Message Amanda Shrewsbury on facebook, instagram, or comment on a post with the number of people you have invited or followed up with. You don’t have to do all of your invites/follow ups at once. I will keep a running tally of your number and you can send as many messages/comments as you’d like!
3. Wait for the announcement of the winner at the event and get excited!
It’s FREE to join the class and donations are welcomed and appreciated.  Sign up and we’ll send you a Zoom link the day before the class.  https://sanfrancisco.hdsa.org/stretchitout
For more information on Huntington’s disease or to make a donation, please visit:  http://hdsa.org
We Can Never Lose HOPE…….
HDSA Fundraising events

For The Love of Wine and Huntington’s Disease

Sip Back and Relax…

Get ready to sip, swirl and taste amazing wines while supporting families with Huntington’s Disease on August 16, 2020. 

That’s right, by popular demand we put it together!    This is one event you don’t want to miss.

Join us for a night of great wine, great friends and a great cause.                                                                                        All from the comfort of your own home.

For more information or to join us click here: https://app.donorview.com/em6RJ

The wine tasting event supports the nonprofit, Huntington’s    Disease Society of America (HDSA), that is dedicated to improving the lives of everyone affected by Huntington’s disease and their families.  http://hdsa.org

We Can Never Lose HOPE….

Author Therese Crutcher-Marin

HDSA Fundraising events

Running for a Huntington’s Disease Cure

May is Huntington’s Disease Awareness Month.  #LetsTalkAboutHD 

In 2016, I asked Fran, my daughter-in-law, and Vanessa, my daughter, to run in the New York City Marathon on the Huntington’s Disease Society of America (HDSA) TEAM.  New York Road Runners offers blocks of guaranteed, non-complimentary entries to qualified and selected nonprofits through the Official Charity Partner Program of the TCS New York City Marathon. https://www.nyrr.org/getinvolved/charity-partners/charity-partners-tcsnycm

Both of these women run marathons, 10K’s and half marathons so they were excited to apply and make money to help in the fight against the cruelest disease on the planet, Huntington’s disease.

The nonprofit, HDSA, participates in the TCS New York City Marathon Charity Partner Program.  Fran and Vanessa had to apply to HDSA and commit to raising $3,500.00.  Approximately 20 people were admitted to run on the HDSA Team and the team raised over $100,000.00.

Approximately 50,0000 people run the marathon.  The event was very organized and the city was packed with bystanders.  As they ran through the New York boroughs, people where partying and screaming and clapping for the runners.  These two woman cut 10 minutes off their Marathon time because of all the support as they ran.

John, myself, Keith, Scott, Dawn and Jim Garret flew to NY and we all cheered them on.  It was a blast and both Fran and Vanessa raised together $8,000.00

We Can Never Lose HOPE……

HDSA Fundraising events

San Jose Virtual Team Hope 10K Run and 5K Walk for Huntington’s Disease

Please join the first San Jose VIRTUAL Team Hope 10K Run & 5K Walk on June 20th at 10 a.m. (PST), a fundraiser for the nonprofit, Huntington’s Disease Society of America (HDSA).

The Coronavirus has impacted our daily lives and interfered with many fundraising activities, but the Huntington’s disease community is resilient and we carry on, changing our events so we can continue to provide local resources to help HD families in the San Francisco Bay Area. 

The VIRTUAL Run and Walk is FREE to Join.  Donations are very appreciated.

To sign up, visit: HDSA San Jose Virtual Fundraiser

We Can Never Lose HOPE….     #LetsTalkAboutHD

HDSA Fundraising events

The Marin Family Team Raises Over $1,000.00 for Huntington’s Disease

 

On Saturday, May 2nd, 2020, the Marin Family Team raised over $1,000.00 to help in the fight against Huntington’s Disease (HD) by participating in a VIRTUAL Team Hope Walk hosted by the nonprofit, Huntington’s Disease Society of America (HDSA).  http://hdsa.org

HDSA is a premier nonprofit dedicated to improving the lives of everyone affected by Huntington’s disease: a rare, fatal, genetic brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimer simultaneously, and there is NO CURE.

Keith & Fran Marin and Jody Sorenson, Fran’s mom

Since the fundraising event was VIRTUAL, my husband, John, myself and my 90-year old dad, Jim, walked in our neighborhood as did folks across the country.  Our children and their spouses also walked and even though the HD community couldn’t be together, because of the Coronavirus, I felt a sense of camaraderie and solidarity in my heart.

To make a donation, go to:  https://app.donorview.com/Donation/DonationInfo

We Can Never Lose Hope……..           #LetsTalkAboutHD

 

HDSA Fundraising events

A VIRTUAL Team Hope Walk to Raise Funds for Huntington’s Disease Research

Why a HDSA Virtual Team Hope Walk? Because Family is Everything. While COVID-19 disrupts everyone’s lives, HD continues to impact the lives of so many families near and dear to us. And even though stay at home orders and social distancing may keep us physically apart, the spirit of the HD Community will not be broken

 

 

The HD community will come together on May 02, 2020 @ 10 a.m. (PST) with photos and videos and stories of the community walking TOGETHER to support HDSA’s mission to improving the lives of everyone affected by Huntington’s disease.

To JOIN the Walk is FREE!  Signup at: https://sanfrancisco.hdsa.org/…/2020-san-francisco-team-hop… OR https://pacificreg.hdsa.org/ab…/2020-san-jose-team-hope-walk

Share photos, videos & stories to social media using #VirtualTeamHopeWalk

#LetsTalkAboutHD #MayisHDAwarenessMonth  #WeCanNeverLoseHOPE

HDSA Fundraising events

Patrick Mahomes Jersey Auctioned Off by HDSA

Huntington’s Disease Social of America is auctioning off a Kansas City Chief, Patrick Mahomes, Jersey to kickoff HD Awareness Month.

For information on Huntington’s disease visit:    http://hdsa.org

This jersey is authenticated to be #19 of only 100 created and signed. It represents he history-making game in which Mahomes threw for over 300 yards.

Make your bid here.  lMakeYourBidHere
Ends Sunday, May 2nd.
 
For more information, contact Rosalie Hamilton[email protected]
#LetsTalkAboutHD #WeCanNeverLoseHope
HDSA Fundraising events

May 2nd-VIRTUAL Team Hope Walk

A VIRTUAL walk is a real walk, but on your terms: You get to choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill!

Sign up now and participate in the virtual walk by raising money and awareness. Your family, friends,colleagues and health care providers can join your Virtual Team Hope Walk on MAY 2nd, 2020, 10 AM (PST).  

 

*Join the HDSA Family on May 2nd as we kick off  Huntington’s Disease Awareness Month with the LARGEST TEAM HOPE EVENT EVER!

 

*Register today for the Virtual Team Hope Walk at pacificreg.hdsa.org

       

      JOIN AS A VIRTUAL WALKER FOR FREE! 

 

We Can Never Lose HOPE…….

HDSA Fundraising events

Lagunitas Brewing Company Hosts a Fundraiser for Huntington’s Disease

A Heart 4 Huntington’s Beer Event at Lagunitas Brewing Company in Petaluma is the first fundraiser for the NEW HDSA San Francisco Bay Area Affiliate.  Purchase Tickets here
 
Mark your calendars for Monday, February 3rd from 5:30-8:30 p.m.  Bring your friends and family for a night to listen to live music and dance, have a beer(s), wind down from your Monday and help in the fight against Huntington’s disease (HD).  Food truck on site .  What is Huntington’s disease?  
Lagunitas Brewing Company is very generous and offers their venue free on Monday & Tuesday evenings to local nonprofits and they also supply the beer free.  https://lagunitas.com/taproom/petaluma
Also, a popular local Sonoma County band, with a large following, Poyntlyss Sistars Rockin’ Show 
Band are donating their time.   http://www.psband.net/
To purchase tickets, visit:   https://app.donorview.com/ljwEp