HDSA Northern California Chapter Convention/Education Day
I wrote and published the book, Watching Their Dance, for several reasons and the first reason was to heighten Awareness of Huntington’s Disease.
The book is a tool for others to use to create/heighten Huntington’s disease awareness. The story reads like a novel and appeals to a large audience, especially readers who enjoy a love story with a difficult challenge. (It’s John and my love story while living in the shadow of HD).
To successfully fundraise for a rare, fatal, hereditary brain disorder, with no cure, like Huntington’s disease, creating awareness is vital. How can someone be persuaded to give, if they know nothing about the cause (disease)?
So, I ask the many HD community folks who purchased the book, many thanks, to pass it on to someone who knows little about the disease. What is Huntington’s disease?
I found this interesting article on 15 Way to Skyrocket Awareness for a Cause, and I’m going to implement a couple of the suggestions into my outreach plan. https://www.youcaring.com/blog/2017/how-to-raise-awareness-for-a-cause
1. Organize educational events
2. Host fundraising events
3. Set a world record
4. Be picture perfect
5. Host a video contest
6. Like and comment to win
Branding Your Cause
7. Be consistent
8. Design and distribute swag
9. Boost social media awareness
10. Produce content others find valuable
11. Make informational pamphlets
12. Write a press release
13. Make a viral challenge video
14. Challenge your coworkers
15. Take on a challenge
May is Huntington’s Disease Awareness Month
Therese will be selling her memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, at HDSA Annual Convention, June 7-9. The book is available on her author website https://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format. 100% of the profit from the book is donated to HDSA.
Photo by symphony of love on Foter.com / CC BY-SA