Whenever I discover an article, a famous person, resources, a study about Huntington’s disease (HD) I like to blog about it. What is HD?
An interesting article from the Food & Drug Administration (FDA) on Huntington’s disease:
On September 22, 2015, FDA held a public meeting to hear perspectives from people living with Huntington’s Disease (HD) about disease symptoms, the impact of HD on their daily life, and their experiences with currently available therapies. As part of this commitment, FDA is holding at least 20 public meetings over a five-year period, each focused on a specific disease area. To read the complete report: https://www.fda.gov/downloads/drugs/newsevents/ucm491808.pdf
What I found most interesting is the section, “Overall Impact of Huntington’s Disease on Daily Life”.
Therese with the famous Dr. Nancy Wexler at the 2018 HDSA National Convention in Los Angeles. Therese’s author website is http://www.theresecrutchermarin.com
100% of the profit from Watching Their Dance is being donated to the nonprofit, HDSA. Since publishing the book, Therese and John have gifted over $14,100.00 to them.