On January 16, 2016, after a six (6) week wait for the results of John’s genetic test for Huntington’s disease, John and I sat anxiously in a patient room at HDSA UC Davis Center of Excellence holding hands. We held our breath as Dr. Wheelock gave us the answer we had hoped for.
John was negative!!!!! It was the happiest day of our lives!
At that time, it was only the second time I ever saw John cry. I was so happy it was tears of joy and not sorrow.
To tell you the truth, hearing his CAG count was surreal, almost dreamlike. After committing to a relationship in 1979 with John, marrying him in 1980 knowing he was at risk for Huntington’s disease, and living 39 years at risk, the tension I felt in my chest subsided.
John’s negative test freed Keith and Vanessa, from having to live a life at risk like their father.
We Can Never Lose HOPE…
May is Huntington’s Disease Awareness Month. #LetsTalkAboutHD
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