If you live in the San Francisco Bay Area, come to Lagunitas Brewing Company in Petaluma on February 3rd and help in the fight against Huntington’s disease. Lagunitas Brewing Company Address: 1280 N. McDowell Blvd. https://lagunitas.com/taproom/petaluma
A $20 entry fee, that includes a beverage, will get you in and you can wind down from your Monday while listening and/or dancing to the popular Sonoma County band, Poyntlyss Sistars Rockin’ Show Band.
Every year, Huntington’s Disease Society of America forms a team to run in the NYC Marathon as a fundraising event. The event is usually around the first of November. The pictures above are from the November 6, 2019 Marathon.
Our daughter, Vanessa, and daughter-in-law, Fran, ran in the 2016 NYC Marathon. Our family traveled to NYC to cheer them on. It was an incredible experience, so festive, fun and positive. Vanessa and Fran were ecstatic because they cut 10 minutes off their marathon time. Thousands of people cheered them on through the boroughs of New York.
On Saturday, June 22nd, at the Campbell Park in the San Jose area, the 1st Huntington’s Walk/Run was held on the beautiful Los Gatos Creek Trail. The event raised approximately $13,000.00.
The 10K Runners took off at 9 a.m. and the 5K Walkers at 9:15 a.m.
The results from the 10K Run.
This will be an Annual Event every June. Once we have secured the 2020 date with the City of Campbell we will begin publicizing it!
The San Jose Team Hope committee thanks all the sponsors and all the folks for coming out and helping in the fight against Huntington’s disease (HD). HD is a rare, fatal, genetic brain disorder that has the symptoms of ALS, Alzheimers, and Parkinson’s at the same time. And there is NO CURE.http://www.hdsa.org
Where: Campbell Park, E. Campbell Avenue & Gillman Avenue, Campbell CA.
Time: Check-in: 8 am
Race Time: Runners-9am & Walkers 9:15 am
Cost: Runners-$60 Walkers-$25 Children under 12-$10
Why: You will be helping in the fight against Huntington’s disease that has NO CURE. This is a fundraiser for the nonprofit, Huntington’s Disease Society of America, whose mission is to help everyone affected by Huntington’s disease (HD) and their family. what is HD?
Contact: Therese Crutcher-Marin 530 906-8415
After Event at Rock Bottom Restaurant and Brewery. Rock Bottom will donate 10% of all Sales that day to HDSA. Come and have lunch!! Tell your server you are there for Huntington’s disease. https://rockbottom.com/locations/san-jose/
Trey Gray, a famous drummer, and his friends held a special evening at the Vegetable Buddies establishment in South Bend Indiana http://buddiesdtsb.com/ last October. The band hosted a concert, and because of his notoriety, Trey raised $50,000.00. These dollars are being donated to the nonprofit Trey started in 2015, the Huntington’s Disease Foundation.
The Huntington’s Disease Foundation was founded in 2015 by co-founders Trey Gray, Doug Michael and Anett Pappas. The Foundation is recognized and registered in Texas as a 501 (c) (3) non-profit charity. The Huntingtons Disease Foundation
To watch the television news report regarding Trey’s concert, please click on link below:
“A typical day for Natalya Gonzalez involves far more responsibilities and challenges than those of an average sixth-grader. The Yolo Middle School student balances schoolwork with family responsibilities as she pitches in at home to help her mother care for her father and an older sister, who both suffer from Huntington’s Disease, a debilitating genetic disorder.” Full article: Yolo Student Thrives Despite Challenges
The Huntington’s Disease Society of America Northern California Chapter is organizing a Sacramento TeamHOPE Walk to help families, like the Gonzalez’s. Come out and walk on Saturday, Sept. 8th, at the River Walk Park in West Sacramento. To sign up or donate to the event, go to http://www.hdsa.org/THWSacramento
We are getting close to the Sacramento Team Hope Walk. Create your own Team and help the Northern California Chapter fundraise to continue supporting the four (4) Center of Excellences in Northern California, and the seven (7) Huntington’s Disease Support Group Facilitators.
If you are interested in volunteering for the Huntington’s Disease Society of America Northern California Chapter, there are many opportunities where you can help. http://northernca.hdsa.org/
Here are a few ways you can contribute to improving the lives of individuals and families affected by Huntington’s disease (HD):
* Participate in the planning and execution of Chapter events: Annual Team Hope Walk, annual Chapter Convention, and Kaiser Permanente Education Days * Provide transportation to HD families * Provide light housekeeping/childcare for HD families *Participate in clinical trials and observational studies * Make phone calls to donors to thank them for their contribution * Serve on the HDSA Northern California Chapter Board of Directors *Post on NorCal Chapter social media platforms: Facebook, Twitter, Instagram *Assist with marketing/publicity/outreach
John and I are so excited to share the good news. The nonfiction book I published in April, 2017, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, has generated a profit of $9,015.00 that we donated to Huntington’s Disease Society of America to help in the fight against the cruelest disease on the planet; Huntington’s disease.