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Fundraising

Fundraising, HD Advocates

Trey Gray-Drumming Up Huntington’s Disease Awareness

Trey Gray, a famous drummer, and his friends held a special evening at the Vegetable Buddies establishment in South Bend Indiana http://buddiesdtsb.com/ last October.  The band hosted a concert, and because of his notoriety, Trey raised $50,000.00. These dollars are  being donated to the nonprofit Trey started in 2015, the Huntington’s Disease Foundation.

The Huntington’s Disease Foundation was founded in 2015 by co-founders Trey Gray, Doug Michael and Anett Pappas. The Foundation is recognized and registered in Texas as a 501 (c) (3) non-profit charity.   The Huntingtons Disease Foundation

To watch the television news report regarding Trey’s concert, please click on link below:

https://www.abc57.com/news/professional-drummer-from-south-bend-raises-money-for-huntingtons-disease

We Can Never Lose HOPE….

Trey wrote a book jacket comment that appears on the back cover of Watching Their Dance.  100% of the profits are being donated to the nonprofit, Huntington’s Disease Society of America, HDSA.  

The book is available on Therese’s author website http://www.theresecrutchermarin.com & many book websites like Amazon

Family, Fundraising

HDSA Sacramento Team HOPE Walk

A heartwarming story about Natalya Gonzalez, whose family struggles with Huntington’s disease. The family lives in the County of Yolo, a county located in the northern portion of the U.S. state of California.  http://hdsa.org/living-with-hd/juvenile-onset-hd/   http://hdsa.org/what-is-hd/

“A typical day for Natalya Gonzalez involves far more responsibilities and challenges than those of an average sixth-grader. The Yolo Middle School student balances schoolwork with family responsibilities as she pitches in at home to help her mother care for her father and an older sister, who both suffer from Huntington’s Disease, a debilitating genetic disorder.” Full article:  Yolo Student Thrives Despite Challenges

The Huntington’s Disease Society of America Northern California Chapter is organizing a Sacramento Team HOPE Walk to help families, like the Gonzalez’s.  Come out and walk on Saturday, Sept. 8th, at the River Walk Park in West Sacramento.  To sign up or donate to the event, go to http://www.hdsa.org/THWSacramento 

FB page https://www.facebook.com/hdsanocal/

 

We Can Never Lose HOPE….

Fundraising

Sacramento Team HOPE Walk-Sept. 8

We are getting close to the Sacramento Team Hope Walk.  Create your own Team and help the Northern California Chapter fundraise to continue supporting the four (4) Center of Excellences in Northern California, and the seven (7) Huntington’s Disease Support Group Facilitators.

Sign up here to participate:  http://www.hdsa.org/thwsacramento

CENTERS OF EXCELLENCE:

UC Davis Medical Center-Sacramento https://www.ucdmc.ucdavis.edu/huntingtons/team.html,

Kaiser-Sacramento/Bay
Area  https://mydoctor.kaiserpermanente.org/ncal/specialty/genetics/specialty_clinics/huntington_disease.jsp

UCSF Medical Center https://www.ucsfhealth.org/clinics/huntingtons_disease/

Stanford  Health Care-Bay Area https://stanfordhealthcare.org/medical-conditions/brain-and-nerves/huntingtons-disease.html

We Can Never Lose HOPE……………

Sponsor of Hope Walk

Fundraising, Helping Others

Volunteer at the Nonprofit, HDSA Northern California Chapter

If you are interested in volunteering for the Huntington’s Disease Society of America Northern California Chapter, there are many opportunities where you can help. http://northernca.hdsa.org/

Here are a few ways you can contribute to improving the lives of  individuals and families affected by Huntington’s disease (HD):

* Participate in the planning and execution of Chapter events: Annual Team Hope Walk, annual Chapter Convention, and Kaiser Permanente Education Days
* Provide transportation to HD families
* Provide light housekeeping/childcare for HD families                                                                          *Participate in clinical trials and observational studies
* Make phone calls to donors to thank them for their contribution
* Serve on the HDSA Northern California Chapter Board of Directors                                                                      *Post on NorCal Chapter social media platforms: Facebook, Twitter, Instagram                                                    *Assist with marketing/publicity/outreach    

http://hdsa.org/volunteer-opportunities/  

                               

We Can Never Lose HOPE…………….

Author Therese Crutcher-Marin

Therese has been a member of the HDSA Northern California Chapter Board of Directors since January 2017.  She will be president of the Chapter in 2020.

Fundraising

Heartfelt Donation to Fight Huntington’s Disease

John and I are so excited to share the good news. The nonfiction book I published in April, 2017, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, has generated a profit of $9,015.00 that we donated to Huntington’s Disease Society of America    to help in the fight against the cruelest disease on the planet; Huntington’s disease.

This is a video John and made in celebration!   https://youtu.be/6vQQefLcqi8     

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com    & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

 Subscribe to Therese’s Blog via Email

 Enter your email address to subscribe to Therese’s blog and receive notifications of new posts by email and receive the first chapter of her book, Watching Their Dance, via email.

 

 

Fundraising

2017 HDSA NYC Team Marathon

I’m going to digress just a bit and reminisce about the 2016 NYC Marathon.  Vanessa and Fran were on the Huntington’s Disease Society of America (HDSA) Team last year and we were their biggest fans, rooting them on.

Keith, Fran, John and I flew to NY together on Thursday and Vanessa, Scott, Jim, Dawn, Scott’s parents arrived Friday.  HDSA staff threw a Kickoff party for all the participants and it was a lot of fun. I’m in the picture with Chris Cosentino, Director of Communications and Marketing at the party. He’s my contact at HDSA National for promoting my book, Watching Their Dance.

The marathon was held on Sunday, November 4, 2016 with 50,000 runners having to take a ferry to get to the starting line.  The day was perfect, weather a mild 73 degrees, a temperature runners love. The girls told us when they were done, that there was constant cheering on the whole route.  Because of the enthusiasm of the crowd, they were pumped up, cutting 10 minutes off their last marathon time. Keith, our mountain biker still at age 33, rented a bike and followed them.  http://www.tcsnycmarathon.org/  

This year, the marathon will be run on November 5th, and there are 24 athletes on the HDSA team. Here is the link see who is on the team this year.  http://hdsa.org/how-to-help/nyc-marathon-team/   

The 2017 HDSA Team, the marathon is Nov. 5, has raised over $132,700.00 surpassing their goal of $100,000.00. This is an awesome fundraiser and HDSA is not the only charity that participates.  There are more than 350 Official Charity Partners of the 2017 TCS New York City Marathon.

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle,Kobo, Nook, iBooks format.

In the U.S.,100% of the proceeds from the book is being donated to HDSA.

We can never lose HOPE…………Therese

 

 

Fundraising

Huntington’s Disease Fundraisers

Huntington’s Disease Society of America (HDSA) fundraisers are going on all across the United States.  Find one near you and support a great cause and help to eradicate the cruelest disease on the planet, Huntington’s disease.

                                                                   SEPTEMBER 16, 2017

Care2Cure HD benefit car show, Great Plains Coliseum Expo Building – Lawton, OK

Knoxville, TN Team Hope Walk, Volunteer Landing Park – Knoxville, TN

New Hampshire Team Hope Walk, UNH Whittemore Center – Durham, NH

Tewksbury, MA Team Hope Walk, Tewksbury Hospital – Saunders Building – Tewksbury, MA

Toledo, OH Team Hope Walk, Walbridge Park – Toledo, OH

Joplin, MO Team Hope Walk, Landreth Park – Joplin, MO

Springfield, MO Team Hope Walk, JR Martin Park – Republic, MO

2017 Nashville Family HD Education Day, 2200 Children’s Way, Second Floor – Nashville, TN

Orange County, CA Team Hope Walk, William Mason Regional Park – Irvine, CA

New York City Team Hope Walk, Hudson River Park – Pier 45 – New York, NY

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.  http://www.hdsa.org         https://help4hd.org/    https://www.wehaveaface.org/

We can never lose HOPE……………….Therese

Watching the Dance Huntingtons DiseaseTherese is donating 100% of the proceeds from her nonfiction/memoir book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, to HDSA and Huntington’s disease organizations around the world.

You can find the book on:

Therese’s author website  http://www.theresecrutchermarin.com 

Amazon&Kindle  https://www.amazon.com/dp/B072B9KY7L/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1 

B&N  https://www.barnesandnoble.com/w/watching-their-dance-therese-marie-crutcher-marin/1126082854 

Kobo  https://www.kobo.com/us/en/ebook/watching-their-dance

Nook  https://www.barnesandnoble.com/w/watching-their-dance-therese-marie-crutcher-marin/1126082854?ean=9780998442204

iBooks- on iTunes book library

Fundraising

Therese’s Midwest Book Tour-Part 1

A little over two (2) years ago, Chris Consentino, HDSA Marketing and Communications Director in the corporate office in NY, reached out to me because he had heard I was writing a book and it would have a fundraising component to it that involved HDSA.  Well, needless to say, I was thrilled and over discussing the project he offered to partner in the promotion of the book.  So, began our business relationship.  http://www.hdsa.org 

Last April, I finally held a book in my hand. Publishing Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s was a dream come true. My fundraising/HD Awareness Project was now ready to be presented to the world.

The second dream I had was taking a book tour to heighten awareness of Huntington’s disease and promote the book. John and I love traveling the highways and back roads, avoiding freeways, taking the time to enjoy the landscape, animals, agriculture in different states, so we traded in our fifth wheel and truck and purchased a 30 ft. motorhome. As John and I began to plan the tour, my job was to plot HDSA events we could attend after the National Convention and John was in charge of mapping out our route. Since we’ve never visited the Midwest, we saw it as an adventure.

The HDSA National Convention was held in Schaumburg, Illinois in June, 2017 and I represented the Northern California Chapter, and also a vendor for the promotion of my book. HDSA was generous and gave me a window on the second day of the convention for four (4) hours to sell the book. In that amount of time, I sold 63!  I also attended the Leadership Day and met the new Pacific Southwest Regional Development Director, Anita Dominguez, and Regional Development Manager Nanette Schlarmann. I can’t say enough about the positive experience I had at the convention.   http://northernca.hdsa.org/ 

            

Therese’s Book Tour will be continued on the next few blogs!

We can never lose HOPE……………….Therese

Therese is donating 100% of the proceeds from her book to HDSA.  When the book is purchased in another country, she will donate the proceeds to a Huntington’s disease organization in that country. Therese’s memoir/nonfiction book is on her author website  http://www.theresecrutchermarin.com and on Amazon, B&N, & other book website & as a Kindle, Kobo, Nook, iBooks file.

                     

 

 

 

 

 

 

Photo credit: HowardLake via Foter.com / CC BY-SA

Fundraising

HDSA Fundraising Events in U.S.

    

 

ALBANY, NY TEAM HOPE WALK, 5K & 10K-August 26 at 9 a.m.  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1226 

 –ADRIAN, MI TEAM HOPE WALK-August 26 at 10 a.m.   https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1222 

12th ANNUAL LOS ANGELES TEAM HOPE WALK-August 26 at 9 a.m.  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1167

OMAHA, NE TEAM HOPE WALK-August 27 at 8 a.m. —-JOHN AND I WILL BE AT THIS HOPE WALK ON SUNDAY!!!!!    https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1098 

We can never lose HOPE…….Therese      Watching the Dance Huntingtons Disease

Therese is donating 100% of the proceeds from the memoir/nonfiction book to HDSA in the U.S. and to a Huntington’s disease organization in the country where the book is purchased.   http://www.theresecrutchermarin.com 

About Author, Fundraising

3rd Leg of Therese’s Book Tour

John and I are entering the last month of my book tour.  The time on the road, two months, has gone so fast; I don’t want it to end! Here’s what we have planned.

August 1-Akron Ohio. Attend a local HDSA Support Group to share the purpose of my book. A HDSA social worker facilities a support group for folks with HD and those living at risk.

August 5-Dayton Ohio. Participate in HDSA Team HOPE Walk and promote my book Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1221  

August 8-Sterling City Michigan.  Attend the HDSA Support Group meeting and share my book with attendees.    

August 12-Traverse City Michigan. Attend HDSA Team HOPE Walk and ask folks to use Watching Their Dance as a tool to heighten HD awareness.  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1151 

August 19-Madison Wisconsin. HDSA Team Hope Walk to promote Watching Their Dance.      https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1152

August 27-Omaha Nebraska.   HDSA Team HOPE Walk.   https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1098

 

 

Enjoy our trip back home.   WooWoo!!!!!!

To purchase Therese’s book, please visit her Author Website:  http://www.theresecrutchermarin.com  100% of the proceeds from the book is being donated to Huntington’s disease organizations around the world.

We can never lose HOPE…………………Therese