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Fundraising

“A Heart 4 Huntington’s” Beer Fundraiser

If you live in the San Francisco Bay Area, come to Lagunitas Brewing Company in Petaluma on February 3rd and help in the fight against Huntington’s disease.  Lagunitas Brewing Company Address:  1280 N. McDowell Blvd.  https://lagunitas.com/taproom/petaluma

A $20 entry fee, that includes a beverage, will get you in and you can wind down from your Monday while listening and/or dancing to the popular Sonoma County band, Poyntlyss Sistars Rockin’ Show Band

To purchase tickets, visit:  https://pacificreg.hdsa.org/heartforhd

A food truck will be on site.  For $20, you can get an all you can eat taco dinner.

This is a fundraiser for the nonprofit, Huntington’s Disease Society of America.

Fundraising

HDSA’s NYC Marathon Team Raises More than $133,000

Every year, Huntington’s Disease Society of America forms a team to run in the NYC Marathon as a fundraising event. The event is usually around the first of November.  The pictures above are from the November 6, 2019 Marathon. 

Our daughter, Vanessa, and daughter-in-law, Fran, ran in the 2016 NYC Marathon.  Our family traveled to NYC to cheer them on.  It was an incredible experience, so festive, fun and positive.  Vanessa and Fran were ecstatic because they cut 10 minutes off their marathon time.  Thousands of people cheered them on through the boroughs of New York.

It’s a great fundraiser for HDSA and creates awareness at the same time.  To read more about the HDSA Team, visit:  https://hdsa.org/news/hdsas-new-york-city-marathon-team-raises-more-than-133000-to-support-the-fight-against-hd/

   

The pictures above are of Vanessa and Fran running in the 2016 NYC Marathon for Huntington’s disease.

We Can Never Lose HOPE……

Fundraising

Halloween & Hounds 4 Huntington’s Event

                     

                                             It’s Halloween Time!

This Saturday, October 26th, bring the family and your pooch dressed up in Halloween Costumes and participate in the

   Hounds 4 Huntington’s Dog Costume Walk 

Where:  Shollenberger Park in Petaluma. See link for directions cityofpetalumashollenberger

Time:  The Walk starts at 9 a.m. along the beautiful 2-mile loop that walks out by the Petaluma River.  (It is wheelchair accessible)

Why:  To help in the fight against Huntington’s disease; a rare, genetic brain disorder with NO CURE.

Dress your pooch(s) in costume and enter them in contests for best dog costume, biggest dog, smallest dog!

We have great raffle prizes for kids and wine prizes for adults.

Registration:  Walk Up Registration $25 for 1st dog & $10 for each additional dog.

Or register online:  https://app.donorview.com/QV7R

   

 

Fundraising

San Jose Huntington’s Disease 5K Walk & 10K Run Was A Success!

On Saturday, June 22nd, at the Campbell Park in the San Jose area, the 1st Huntington’s Walk/Run was held on the beautiful Los Gatos Creek Trail.  The event raised approximately $13,000.00.

The 10K Runners took off at 9 a.m. and the 5K Walkers at 9:15 a.m.

The results from the 10K Run.                              

                                                                             

This will be an Annual Event every June.  Once we have secured the 2020 date with the City of Campbell we will begin publicizing it!

The San Jose Team Hope committee thanks all the sponsors and all the folks for coming out and helping in the fight against Huntington’s disease (HD).  HD is a rare, fatal, genetic brain disorder that has the symptoms of ALS, Alzheimers, and Parkinson’s at the same time.  And there is NO CURE.http://www.hdsa.org

If you were unable to attend, you can still donate to the event at:  http://www.hdsa.org/thwsanjose

We Can Never Lose HOPE……….

Author Therese Crutcher-Marin

 

 

 

Fundraising

Attention All Runners in the San Francisco Bay Area!

The 1st Team Hope 5K Walk & 10K Timed Run is this Saturday, June 22nd.

           It’s not too late.  You can walk up and register

                                     the morning of the event!

 

Register:  http://www.hdsa.org/thwsanjose

Where:  Campbell Park, E. Campbell Avenue & Gillman Avenue, Campbell CA.

Time:  Check-in: 8 am

Race Time:  Runners-9am & Walkers 9:15 am

Cost:  Runners-$60      Walkers-$25       Children under 12-$10

Why:  You will be helping in the fight against Huntington’s disease that has NO CURE. This is a fundraiser for the nonprofit, Huntington’s Disease Society of America, whose mission is to help everyone affected by Huntington’s disease (HD) and their family. what is HD?

Contact:  Therese Crutcher-Marin 530 906-8415

After Event at Rock Bottom Restaurant and Brewery.  Rock Bottom will donate 10% of all Sales that day to HDSA.  Come and have lunch!!  Tell your server you are there for Huntington’s disease.   https://rockbottom.com/locations/san-jose/

     

We Can Never Lose HOPE……………….

 

Fundraising, HD Advocates

Trey Gray-Drumming Up Huntington’s Disease Awareness

Trey Gray, a famous drummer, and his friends held a special evening at the Vegetable Buddies establishment in South Bend Indiana http://buddiesdtsb.com/ last October.  The band hosted a concert, and because of his notoriety, Trey raised $50,000.00. These dollars are  being donated to the nonprofit Trey started in 2015, the Huntington’s Disease Foundation.

The Huntington’s Disease Foundation was founded in 2015 by co-founders Trey Gray, Doug Michael and Anett Pappas. The Foundation is recognized and registered in Texas as a 501 (c) (3) non-profit charity.   The Huntingtons Disease Foundation

To watch the television news report regarding Trey’s concert, please click on link below:

https://www.abc57.com/news/professional-drummer-from-south-bend-raises-money-for-huntingtons-disease

We Can Never Lose HOPE….

Trey wrote a book jacket comment that appears on the back cover of Watching Their Dance.  100% of the profits are being donated to the nonprofit, Huntington’s Disease Society of America, HDSA.  

The book is available on Therese’s author website https://www.theresecrutchermarin.com & many book websites like Amazon

Family, Fundraising

HDSA Sacramento Team HOPE Walk

A heartwarming story about Natalya Gonzalez, whose family struggles with Huntington’s disease. The family lives in the County of Yolo, a county located in the northern portion of the U.S. state of California.  http://hdsa.org/living-with-hd/juvenile-onset-hd/   http://hdsa.org/what-is-hd/

“A typical day for Natalya Gonzalez involves far more responsibilities and challenges than those of an average sixth-grader. The Yolo Middle School student balances schoolwork with family responsibilities as she pitches in at home to help her mother care for her father and an older sister, who both suffer from Huntington’s Disease, a debilitating genetic disorder.” Full article:  Yolo Student Thrives Despite Challenges

The Huntington’s Disease Society of America Northern California Chapter is organizing a Sacramento Team HOPE Walk to help families, like the Gonzalez’s.  Come out and walk on Saturday, Sept. 8th, at the River Walk Park in West Sacramento.  To sign up or donate to the event, go to http://www.hdsa.org/THWSacramento 

FB page https://www.facebook.com/hdsanocal/

 

We Can Never Lose HOPE….

Fundraising

Sacramento Team HOPE Walk-Sept. 8

We are getting close to the Sacramento Team Hope Walk.  Create your own Team and help the Northern California Chapter fundraise to continue supporting the four (4) Center of Excellences in Northern California, and the seven (7) Huntington’s Disease Support Group Facilitators.

Sign up here to participate:  http://www.hdsa.org/thwsacramento

CENTERS OF EXCELLENCE:

UC Davis Medical Center-Sacramento https://www.ucdmc.ucdavis.edu/huntingtons/team.html,

Kaiser-Sacramento/Bay
Area  https://mydoctor.kaiserpermanente.org/ncal/specialty/genetics/specialty_clinics/huntington_disease.jsp

UCSF Medical Center https://www.ucsfhealth.org/clinics/huntingtons_disease/

Stanford  Health Care-Bay Area https://stanfordhealthcare.org/medical-conditions/brain-and-nerves/huntingtons-disease.html

We Can Never Lose HOPE……………

Sponsor of Hope Walk

Fundraising, Helping Others

Volunteer at the Nonprofit, HDSA Northern California Chapter

If you are interested in volunteering for the Huntington’s Disease Society of America Northern California Chapter, there are many opportunities where you can help. http://northernca.hdsa.org/

Here are a few ways you can contribute to improving the lives of  individuals and families affected by Huntington’s disease (HD):

* Participate in the planning and execution of Chapter events: Annual Team Hope Walk, annual Chapter Convention, and Kaiser Permanente Education Days
* Provide transportation to HD families
* Provide light housekeeping/childcare for HD families                                                                          *Participate in clinical trials and observational studies
* Make phone calls to donors to thank them for their contribution
* Serve on the HDSA Northern California Chapter Board of Directors                                                                      *Post on NorCal Chapter social media platforms: Facebook, Twitter, Instagram                                                    *Assist with marketing/publicity/outreach    

http://hdsa.org/volunteer-opportunities/  

                               

We Can Never Lose HOPE…………….

Author Therese Crutcher-Marin

Therese has been a member of the HDSA Northern California Chapter Board of Directors since January 2017.  She will be president of the Chapter in 2020.

Fundraising

Heartfelt Donation to Fight Huntington’s Disease

John and I are so excited to share the good news. The nonfiction book I published in April, 2017, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, has generated a profit of $9,015.00 that we donated to Huntington’s Disease Society of America    to help in the fight against the cruelest disease on the planet; Huntington’s disease.

This is a video John and made in celebration!   https://youtu.be/6vQQefLcqi8     

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  https://www.theresecrutchermarin.com    & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

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