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A Love Story

A Love Story

Make “Watching Their Dance” Memoir into a MOVIE

My book, Watching Their Dance, a love story while living in the shadow of Huntington’s Disease,  is in a strong 2nd place in a contest on TaleFlick.com that allows the public to vote on which stories they want to see adapted to the screen.
 
Please VOTE Click here to vote!!
A movie would give Huntington’s disease (HD)  so much exposure.  HD is a rare, fatal, genetic brain disease that has all the symptoms of ALS, Parkinson’s and Alzheimers at the same time.  There is adult HD and Juvenile HD and there is NO CURE.  For more info on HD, visit http://hdsa.org
TaleFlick.com is holding a contest that allows the public to vote on which stories they want to see adapted to the screen.
A Love Story

To The One I Love John Anthony Marin

John & our children & their spouses

Valentine’s Day is upon us and I have had 44 years to celebrate this day with him.  I’m thankful for John Anthony Marin, the love of my life, my husband, lover, father of my children, confidant, touchstone and the kindest, most honest man I’ve ever known.

In 1979, I decided to marry John, even with his unknown gene status, because I couldn’t fathom life without him.   I embraced the uncertainty which enriched my life and fortified my marriage.

Each year, Valentine’s Day validated the love John and I shared.  I secretly rejoiced in enjoying another year with John with no Huntington’s disease symptoms.  Read about our love story:  https://theresecrutchermarin.com/my-story/

This day also reminded me to stay vigilant, living mindfully, not sweating the small stuff, never taking John for granted and the wonderful life we had together.

I have never regretted marrying John, even with the heartache we have experienced with the loss of his three (3) sisters to Huntington’s disease. We are blessed that John tested negative in 2016 for the Huntington’s disease mutated gene.

Take a look of the history of Valentine’s Day and enjoy the day with the one you love.  https://www.history.com/topics/valentines-day/history-of-valentines-day-2

           

 

 

A Love Story

VOTE on TaleFlick.com for “Watching Their Dance” to be Made into a MOVIE

Watching Their Dance, a love story, was submitted to TaleFlick, a website I subscribe to where my book can be seen by movie producers in Hollywood. 

My book has been submitted, with many other books, in a contest and the public can vote on which story they would like to see made into a movie.

TO VOTE: Please visit http://TaleFlick.com.  Click on TaleFlick Discovery and scroll down and you’ll see my book.

If chosen, we could make millions for Huntington’s disease research.

As of this morning, Watching Their Dance is in #4 position.

This is the first round of voting so please share share and share so your family and friends can vote.

Thank you

A Love Story, The Marin Siblings

That’s How Love Moves

That’s how love works………That’s how love moves……..

Like a river running through you………lyrics from That’s How Love Moves by Faith Hill.

Once John wrapped his arms around me, I was never the same.  He saw something in me that I never knew I had…………………. courage.  Courage to love despite the enormous challenge that lay ahead in the years to come.

The challenge?  Huntington’s disease (HD); the cruelest disease on the planet.  A rare, fatal, genetic brain disorder that has all the symptoms of ALS, Alzheimers, and Parkinson’s at the same time and their is NO CURE.  John and his three (3) sisters were at risk, a 50/50 chance, for inheriting the horrific disease that destroyed their mother.  What is Huntington’s disease?

Lora, Cindy and Marcia Marin

The unconditional love I had for the Marin siblings and the love John had for me, saved me; saved me in every way possible.  Love kept me grounded, even during the worst of times when I was desperate to escape from the 24-year nightmare; watching his three sisters battle HD.

We Can Never Lose HOPE……..

100% of the proceeds from the nonfiction book, Watching Their Dance, is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA) to help in the fight against Huntington’s disease.

Therese’s Author Website: https://www.theresecrutchermarin.com

 

 

 

 

A Love Story, Therese-Author

What If?

In 2016, after John tested negative for the mutated huntingtin gene that causes the cruelest disease on the planet, Huntington’s disease (HD), I thought a lot about “WHAT IF“.

In 1978, when the four Marin siblings discovered they had a 50/50 chance of inheriting HD, I was so scared I broke off the relationship with John. Luckily, I was lead back to John by an epiphany.  What is Huntington’s disease 

“What If” I hadn’t found my way back to John?  I would have lost so much and paid a heavy price. Guilt would have been tattooed on my heart forever for walking away from my soulmate, my true love, a man who had never hurt me.  I would have felt ashamed for not being strong and I would never have known three wonderful women, my sisters-in-law, Lora, Marcia and Cindy.  Also, I would have missed out on knowing the two most important people in my world today; our children Keith and Vanessa.

My advice is to LISTEN TO YOUR HEART……….

 

 

 

We Can Never Lose Hope………….

Watching Their Dance is John’s and my love story while living in the shadow of Huntington’s Disease. I share the tools I found in life to live happily, even with the losses we experienced, with this huge uncertainty looming over us.  The themes of my book are mindfulness, forgiveness, hope and love.

The book is online at Amazon, B&N, iBooks, and many other book websites. My author website: https://www.theresecrutchermarin.com

 

A Love Story

In This World of Uncertainty…………

John and our son, Keith.

In 1978, I was in love with a man, John Anthony Marin, who had an unknown gene status for Huntington’s disease (HD), the cruelest disease on the planet.  HD is a rare, fatal, genetic brain disorder that has all the symptoms of ALS, Parkinson’s and Alzheimers at the same time, strikes at prime working years, and is a long progressive disease; 10-20 years. http://www.hdsa.org

After deciding to marry John, and knowing the possible consequences of my decision, I found the perfect wedding invitation in 1980.

In this world of uncertainty and confusion, we two have found one another, different yet alike. We have grown together in love and understanding.  Please join us in celebrating a day of genuine happiness on Saturday, September 25, 1980 at 7 in the evening.

I couldn’t have said it any better, and quite frankly, other than family, no one understood the underlying message.  The key being “UNCERTAINTY”.  theresecrutchermarin My-Story

We Can Never Lose HOPE……….

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Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  https://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format. 

100% of the proceeds from Therese’s book is being donated to the nonprofit, Huntington’s Disease Society of America (HDSA).  As of December 31, 2018, John and Therese have donated $14,115.00 to HDSA.  The book was published in April 2017.

 

A Love Story

Choices-A Fork in the Road

Choice, Chance and Change: The Three C’s of Lifehttps://www.habitsforwellbeing.com/the-3-cs-of-life-choices-chances-changes/  

Woody Guthrie Festival 7-2017

 

When I was 22 years old, I had to make the most difficult decision (choice) of my life. I was in love with a man I planned to marry after I graduated from California State University, Sacramento. I was at a fork in the road; marry John and live with the uncertainty of Huntington’s disease (HD) or walk away from the love of my life. HD is a rare, fatal brain disorder that is like having ALS, Alzheimers, and Parkinson’s at the same time. There is no cure. The famous folk singer, Woody Guthrie, had HD. info on HD

FORK IN THE ROAD is a metaphor, based on a literal expression, for a deciding moment in life or history when a major choice of options is required. https://www.success.com/13-quotes-about-making-life-choices/

Many of us have hard choices in our lives; I’ve never met anyone who hasn’t, as it is part of life. Some choices may be more difficult than others; leaving the man I loved who never hurt me or making a choice to stay, was mine.

Fortunately, I had an epiphany which lead me back to my love, John Anthony Marin. 

To help in the fight against Huntington’s disease, that killed my three (3) sisters-in-law, at young ages, John and I are donating 100% of the proceeds from Watching Their Dance, a love story while living in the shadow of HD, to the nonprofit, Huntington’s Disease Society of America (HDSA).  To date, we have donated over $14,000.00.  amazon.com/Watching-Their-Dance-

A Love Story, Marketing

Memoir Appeals to a Broad Audience

When I began writing, Watching Their Dance, a nonfiction story, I wanted to appeal to a broad audience.  After educating myself and reading about marketing a book, I realized I needed to narrow my focus first on the audience that I was pretty sure the story would appeal to.  That audience was the Huntington’s disease community.  Once you have success with that audience, then you begin to branch out to another audience.  

Here’s the truth: When you write for everyone, you write for no one.   https://goinswriter.com/writing-tip-be-specific/ 

My biggest supporters, the HD community,  did and still do support me and now I’m branching out to other audiences who might enjoy my book.  The first audience I’m focusing on are readers who like love stories; the second audience are folks who like to read about a person/family overcoming a tremendous challenge in their life.

 Marika Jaegers, HOPES Project Co-Leader & Student Researcher, who reviewed the book, said this:  

“Watching Their Dance offers a wide range of insight into living at risk for Huntington’s, living with Huntington’s, and caring for someone with Huntington’s. It is a worthwhile read for a broad audience: those affected by Huntington’s Disease, those curious about the disease, or those who know nothing of the disease but wish to read a captivating and insightful memoir.”  Stanford Literature-Corner

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  https://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book sold in the U.S. will be donated to HDSA.  http://www.hdsa.org     Last December, Therese and John donated $9,015.00 to HDSA that was the profit from book sales since Therese published in April 2017.

We Can Never Lose HOPE………..

#LetsTalkAboutHD      #WeCanNeverLoseHOPE     

#HDSAFamily    #HDSTRONG

 

A Love Story

Writing Your Story to Heal

John and I have just returned home from the Huntington’s Disease Society of America (HDSA) Convention in Los Angeles, California where I promoted my book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  Author Website: https://www.theresecrutchermarin.com

The question I get asked most often when I interact with folks is, “Why did you decide to write a book?”  My reply is, “The motive was purely selfish because I was looking a way to heal from the loss of my three sisters-in-law to the cruelest disease on the planet; Huntington’s disease”.  Article:  The Healing Power of Telling Your Story 

In 2008, Cindy, my third sister-in-law passed away and in 2010, I began writing my story.  A counselor I’d seen for years suggested I write a book as a way to heal.  Seven years later, in 2017, I held a book in my hands and could honestly say, “the process of writing my story, validated what I had gone through, and allowed me to move the grief I harbored to the pages of the book; so, yes, I have healed”.  

Article on Benefits of Writing:   Writing About Emotions May Ease Stress and trauma  

We Can Never Lose Hope

A Love Story

Memoir Receives Excellent Book Review from Stanford University

           MAY IS HUNTINGTON’S DISEASE AWARENESS MONTH!

HOPES Book Review (Huntington’s Outreach Project for Education, at Stanford University)   HOPES website

    “Huntington’s was first known as Huntington’s chorea, as in choreography, the Greek word for dance. The term chorea describes how people affected with the disorder writhe, twist, and turn in a constant, uncontrollable dancelike motion. It is a hereditary, degenerative brain disorder for which there is no effective treatment or cure.”

     –Watching Their Dance, pp. 11

     In one life-altering moment, Therese Crutcher-Marin learned that the man she loved and his three beloved sisters were at risk for one of the most devastating genetic diseases: Huntington’s Disease. In Watching Their Dance, Crutcher-Marin recounts her journey of love, uncertainty, loss, and strength in the face of Huntington’s Disease. She tells a vivid and personal story of the experience of loving someone at risk for Huntington’s Disease, meticulously sharing the details of her fears, the symptoms of the disease itself, the care-partner experience, and the loss that inevitably comes with Huntington’s. Thrown into the wildly unsteady and frightening path of Huntington’s, Crutcher-Marin returns repeatedly to the mantra, “nothing is certain in life.”

     Crutcher-Marin weaves in details of her personal struggle with uncertainty, a daunting challenge for a woman averse to taking risks. She skillfully captures the awkwardness and difficulty in breaching the subject of Huntington’s with loved ones, and expresses a deeply personal account of her anxiety and suspicion as she worries that she can see the beginning of Huntington’s symptoms in her husband and friends. The book shows the diverse ways in which Huntington’s Disease can manifest itself in daily life to affect both patients and their care partners.

By Marika Jaeger 07 Jan, 2018 Nonfictional Literature

To read the full review on Stanford’s website please go to: “Watching Their Dance” by Therese Crutcher-Marin

HOPES FB Page   https://www.facebook.com/hopesstanford/ 

We Can Never Lose HOPE………………….            

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  https://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book sold in the U.S. will be donated to HDSA.  http://www.hdsa.org     Therese and John donated $9,015.00 to HDSA that is the profit from book sales since Therese published in April 2017.

#LetsTalkAboutHD #HDAwarenessMonth