Four (4) years to the day, John and I took off on a book tour, in our RV, to promote the nonfiction book I had just published,Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.
Before we headed East on I80, I had mapped out nine (9) Huntington’s Disease Society of America (HDSA) Team Hope Walks, in the Midwest, that we could attend over a period of three (3) months. I had talked to the coordinator of each Walk, to make sure it was ok, and was welcomed with open arms. When the walk was concluded, I calculated the proceeds from books sold that day, and wrote a check to the HDSA Chapter/Affiliate hosting the event.
After each Walk, my heart was filled with hope and love, and I was inspired by the strength I witnessed in the HD families I had the honor to meet.
In every book I sold, I wrote, We Can Never Lose HOPE….
Three (3) years ago today, John and I headed out in our new 30 ft. RV, headed for the Midwest to promote the nonfiction book I had just published, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. amazon-Mrs.-Therese Crutcher-Marin
The Huntington’s Disease Society of America (HDSA) Annual Convention was being held Schaumburg IL that year and part of the book tour was to attend the convention where I would sell the book. One of reasons I wrote the book was to donate 100% of the proceeds to HDSA; two other reasons were to heighten Huntington’s disease (HD) awareness and honor my three sisters-in-law who had passed away from HD complications. hdsa/annual-convention/2017-2/
John and I spent three months touring the Midwestern states, Nebraska, Kansas, Ohio, Michigan, Wisconsin, Illinois, Missouri, attending 11 HDSA Team Hope Walks, engaging with families at Walks, listening to their HD stores, talking with TEVA reps and selling the book.
In July, we attended the four (4) day Woody Guthrie Folk Festival in Okemah OK, birthplace of Woody Guthrie. It was hotter than hades but a wonderful experience. I was thrilled to meet some of the Arlo Guthrie family members. We also visited the Woody Guthrie Center in Tulsa OK and I held a book discussion with community members. Woody Guthrie Folk Festival/2017-book-tour/
John and I returned home at the end of August 2017, and I wanted to keep traveling, but we needed to get back to reality.