I chose a life of uncertainty, allowing the unknown intruder in our home, which opened my heart to love more deeply, and knowing John could fall prey to the intruder at any time, made my life richer.
We Can Never Lose Hope…
I chose a life of uncertainty, allowing the unknown intruder in our home, which opened my heart to love more deeply, and knowing John could fall prey to the intruder at any time, made my life richer.
We Can Never Lose Hope…
On Saturday, June 17th, the participants ran & walked on the Los Gatos Creek Trail located at Campbell Park
The great news is the event raised $27,500.00!
We Can Never Lose Hope…
Platinum Sponsor Gold Sponsor
Silver Sponsors
We also acknowledge our National Sponsors. uniQure, Teva and Genentech
We Can Never Lose HOPE…….
We decided to start a fundraiser in the San Francisco South Bay because the San Francisco Team Hope Walk is a long drive for those living in the greater San Jose area.
Please join us in the 5th Annual Team Hope Run/Walk on June 17th at Campbell Park. Or if you cannot attend, please consider make a donation to the nonprofit, HDSA, so the HDSA San Francisco Bay Area Chapter can continue funding FREE online and local resources/programs.
Please register here for the San Jose Run/Walk:
Thank you to our two Gold Sponsors
We Can Never Lose HOPE……
Recently I had an individual ask me, “What good does it do talking about Huntington’s disease (HD)?”
We Can Never Lose HOPE…..
If the question led me here, then I am who I was born to be. Song “Who I Was Born To Be” by Susan Boyle
I do not believe in coincidences so I maintain I am supposed to be here, in Petaluma CA, working with incredible HD advocates at the HDSA San Francisco Bay Area Chapter.
We Can Never Lose Hope…
Lora and Marcia confronted their father for information and he dismissed their concerns. Marcia went to County of Napa and requested Phyllis’s death certificate; cause of death, strangulation and underlying cause was Huntington’s Chorea.
HD claimed the lives of my three sisters-in-law over a 25 year period of time. Unfortunately, our children never really knew their aunts which was a tragedy in
Visit www.hdsa.org a 501(c)3 nonprofit for more information about HD and join the fight. Please Consider making a donation .
We Can Never Lose HOPE...
I had the joy of knowing Lora, Marcia and Cindy, awesome women, who I had so much fun with for years.
We Can Never Lose Hope…
May is Huntington’s Disease Awareness Month
Huntington’s disease (HD) is a rare, fatal, brain disorder that has the symptoms of ALS, Parkinson’s and Alzheimers, simultaneously. There is NO CURE.
Because HD is very rare, HDSA’s business model focuses on its Mission Statement: HDSA is dedicated to improving the lives of everyone affected by Huntington’s disease and their families. HDSA fulfill’s their mission by providing programs and services to HD families across our nation so they may have the highest quality to their lives on their long HD journey.
HDSA’s Vision Statement: A World Free of Huntington’s Disease HDSA also conducts research in the search for a cure or
During this important month for Huntington’s disease, please go to HDSA.org to learn about the disease and consider making a donation to help in the fight against this horrific disease.
List of resources:
Online Support Groups: HDSA.ORG/OSG
Telehealth: HDSA.ORG/TELEHEALTH
HD Trialfinder: HDTRIALFINDER.ORG
HDSA’s National Youth Alliance: HDSA.ORG/NYA
Youth Mentorship Program: HDSA.ORG/YMP
Disability Resources: HDSA.ORG/DISABILITY
Locate Resources in Your Area: HDSA.ORG/LOCATERESOURCES
We Can Never Lose HOPE…
John was negative!!!!! It was the happiest day of our lives!
At that time, it was only the second time I ever saw John cry. I was so happy it was tears of joy and not sorrow.
To tell you the truth, hearing his CAG count was surreal, almost dreamlike. After committing to
John’s negative test freed Keith and Vanessa, from having to live a life at risk like their father.
We Can Never Lose HOPE…
May is Huntington’s Disease Awareness Month. #LetsTalkAboutHD