Storytelling

An Amaryllis Christmas Story

Author Therese Crutcher-Marin

I’m sharing a story about a friend who purchased Huntington’s Disease Society of America (HDSA) Amaryllis Holiday Kits and sent them to her family to stay connected during the holidays.  The amaryllis commonly symbolizes strength and determination. The Huntington’s disease (HD) community has adopted this flower to represent hope and celebrate the advancements in HD research. HDSA Annual Event 

HD is a rare, fatal, genetic brain disorder that has symptoms of ALS, Parkinson’s and Alzheimers synonymously and there is NO CUREWhat is HD 

The bulbs are bringing fun and connectedness to the ladies in her family at this somewhat isolating holiday time. She ordered 7 bulbs and mailed them to San Diego (2 nieces), Modesto (2 sisters), Colorado (daughter), near Fresno (daughter) and she kept one.   They all planted on December 1 and named their bulbs.  (One is Minnie, one is Amy, etc. One is even Pancake because it sits on a shelf next to the pancake mix.) 

Every Sunday they measure the heights of their stalks, send each other a picture, and the race is on!  The bulb owner who ends up with the tallest stalk when there is a full bloom is the winner of a Cold Stone gift card. They are finding it amazing how different the growth patterns are when they all were planted at the same time.

My friend feels her family challenge is a bit silly – but they are having great fun staying connected over the holiday in this way.  She is already telling herself to remember it for next year again!

We Can Never Lose HOPE……

Thank you to my friend for supporting HDSA in the fight against his horrific disease and finding a unique way to connect with loved ones. 

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