As of today, December 30th, 2020 over 339,000 Americans have died a horrible death and more than likely, died alone.
Since my family was at risk for the cruelest disease on the planet, Huntington’s Disease, a rare, fatal, genetic brain disorder with NO CURE, John and I always lived our lives MINDFULLY and TOOK NOTHING FOR GRANTED. What is Mindfulness?
This unprecedented year, has reinforced the importance to live in the moment, appreciate and enjoy the day. California is in such a bad way with COVID-19 that John and I have not seen our children much this year. I cherish them more and tell them I love them often. Also, during the pandemic, I have felt closer to my sisters, nieces and nephews and believe I understand them more than I did before.
I pray this will be the last pandemic the world will have experience, for awhile, and I hope we have learned from it.
We Can Never Lose HOPE…
I’m an Advocate for Huntington’s disease, a volunteer and Chair for the HDSA San Francisco Bay Area Affiliate.
Author Website I’m the author of the nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.