Huntington's Disease

A World Free of Huntington’s Disease

Huntington’s Disease Society of America’s Vision (HDSA) Statement is “A World Free of Huntington’s Disease (HD)”.

Wouldn’t that be wonderful?  No more suffering, no more uncertainty, no more contemplation of whether to have a child or not; too many issues to list that affect HD families that most of the world doesn’t have a clue about.

The picture shows logo’s of companies that support the Huntington’s community in their own unique way.  Wouldn’t it bee nice if we didn’t need these companies who supply durable medical equipment, medications, etc. to support a loved one with Huntington’s disease.

Hopefully, in the not too distant future, these companies can concentrate on curing other devastating neurodegenerative diseases like ALS, Alzheimers and Parkinson’s to name a few.

We Can Never Lose HOPE……

Therese selling books at the Woody Guthrie Folk Festival in Okemah OK in July 2017

I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to this horrific disease.  A group of HD advocates and myself have formed a team to become a HDSA San Francisco Bay Area “Affiliate” to serve the HD community where 7.1 million people live.  The San Francisco Bay Area deserves to have a HDSA Chapter which we will hopefully become over the next couple of years.

My book, Watching Their Dance” is available on many book websites and $7.00 is donated to HDSA every time the book is purchased.  https://www.amazon.com/-/e/B06ZY85776

 

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