Huntington's Disease

A Risk Worth Taking

Most people do not ponder over the term “at risk” and how these two words can shape your life; either in a good way or a bad way, depending on how you look at it.  “Life is a series of calculated risks – nothing more. Everything that you decide to do has a margin of risk.” 

John and his three (3) sisters discovered, quite suddenly, that their mother had Huntington’s disease, and were “at risk“, each having a 50/50 chance of inheriting the cruelest disease on the planet. Huntington’s disease (HD) is a rare, fatal, brain disorder that has all the symptoms of ALS, Alzheimers and Parkinson’s at the same time.  And, there is NO CURE.  What is HD

At the time, there was no genetic test for the disease, so in my mind, at risk” would be forever. To me, it meant I would live with an unknown factor in my life that could not be controlled.  I’m a planner with no spontaneity in my body. My comfort level is having control of a situation so I’m prepared, and never surprised.

So, with that said, I was unsure about living a life at risk” with the man I loved.  What would you have done if you were in my situation?

Through life experiences, I came to realize that risks are almost always necessary ingredients in the recipe that is happiness.


I’m a Huntington’s disease advocate having lost my three (3) sisters-in-law to this horrific disease.  A group of HD advocates and myself have formed a team to become a HDSA San Francisco Bay Area “Affiliate” to serve the HD community where 7.1 million people live. 

My book, Watching Their Dance” is available on many book websites and $7.00 is donated to HDSA every time the book is purchased.

We Can Never Lose HOPE….

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