HD Advocates

The 2019 Boston HDSA Annual Convention

Every year, the HDSA Annual Convention keeps growing and I’m always surprised at the number of first time attendees. I find this fact wonderful since those first timers find support, information, and more importantly, they find a welcoming community where they never have to feel alone again. https://hdsa.org/about-hdsa/annual-convention/

The 2019 HDSA Convention kicked off with a Team Hope Walk on Thursday evening which always gets folks fired up!


I’ve now attended three (3) HDSA Conventions; 2017-Chicago, 2018-Los Angeles and Boston.

In 2017, John and I were on a three-month Midwest book tour in our RV, as I had just published the nonfiction book, Watching Their Dance.  I sold 63 books at the convention.

James and Mel Miller at the 2017 HDSA National Convention in Schaumburg IL.

2018 HDSA Convention

2018 Left to right: Anna Canoni, Nora Guthrie, Louise Vetter & Dr. Nancy Wexler

The next year, 2018, the convention was in Los Angeles, and we drove our RV and parked in Dockweiler State Beach for four nights. The beach was only four miles from the Convention Center but it took me 45 minutes to get there.  Traffic was crazy! I sold 55 books that year.

This past weekend, we flew to Boston and while I was busy all day with sessions, John found a coffee shop, a newspaper, a sports bar for lunch, which made his day enjoyable.

I was honored to receive the HDSA “Woody Guthrie Advocacy Award”, and will continue to advocate and help in the fight against Huntington’s disease.  I’m humbled that HDSA felt I was worthy of this award.

Thank you Huntington’s Disease Society of America (HDSA) for guiding the HDSA volunteers with integrity, grace, patience and information to help Affiliates and Chapters be successful in carrying out the HDSA Mission.

HDSA Mission

To improve the lives of everyone affected by Huntington’s disease and their families.

HDSA Vision

A world free of Huntington’s disease.

We Can Never Lose HOPE……………






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