HDSA San Francisco Bay Area AFFILIATE

2020 Welcomes the New HDSA San Francisco Bay Area AFFILIATE

Author Therese Crutcher-Marin

I’ve always welcomed a challenge in my life, my work, and in my volunteer efforts.  Living at risk with John for Huntington’s disease (HD) was the biggest challenge of my life, and, luckily we made it through the fire.  HD is a rare, fatal, genetic brain disorder with NO CURE.  When a parent has HD, each child has a 50/50 chance of inheriting this horrific disease.  For more information on HD, visit http://hdsa.org.

HD Advocate Amy Fedele

When a challenge presented itself to Amy Fedele, an HD advocate in the San Francisco Bay Area, and myself, we embraced it.  https://www.facebook.com/amy.fedelelucchese


The San Francisco Bay Area, with 7.1 million folks, does not have a Huntington’s Disease Society of America (HDSA) Chapter or Affiliate; 54 Chapters/Affiliates exist across the U.S.  The HDSA Northern California Chapter territory included the Bay area; their territory was huge and impossible to carry out HDSA’s mission in this part of the Northern California.  So, the new SF Bay Area Affiliate will work in partnership with them to fill in the gaps of service, To view the Chapters/Affiliates across the country, visit:  https://hdsa.org/about-hdsa/chapters-affiliates/

So, with that said, last year, Amy and I began the process to become a HDSA “Affiliate” with the help of Denny Cone, HDSA Regional Development Manager.  I wrote a Letter of Intent, filled out paperwork and submitted it to HDSA.   On October 3, 2019 we were granted the status of San Francisco Bay Area Affiliate and we begin operation today!

It’s a great New Year for the HD community and we are thrilled to have the first Affiliate meeting on January 11, 2020 at University of California, San Francisco Center of Excellence.

We Can Never Lose HOPE…………………

Visit the link to read about overcoming life’s challenges:https://www.tentree.com/blogs/posts/10-ways-to-overcome-lifes-challenges





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