Forty years ago, I chose to be with John despite his unknown gene status for Huntington’s disease (HD). This may sound a little crazy, but living at risk for the cruelest disease on the planet with John, for 38 years, and the precariousness of the situation, fortified my marriage. I say this because knowing my world could change over night, and steal what I loved most, made me appreciate John everyday, never taking him or our relationship for granted. Living_at_risk_for_HD_
John and I rarely fought, we had some disagreements, but never got mad at each other. Life is just too short not to forgive because we are all human and we all make mistakes.
The things I learned through this journey with Huntington’s disease looming over us, was to appreciate what I had in my life at that moment; I lived mindfully. Also, John and I also didn’t put off the things we wanted to do and we able to create so many wonderful memories together with our children.
Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on my author website/HD Advocate & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the proceeds from my book is being donated to the nonprofit, HDSA.