Huntington's Disease

ABC News Special Report on Two Huntington’s Disease Families

On July 3rd, 2020, ABC News’ Linsey Davis follows two families grappling with the rare genetic disorder Huntington’s disease (HD), compared to ALS, Parkinson’s disease and Alzheimer’s disease all in one.  (if video didn’t transfer, click here to watch the video:  https://youtu.be/USwMplVl5vQ)

I was ecstatic when I saw the video on ABC. I don’t know how this came about but I bet the nonprofit, Huntington’s Disease Society of America (HDSA) had something to do with it!   

Thank you ABC News.  

The more awareness created about HD, especially by news organization like ABC, the more people will know about this horrific genetic disease with NO CURE.  What-is-Huntington’s Disease?

HDSA and many other nonprofits are being challenged due to COVID-19.  Most of HDSA fundraising events were changed to VIRTUAL and with so much uncertainty in our lives, donations are down.  To make a donation to HDSA and help in the fight against Huntington’s disease, click here HDSA-Make a Donation

Author Therese Crutcher-Marin Book Signing in Auburn CA

Thank you for reading my blog.  I’m an HD advocate, Chair for the HDSA San Francisco Bay Area Affiliate, a blogger and an author of the nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  100% of the profits are donated to HDSA. 

My author website:  https://theresecrutchermarin.com

 

We Can Never Lose HOPE….

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1 Comment

  • Reply Jamison Skala August 4, 2020 at 12:11 pm

    Hi Therese! You are correct! Our very own Chris Cosentino, HDSA’s director of marketing & communications, had been working with ABC for more than 18 months on this story. So wonderful—for the HD community—to see it come to fruition. Thank you for all you do! Hope to see you in Spokane next June (unless I make it out to NoCal before then). My best, Jamison

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