What is Huntington’s Disease. Please watch the video below created by the HOPES (Huntington’s Outreach Project for Educatioon, at Stanford) program at Stanford University.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
For more information on Huntington’s disease and also to find support/information: Huntington’s Disease Clinics which are called Centers of Excellence, support group meetings and online support groups, contact info on a HD social worker, HD events in your area, please see: http://hdsa.org
Other Huntington’s disease organizations in the U.S.:
Help4HD International https://help4hd.org/
Hereditary Disease Foundation http://www.hdfoundation.org/
Huntington’s Disease Foundation http://www.huntingtonsdiseasefoundation.org/
We Have a Face https://www.wehaveaface.org/