I wrote and published the book, Watching Their Dance, for several reasons and the first reason was to heighten Awareness of Huntington’s Disease.
The book is a tool for others to use to create/heighten Huntington’s disease awareness. The story reads like a novel and appeals to a large audience, especially readers who enjoy a love story with a difficult challenge. (It’s John and my love story while living in the shadow of HD).
To successfully fundraise for a rare, fatal, hereditary brain disorder, with no cure, like Huntington’s disease, creating awareness is vital. How can someone be persuaded to give, if they know nothing about the cause (disease)?
So, I ask the many HD community folks who purchased the book, many thanks, to pass it on to someone who knows little about the disease. What is Huntington’s disease?
I found this interesting article on 15 Way to Skyrocket Awareness for a Cause, and I’m going to implement a couple of the suggestions into my outreach plan. https://www.youcaring.com/blog/2017/how-to-raise-awareness-for-a-cause
1. Organize educational events
2. Host fundraising events
4. Be picture perfect
5. Host a video contest
6. Like and comment to win
Branding Your Cause
7. Be consistent
8. Design and distribute swag
9. Boost social media awareness
11. Make informational pamphlets
12. Write a press release
13. Make a viral challenge video
14. Challenge your coworkers
15. Take on a challenge
May is Huntington’s Disease Awareness Month
Therese will be selling her memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, at HDSA Annual Convention, June 7-9. The book is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format. 100% of the profit from the book is donated to HDSA.
In December, Therese and John donated $9,015.00 to Huntington’s Disease Society of America (HDSA) which was the profit from 2017 book sales.
#LetsTalkAboutHD #WeCanNeverLoseHOPE #WatchingTheirDance #HDSAFamily
Photo by symphony of love on Foter.com / CC BY-SA