The UC Davis Huntington’s Disease Clinic is recognized as a Huntington’s Disease Society of America (HDSA) Center of Excellence for their expertise in clinical care for Huntington’s disease patients. The Huntington’s Disease Clinic is one of the largest in the country and the only Level 1 Center of Excellence in Northern California. It is led by UC Davis faculty members in the Department of Neurology. In addition to clinical care, patients also have access to emerging new treatments through clinical trials. Please click on https://www.ucdmc.ucdavis.edu/huntingtons/ to see the full website.
The UCD Center of Excellence (COE) offers anonymous testing which most COE’s don’t have available to their patients. John was tested in January 2017 and we tested anonymously; John was just a number and the bills were addressed to the number. It reassured us that if his test was positive, it was not, that our kids would not be linked to his file.
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
Therese and John donated $9,015.00 to HDSA in December which was the profit from books sold in the U.S. since she published in April 2017.