I’d like to share a very difficult time in John and my life. You’ve heard the saying, “I wish I knew then, what I know now”. These words screamed at me for years. They have finally silenced because I came to realize that I did what I could with the information and life experience I had at the time.
But my heart still hurts from losing my friend.
My dear friend and sister-in-law, Lora, was spiraling out of control, self-medicating with alcohol. The threat of Huntington’s disease (HD), deep depression, unable to keep a job and her husband washing his hands of her was too much for her to bear, or really, anyone could bear.
Excerpt from Chapter 22, pg. 176 Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. What is Huntington’s disease?
“Four days after John’s thirty-fifth birthday, the phone range about nine p.m. My heart skipped a beat, as it had been doing whenever the phone rang. It was someone from Mercy Hospital in Sacramento, asking in a cool, unemotional voice for John Marin, the brother of Lora Marin. John was just out of the bathroom, and my face must have been white as I handed him the phone. ‘It’s Mercy Hospital, asking for Lora’s brother.’
He took the receiver, and it was a terrible thing to watch this strong, loving man wilt like a flower. In a strange monotone, he said, ‘Thank you. Goodbye.’
I hadn’t realized that while John was on the phone, I’d been slowly backing away from him. Now he was walking toward me like a robot, and I became even more frightened. My hands went over my ears to shut out the words he was going to say. As my back hit the wall, his arms went around me like a shield. “Lora fell and hit her head. She has a cerebral hemorrhage, and she’s in a coma. She doesn’t have much time left.'”
I’m a Huntington’s disease advocate having lost my three sisters-in-law, Lora, Marcia and Cindy to this horrific disease. Watching Their Dance is an inspirational love story while living in the shadow of HD. 100% of the proceeds are being donated to the nonprofit, HDSA. You can find it on many book websites like Amazon. https://www.amazon.com/Watching-Their-Dance
OR on my Author Website: http://www.theresecrutchermarin.com