People have asked me why I attend the monthly HD support group in Sacramento when I currently do not have anyone affected by the disease? Yes, my three sisters-in-law are gone, stolen from us by the insidious HD, but they are not forgotten.
I take part in the meetings in honor of Lora, Marcia and Cindy’s struggle with HD. For over 25 years, John and I lovingly cared for and helped his three sisters through the disease process, without a support system, as neither a support group nor HDSA Center of Excellence existed in the late 1980’s and 1990’s in the Sacramento area.
Being present for those struggling with HD, listening, acknowledging their experience, pain, fears and doubts, and offering advice, gives me peace. I will always have compassion in my heart for HD families, and have a need to help in some small way, because I know what they are going through. If I could have talked with a HD family that was going through what John and I were experiencing, it would have been life changing for me.
If you’re considering joining a support group, this article might be beneficial to you: http://davidsusman.com/2015/04/23/9-benefits-of-support-groups/
Click on link for a larger picture of the list of support groups in Northern California: https://www.ucdmc.ucdavis.edu/huntingtons/files/support_groups.pdf
HDSA also offers free ONLINE SUPPORT GROUP MEETINGS. To register please go to: http://hdsa.org/osg/
We Can Never Lose HOPE………………
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the proceeds from books sold in the U.S. are being donated to HDSA. John and Therese donated $9,015.00 last December which was the profits from books sold since Therese published in April 2017.
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