Resources

There is so much information online about HD.  My website is just one of many with information to help you understand the disease.  I’m glad you found my website.  Here are some websites to help you: 

Publicationshttp://hdsa.org/shop/publications/ and http://www.ninds.nih.gov/disorders/huntington/detail_huntington.htm

HD Chapters and Affiliates in your area: http://hdsa.org/about-hdsa/chapters-affiliates/

HD Centers of Excellence:  http://hdsa.org/about-hdsa/centers-of-excellence/

Drug for Calming the Chorea:    https://austedo.com/         http://www.xenazineusa.com/HD-resources

Care, Information, Education, Support:  https://wiki.library.ucsf.edu/pages/viewpage.action?pageId=159711258

Social Media:  https://www.facebook.com/HDSofA/posts/10153143269403016

Research being Conducted:  http://hdfoundation.org/

Insurance and HD:  http://web.stanford.edu/group/hopes/cgi-bin/hopes_test/insurance-and-hd/

Genetic Discriminationhttp://www.geneticalliance.org/advocacy/policyissues/geneticdiscrimination

Genetic Testing:  http://www.genetics.edu.au/Publications-and-Resources/PublicationsBrochuresandPamphlets/HUNTINGTON%20DISEASE%20AND%20GENETIC%20TESTING.pdf

 

MORE TO COME!