Huntington's Disease

Prevalence of Huntington’s Disease Worldwide

 Around the world, cases of Huntington’s disease are found in 5-10 out of 100,000 people. There does not appear to be a difference in the numbers for men and women while some variance is recorded for ethnic groups and geographical locations.

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.  

For instance, rate of occurrence is highest in peoples of Western European descent, averaging around 7 per 100,000 people while only about one case per million is recorded for people of Asian and African descent.

According to, the rate of Huntington’s disease in the United Kingdom is 12 per 100,000 people.

In the United States approximately 10 per 100,000 have the faulty huntingtin gene and live either waiting for symptoms to begin or live/struggle with the disease.  

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a nonfiction/memoir, can be purchased on Therese’s author website        Amazon     B&N       &  Kindle, Kobo, Nook, and iBooks format.

100% of the proceeds from the book is being donated to the nonprofit, Huntington’s Disease Society of America (HDS).

We can never lose Hope………………..Therese

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