Watching Their Dance

“Watching Their Dance” and Goodreads

Early in September 2017, after returning home from our 3-month book tour, I was updating my Goodreads Author Profile when I found this wonderful review on my book, Watching Their Dance. I was in shock because I had not submitted it.  My publicist said they reviewed it because I ran a “Goodreads Giveaway” last May, where I gave away 10 books. 817 people signed up for the event and Goodreads drew the 10 names.

I’m thrilled with the review to say the least. Goodreads 

The last statement of the review says:  ‘While you will learn a great deal about Huntington’s Disease along the way, this book has much to offer beyond the boundaries of any disease.” by Jazz Jaeschke for Story Circle Book Reviews, reviewing books by, for, and about women.

To read the complete review: click on this link:  https://www.goodreads.com/review/show/2094596155

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle,Kobo, Nook, iBooks format.

 

We can never lose HOPE…………Therese

Historical Fiction

Do I Dare Write Another Book?

I began writing a second book, a historical fiction novel, in 2015, when I needed a break from Watching Their Dance, and I’ve written about sixty pages so far. In 2016, I was finishing the final details on Watching Their Dance so, needless to say, my second book didn’t receive much attention that year.  I’ve missed writing and how the creative juices begin to flow once I’m focused, so I’ve set a goal to get back to the novel by the end of the year.

If you’re not familiar with the genre, historical fiction, Goodreads has a good description, “Historical fiction presents a story set in the past, often during a significant time period. In historical fiction, the time period is an important part of the setting and often of the story itself.”  https://www.goodreads.com/author/show/16631704.Therese_Crutcher_Marin

The picture of my 102-year old Grandmother, Chris Crutcher, is a hint regarding my next book. I’ll be donating 100% of the proceeds from my next two books to Huntington’s Disease Society of America (HDSA).

Watching the Dance Huntingtons Disease Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file. 100% of proceeds goes to Huntington’s disease organizations around the world.

We can never lose HOPE…….Therese

 

 

HDSA Fundraising events

Therese’s Book Tour-Part 2

(continued from Sept. 7 blog)

On June 14th, 2017 John and I arrived at our first stop, Lenexa Kansas to attend our first HDSA Team HOPE Walk on June 17th. I was thrilled to visit Kansas, the state I grew up in and where I still had many relatives living. Aunt Trina and my cousins participated in the walk with us and we had a blast together.

I congratulate Paige Kesler for organizing the walk which raised $11,703.00.  job!  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1083 

All dollars from HDSA Chapter fundraisers are sent to HDSA Corporate in NY to fulfill the HDSA Mission:  “Improve the lives of everyone affected by Huntington’s” disease”.

I sold 11 books at this walk, $7.00 per book is donated, which equates to $77.00, so I rounded up and donated $100.00 to the event.

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, & iBooks format.

We can never lose HOPE……………Therese

HDSA Fundraising events

3rd Annual Freeze HD Fundraiser

Last year, when I was researching celebrities whose family was affected by Huntington’s disease, I came across the “HDSA 2nd Annual Freeze HD fundraiser” and was amazed at the money they raised. It’s truly wonderful!

The Hamilton family share their story for the upcoming “HDSA 3rd Annual Freeze HD fundraiser”. The event is this Friday evening, September 22nd, at Seven-Degrees in Laguna Beach, CA.  Their goal is to raise $230,000.00!!!   All I can say is WOW and thank you to all the folks who support this event. Freeze Fundraiser

These dollars help in the fight against Huntington’s disease which allows Huntington’s Disease Society of America (HDSA) to fulfill their Mission statement……To Improve the Lives of Everyone Affected by Huntington’s disease.

The  The Huntington’s Disease Society of America  is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.

We can never lose HOPE………Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website: http://www.theresecrutchermarin.com and  Amazon    B&N      Kindle    Kobo      Nook 

 

 

 

Helping Others

TEVA Pharmaceutical Company

While John and I were on my book tour, promoting Watching Their Dance, and attending HDSA Team HOPE Walks, my table usually ended up next to the TEVA Pharmaceutical representatives. I was impressed with their marketing material on Austedo, the new treatment for Huntington’s disease patients who exhibit chorea, and their personalized support to patients who begin an Austedo drug regiment.    http://www.tevapharm.com/        

I compliment the TEVA representatives on their professionalism and sincere efforts to individually speak to HD families at these events.

The Teva Rep’s I met are:  (left to right) Lori Sorge and her coworker (I’m sorry I do not remember his name)-Wisconsin, Michael Morreale & Maurice Mulcahy-Ohio, Dianne Knapper-Michigan, and Lori Sorge again since I saw her at two events!  I also met a nurse, Jason, who held an inservice on Austedo after the Wisconsin walk, a nurse and rep at the Nebraska walk and a nurse at the Kansas walk. Great meeting you all!

      

We can never lose HOPE………………Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website: http://www.theresecrutchermarin.com and

Amazon    B&N     Kindle    Kobo      Nook 

and iBooks.

The Marin Siblings

Watching Their Dance-Chapter 13

I hope you enjoy an excerpt from Chapter 13 in my book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s https://www.amazon.com/author/theresecrutchermarin 

“Placer County proved to be an excellent place for John to work, since it was growing rapidly and offered many opportunities for a young professional.  Just after our third anniversary, a position became available in the planning department, and John got the job. He would assist the Placer County planning commission in preparing for growth, enforce the county’s zoning ordinance, and review and make recommendations on land development.

Both John and I worked with young married couples that were starting families. This opened a long conversation as to where or not we should have children. I was having a hard time getting past the risk involved, agonizing over bringing a child into the world when quite possibly condemning him or her to the life of uncertainty we led.”

100% of the proceeds from my book is being donated to Huntington’s Disease organizations around the world.

Watching the Dance Huntingtons DiseaseWe can never lose HOPE……………….Therese

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle,Kobo, Nook, iBooks file.

 

Fundraising

Huntington’s Disease Fundraisers

Huntington’s Disease Society of America (HDSA) fundraisers are going on all across the United States.  Find one near you and support a great cause and help to eradicate the cruelest disease on the planet, Huntington’s disease.

                                                                   SEPTEMBER 16, 2017

Care2Cure HD benefit car show, Great Plains Coliseum Expo Building – Lawton, OK

Knoxville, TN Team Hope Walk, Volunteer Landing Park – Knoxville, TN

New Hampshire Team Hope Walk, UNH Whittemore Center – Durham, NH

Tewksbury, MA Team Hope Walk, Tewksbury Hospital – Saunders Building – Tewksbury, MA

Toledo, OH Team Hope Walk, Walbridge Park – Toledo, OH

Joplin, MO Team Hope Walk, Landreth Park – Joplin, MO

Springfield, MO Team Hope Walk, JR Martin Park – Republic, MO

2017 Nashville Family HD Education Day, 2200 Children’s Way, Second Floor – Nashville, TN

Orange County, CA Team Hope Walk, William Mason Regional Park – Irvine, CA

New York City Team Hope Walk, Hudson River Park – Pier 45 – New York, NY

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.  http://www.hdsa.org         https://help4hd.org/    https://www.wehaveaface.org/

We can never lose HOPE……………….Therese

Watching the Dance Huntingtons DiseaseTherese is donating 100% of the proceeds from her nonfiction/memoir book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, to HDSA and Huntington’s disease organizations around the world.

You can find the book on:

Therese’s author website  http://www.theresecrutchermarin.com 

Amazon&Kindle  https://www.amazon.com/dp/B072B9KY7L/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1 

B&N  https://www.barnesandnoble.com/w/watching-their-dance-therese-marie-crutcher-marin/1126082854 

Kobo  https://www.kobo.com/us/en/ebook/watching-their-dance

Nook  https://www.barnesandnoble.com/w/watching-their-dance-therese-marie-crutcher-marin/1126082854?ean=9780998442204

iBooks- on iTunes book library

Fundraising

Therese’s Midwest Book Tour-Part 1

A little over two (2) years ago, Chris Consentino, HDSA Marketing and Communications Director in the corporate office in NY, reached out to me because he had heard I was writing a book and it would have a fundraising component to it that involved HDSA.  Well, needless to say, I was thrilled and over discussing the project he offered to partner in the promotion of the book.  So, began our business relationship.  http://www.hdsa.org 

Last April, I finally held a book in my hand. Publishing Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s was a dream come true. My fundraising/HD Awareness Project was now ready to be presented to the world.

The second dream I had was taking a book tour to heighten awareness of Huntington’s disease and promote the book. John and I love traveling the highways and back roads, avoiding freeways, taking the time to enjoy the landscape, animals, agriculture in different states, so we traded in our fifth wheel and truck and purchased a 30 ft. motorhome. As John and I began to plan the tour, my job was to plot HDSA events we could attend after the National Convention and John was in charge of mapping out our route. Since we’ve never visited the Midwest, we saw it as an adventure.

The HDSA National Convention was held in Schaumburg, Illinois in June, 2017 and I represented the Northern California Chapter, and also a vendor for the promotion of my book. HDSA was generous and gave me a window on the second day of the convention for four (4) hours to sell the book. In that amount of time, I sold 63!  I also attended the Leadership Day and met the new Pacific Southwest Regional Development Director, Anita Dominguez, and Regional Development Manager Nanette Schlarmann. I can’t say enough about the positive experience I had at the convention.   http://northernca.hdsa.org/ 

            

Therese’s Book Tour will be continued on the next few blogs!

We can never lose HOPE……………….Therese

Therese is donating 100% of the proceeds from her book to HDSA.  When the book is purchased in another country, she will donate the proceeds to a Huntington’s disease organization in that country. Therese’s memoir/nonfiction book is on her author website  http://www.theresecrutchermarin.com and on Amazon, B&N, & other book website & as a Kindle, Kobo, Nook, iBooks file.

                     

 

 

 

 

 

 

Photo credit: HowardLake via Foter.com / CC BY-SA

Watching Their Dance

“Watching Their Dance”……….An Inspirational Story

Continued from August 31 blog   http://theresecrutchermarin.com/new-blog-page/  

In my last blog, I wrote that the Huntington’s Disease Community is the first audience I chose to promote Watching Their Dance to because of the subject matter (Huntington’s disease). Since I’m donating 100% of the proceeds from the book to Huntington’s disease organizations around the world, the HD community has been very supportive, and I will continue to connect with them for years to come.

The second audience I believe would enjoy Watching Their Dance are readers of inspirational stories. Kirkus Reviews said this about the book, “This is a story more about the power of hope than the wages of Huntington’s. Crutcher-Marin writes affectingly about the way her marriage was actually fortified by its precariousness—she learned to love more deeply in the shadow of her husband’s mortality.”   https://www.kirkusreviews.com/book-reviews/unknown/watching-their-dance/   

Here are a few books I’ve read that are inspirational (in my opinion):

Breaking Night: The Liz Murray Story     https://www.goodreads.com/book/show/1432370.Breaking_Night 

The Climb of my Life: Scaling Mountains with a Borrowed Heart by Kelly Perkins                 https://www.goodreads.com/book/show/2102248.The_Climb_of_My_Life 

Brain on Fire: My Month of Madness by Susannah Cahalan                             https://www.goodreads.com/book/show/13547180-brain-on-fire?ac=1&from_search=true  

Glass Castle by Jeannette Walls   https://www.goodreads.com/book/photo/7445.The_Glass_Castle 

Tuesdays with Morrie by Mitch Albom           https://www.goodreads.com/book/show/6900.Tuesdays_with_Morrie  

                 

We can never lose HOPE……………..Therese 

To purchase Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, please visit my author website if you’re in the U.S. http://www.theresecrutchermarin.com

Outside the U.S., you can find it on Amazon and other book websites. It’s available as a Kindle, Nook, iBooks, and Kobo file.

 

Marketing

Target Audience for “Watching Their Dance”

Through the course of writing and producing a book, I have learned many things that I wish to pass on to authors. Experts emphasize the importance for an author to know who their audience is and learn where these folks, groups, hang out and begin interacting with them. So I began to explore who Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s would appeal to.  https://janefriedman.com/how-authors-can-find-readers/

The first audience for Watching Their Dance was apparent because of the subject matter of the story, Huntington’s disease, so the Huntington’s Disease community became my tribe, so to speak.

In the U.S., approximately 30,000 folks have Huntington’s disease and 250,000 are living at riskWatching the Dance Huntingtons Disease, so this became an important group to focus my efforts on.  My thought went like this:  “If the book appeals to, say 25% of the 280,000,that would be 70,000 people who could potentially purchase my book.” I would love to sell that many books.

(Learn who the second audience is for Watching Their Dance in my next blog)

Therese is donating 100% of the proceeds from her book to HDSA in the U.S. and Huntington’s disease organizations in the country where a book is purchased.  The memoir/nonfiction book is available on her author website: http://www.theresecrutchermarin.com    Amazon, B&N, Kindle, Nook, Kobo and many other book websites.

We can never lose HOPE………Therese