Around the world, folks are celebrating May as Huntington’s Disease Awareness Month. For those of us whose lives have been touched by Huntington’s disease, it is an important time to focus our efforts on heightening awareness, raising funds, and remembering those we loved who lost the battle against the disease.
Huntington’s Society of Canada started the LightItUp4HD campaign in May 2015. The idea was born by Jamie – a volunteer from the Huntington Society of Canada (HSC) – who was instrumental in lighting up the CN Tower to raise the visibility of Juvenile HD (in purple) and HD (in blue) and Huntington Disease Awareness Month.
The following video shows the sites that were lit up in May 2016 to raise awareness. https://www.youtube.com/watch?v=LNGOR1sstb0
Huntington’s disease organizations from around the world have joined this movement. Scotland, Ireland, and the United States, are just some of the countries participating in #LightItUp4HD this month.
Please take a look at the locations around the world being light up in blue and purple for this month. It’s impressive. https://www.huntingtonsociety.ca/lightitup4hd/
We can never lose HOPE…………Therese
Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is John and my way of helping in the fight against HD. When you purchase the book, I will donate to a HD organization in the country where the book is purchased. http://www.theresecrutchermarin.com