On January 13, 2018, the HDSA Northern California Chapter Board of Directors kicked off their first 2018 planning meeting with a new president and several new board members. Martha Lehman, retired social worker supervisor II CPS at Yolo County, who has been involved in the board for over 20 years, is the new president.
The board also welcomed four new members; Heidi Ramos, Amy Fedele-Lucchese, Ron Davis and Cole Holderman. Each individual brings an expertise that will assist the board in reaching their goals.
Northern California Chapter (NorCal) is planning many events for the local Huntington’s disease community that will full fill HDSA’s mission statement: Improving the Lives of Everyone Affected by Huntington’s Disease and vision statement: A World Free of Huntington’s Disease.
Please visit Huntington’s Disease Society of America Northern California Facebook page and web page on HDSA website to see dates of upcoming events. https://www.facebook.com/hdsanocal/ http://northernca.hdsa.org/ and sign up to receive email notices. http://northernca.hdsa.org/about/join-our-email-list
Some of the Chapters upcoming events are: local convention, San Francisco & Sacramento Team HOPE Walks, Kaiser/UC Davis Education Days, Conquering HD One Sip at a Time, and HOPE dinner fundraisers.
I have been on the HDSA NorCal Board for one year and is slated to be president in 2019. HDSA currently has 54 volunteer led Chapters and Affiliates across the United States with its headquarters in New York City.
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
100% of the proceeds from Therese’s book is being donated to Huntington’s Disease Society of America. Proceeds from books sold in other countries, will be donated to a Huntington’s Disease organization in the country where to book was purchased.