HD Awareness

Let’s Talk About Huntington’s Disease (HD)

       May is Huntington’s Disease Awareness Month    

                        So, Let’s Talk About HD!  

What is Huntington’s Disease

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. http://hdsa.org/what-is-hd/  

I have chosen to support Huntington’s Disease Society of America (HDSA) because I believe in their Mission statement:  “To improve the lives of everyone affected by Huntington’s disease.” 

Their Mission statement is close to my heart because my three sisters-in-law had Huntington’s disease and John and I cared for them the best we could.  Our goal was to help them have the highest quality of life as possible stay independent for as long as possible.  During that time, from 1984-2008, it was very difficult for John and myself because there were no support groups, HD clinics, or knowledgeable neurologists in the Sacramento area.   I don’t want anyone to feel as alone as we did.  

“A world free of Huntington’s disease”; HDSA’s Vision statement is what I hope to see in my lifetime. 

So, I volunteer my time to the HDSA Northern California Chapter; I’m on the Board of Directors and will president next year.   http://www.hdsa.org 

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

We Can Never Lose Hope………………..

 

 

 

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