When John and I first met in college, I admired his ability to be spontaneous, carefree, not taking life too seriously, which was the opposite of my family. I often wondered, with my lack of lightheartedness, why he stuck around. I was a planner, control freak and liked routine and predictability in my life. I mean, for heaven’s sake, I planned out my dates with him on a calendar. I remember hyperventilating one day when he showed up at the house and said, “Go get your tennis racket and let’s go play right now”. Thank goodness he didn’t give up on me. As we became close, unbeknownst to him, he taught me how to live in the present and not put off the things I wanted to do.
I believe families living in the shadow of Huntington’s disease approach life differently than most since their lives are filled with uncertainty. HD makes one appreciate how precious life is because we live with the real possibility of our lives changing overnight. Because of John’s unknown gene status for HD, we didn’t wait to do things that we wanted to do; we did them as soon as we could. Once the kids were in the picture, we continued to do the things that were important to us, not waiting……because there may not have been a later.
Through the years, friends have often said, “We can’t believe all that we do”. And, it’s true; we just do it, now, not later.
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Have a good day! Therese
Photo credit: symphony of love via Foter.com / CC BY & Photo credit: Genista via Foter.com / CC BY-SA