HDSA Northern California Chapter

May is Huntington’s Disease Awareness Month

     The HDSA NorCal Chapter Convention is Tomorrow, May 5th.

For those who live in Northern California, and would like information on Huntington’s Disease, the NorCal Chapter will host it’s 2018 Annual Convention/Education Day.   What is HD?   It’s free & lunch is provided.  Please register at:

 http://northernca.hdsa.org/about/norcal-chapter-convention-2018

In the morning, the Convention offers nine (9) workshops to chose from.  10 a.m.-11 a.m. Session 1; 11:15 a.m.-12:15 p.m. Session 2:

  1.  Managing the Behavioral Aspects of HD
  2. Advocacy and Clinical Trials
  3. At Risk Discussion Group
  4. HD and the family: Relationship Changes and Talking to Children
  5. Yoga
  6. HD 101 and Genetic Testing
  7. Gene Positive: Now What?
  8. Increasing Your Support System
  9. Advanced Directives and Power of Attorney

12:15 lunch will be provided and at 1:00 we will assemble in the Main Auditorium.

Dr. Vicki Wheelock, MD, UC Davis will speak about recent research and other news regarding Huntington’s disease.

The address is UC Davis Health Education Building at 4610 X Street, Sacramento, CA.  Hours: 9:30 am to 3:30 pm.    We HOPE to see you there! 

Therese will be selling her memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, at the convention.  The book is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format. 100% of the profit from the book is donated to HDSA. 

Therese and John donated $9,015.00 to Huntington’s Disease Society of America (HDSA) which was the profit from her book since she published in April 2017.

 

 

 

 

 

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