People ask me, “Why do you donate your time to help in the fight against Huntington’s disease (HD) when it will not ever affect your family again?”
Yes, John dodged the Huntington’s disease bullet, he didn’t inherit the mutated huntingtin gene like his three (3) sisters and mother and for that we are so grateful. http://hdsa.org/what-is-hd/#risk
I do it because I don’t want anyone to feel alone like John and I did when Lora, Marcia and Cindy were struggling with the disease process. In the 80″ & 90″s support groups were non existent and there were very few neurologists knowledgeable about HD.
Today, there is so much support, information, and neurologists available to families so I spend much of my time on social media getting the word out. Facebook has HD support groups you join and there are many online support groups facilitated by social workers. http://hdsa.org/osg/ http://www.hdscn.org/ https://help4hd.org/
So, don’t give up! Help is out there!
We Can Never Lose HOPE…………….