Browsing Category

Therese-Author

Therese-Author

Happy 4th of July America!

Fun Facts Regarding 4th of July and “Our Declaration of Independence”

Today in history:   https://www.loc.gov/item/today-in-history/july-04/

50 Facts about the Declaration of Independence: https://www.landofthebrave.info/declaration-of-independence-facts.htm

-It could be argued that “Independence Day” should be July 2nd, 1776.  

-It was on July 2nd 1776 that our “Continental Congress” voted in favor of independence.

-On July 4th it was officially adopted and published in local papers.  Only our president of congress, John Hancock and secretary, Charles Thompson had signed the declaration on the 4th of July 1776.

-John Adams, later to be our president, thought July 2nd should be our day of independence.

To reminisce just a bit:  When I was growing up in Kansas, I loved sparklers.  My sisters and I had so much fun running around on the five acre backyard property of my Aunt Mary and Uncle’s Bill’s home.  Kansas has thunderstorms all summer long so no one worried about fires.  We also shot off bottle rockets with my cousins, Mike, Rick, Tim, Larry Mike, Kevin and Grant. Great memories!

From my family to yours, Have a wonderful 4th of July! 

 

 

 

 

We Can Never Lose Hope…………

 

 

 

 

Therese-Author

May is Huntington’s Disease Awareness Month

What Huntington’s Disease Awareness Month Means to Me

May is Huntington’s Disease Awareness Month, a cause I believe in. So what is Huntington’s Disease What is HD?   Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.

The month means a lot to me because:  

May is when many of the HD organizations in the U.S., come together to promote one idea, Huntington’s Disease Awareness.  Help4HD International, Huntington’s Disease Foundation, Hereditary Disease Foundation, We Have A Face, HDSA, The World in HD, join forces, in an unofficial way, and publicize the month using different marketing strategies.  With differences put aside, we share a common goal of heightening HD awareness.

During this month, and since there is power in numbers, Huntington’s Disease information is seen on many social media platforms that leads to easier accessibility of resources by Huntington’s Disease families that are critical to caring for their loved ones. John and I felt so alone when we were caring for his three sisters, who had Huntington’s Disease, in the ’80’s, 90’s and early 2000 since there were no resources available.

May is when I get to participate in HDSA Northern California Chapter Annual Convention/Education Day, and, with TEVA Pharmaceuticals educational grant, the Chapter is fortunate to offer it free to  families.  At the convention, I’m privileged to meet folks who are bravely fighting Huntington’s Disease, and their carepartners who are lovingly caring for a child, spouse, mother, etc.  

May is the month I remember Lora, Marcia and Cindy in everything I do for the Huntington’s disease community

May is the month I give thanks for John’s negative test results (2016) and how our children do not have to live a life at risk for Huntington’s disease. 

We Can Never Lose Hope…………………….

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

 

Therese-Author

Promoting “Watching Their Dance” at the 2018 HDSA Nat’l. Convention

In December 2017, John and I mailed a $9,015.00 check to Louise Vetter, Huntington’s Disease Society of America (HDSA) President and CEO, which was the profit from books sold since I published Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s in April 2017. 

Louise sent an email thanking us for our donation, and it was then I asked if I may sell my book again at the 2018 National Convention scheduled for June 7-9 in Los Angeles. Her response was, “We’re happy to offer you the same opportunity as you had at last year’s Convention”.

Well, I’m thrilled to say the least.  Last year at the National Convention in Schaumburg, IL, I sold 63 books in three hours.  And the convention attendance was the highest in its 32 years; approximately 1,000 folks.   

So, I hope to see many of my Facebook Friends at the convention.  Please stop by my table and buy a book; $7.00 will be donated to HDSA for every book sold.  

We Can Never Lose HOPE……………

To see 2017 Convention highlights, go to:   http://hdsa.org/about-hdsa/annual-convention/2017-2/  

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

John, Dr. Vicki Wheelock, and myself at the 2017 HDSA National Convention in Schaumburg IL.

HOPE Walk held outside convention center at the 2017 HDSA National Convention in Schaumburg IL.

John, myself and Natasha Boissier LCSW at 2017 HDSA National Convention in Schaumburg IL.

 

Watching the Dance Huntingtons Disease
Therese-Author

Free Gift With Purchase of Book “Watching Their Dance:”

When you purchase my book, Watching Their Dance, on my AUTHOR WEBSITE, www.theresecrutchermarin.com I will send you a dozen “Help Fight HD!/HDSA.ORG” wristbands.

For every book sold, in the U.S., I donate $7.00 to Huntington’s Disease Society of America (HDSA).   http://www.hdsa.org 

          

For those outside the U.S., the book is available on Amazon around the world.

Canada:   https://www.amazon.ca/   United Kingdom:  https://www.amazon.co.uk/

France:  https://www.amazon.fr/   Italy:    https://www.amazon.it/

Germany/Netherlands https://www.amazon.de/   Spain https://www.amazon.es/

Mexico:   https://www.amazon.com.mx/   Japan:    https://www.amazon.co.jp/  

We Can Never Lose HOPE………….

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s “A poignant remembrance of a love forged in crisis”. Kirkus Review   https://www.kirkusreviews.com/  

You can also find the book on Amazon.com   https://www.amazon.com/-/e/B06ZY85776  

 

 

 

 

Therese-Author

We Can Never Lose HOPE

In April 2017, a seven-year, heart wrenching journey ended for me and a dream came true; the publication of the book, Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington’s A poignant remembrance of a love forged in crisis”, Kirkus Review

Every time I sold a book, I had the privilege to sign my name and under it I always wrote, “We Can Never Lose HOPE………..”.  

We Can Never Lose HOPE is my motto because no matter what a person is challenged with, Huntington’s disease, a loss of a loved one, dissolution of a marriage, etc., I believe HOPE can sustain oneself through the threat. HOPE was the armor I wore to keep up the fight, for 38 years,  against Huntington’s disease (HD); John had a 50/50 chance of inheriting HD from his mother.  

Many people have asked the question: Why is it important for people to have HOPE?  One answer is:  “There are many obstacles. Having goals is not enough. One has to keep getting closer to those goals, amidst all the inevitable twists and turns of life. HOPE allows people to approach problems with a mindset and strategy-set suitable to success, thereby increasing the chances they will actually accomplish their goals”.

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

 Subscribe to Therese’s Blog via Email

 Enter your email address to subscribe to Therese’s blog and receive notifications of new posts by email and receive the first chapter of her book, Watching Their Dance, via email.

 

 

 

 

 

Therese-Author

Today is a New Beginning

I’m starting the new year off with the following positive, inspirational quotes in mind.  Embrace 2018 as a new beginning!  Three of these concepts are themes in my inspirational story, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’sA poignant remembrance of a love forged in crisis.  (Hint, hint: Hope, forgiveness and love.)

                    

        

       

My personal motto: We Can Never Lose HOPE…………..

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format. 

100% of the proceeds from Therese’s book is being donated to Huntington’s disease (HD) organizations around the world.  

 

Therese-Author

“Watching Their Dance”Generates Money to Fight Huntington’s Disease

The nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is a Huntington’s disease fundraising/HD awareness project, my passion,  which I began seven (7) years ago. The book was published in April 2017 and I was thrilled to hold a book in my hand a begin selling it around the world.

The book can be purchased on many websites and the royalties I receive are different for each:

On my Author websitehttp://www.theresecrutchermarin.com  a page exists to purchase the book, using PayPal. A hard book is $16.99, and an ePub file is $6.99, that can be read on every device but Kindle.

When you purchase on my website, my profit is $7.00 per hard book, and $5.00 per ePub.  These dollars are what I donate to HDSA and other HD organizations worldwide.

On Amazon.com,  https://www.amazon.com/   the royalty I receive on the sale of a hard book is $5.27.  Amazon prints on demand, handles and ships it, collects the tax if appropriate and keeps a certain % for their cut.

When I sell a book on Amazon Kindle, the price is $8.99 and the royalty I receive is $6.29 per file purchased. To date, I’ve sold approximately 800 Kindle’s.

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is an inspirational love story, chronicled over 38 years, showing how John being at risk for HD impacted our life; how I coped and the tools I incorporated into my life to live fully everyday.

When you purchase the book, you are making a donation to help in the fight against Huntington’s disease.  Please go to Therese’s website:  http://www.theresecrutchermarin.com and Amazon    B&N     Kindle     Kobo      Nook 

 

Photo credit: HowardLake via Foter.com / CC BY-SA

Therese-Author

The Start of our Journey

Yesterday, John and I began our journey to the Midwest, it’s my first book tour, and as we drove away from Auburn, John and I were a little nervous, having never done this before.  In our new RV and pulling a car, we climbed up and over the Sierra’s mountain range and as we dropped down into Reno Nevada, we breathed a little easier because it didn’t snow on us as it was predicted to do.

As the miles slipped by, we  smiled at each other and our hearts became light and our anxiousness melted away.  I sang “On the road again” as I usually do when we start a road trip.  I only know those four words but it kicked off our adventure. Even though driving through Nevada is pretty boring, it was a good day and we are enjoying the journey because there is beauty in every direction.

Therese is the author of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. The book can be purchased on her author website and Amazon.     http://www.theresecrutchermarin.com    

We Can Never Lose Hope…………….Therese

Therese-Author

An Obsessive Compulsive Family

The Crutcher family has a long history of OCD, obsessive compulsive disorder.  Obsessions are unwanted, intrusive thoughts, images or urges that trigger intensely distressing feelings. Compulsions are behaviors an individual engages in to attempt to get rid of the obsessions and/or decrease his or her distress.

It seems to have surfaced on my fathers side of the family many generations ago. He told me years ago that his Aunt Helen had a hand washing compulsion because of her fear of germs. My sister, Julie, is obsessed with exercise, and a niece suffers from severe OCD and is on anti-anxiety medication. My own OCD surfaced when I was in college, and the way I dealt with my obsessions was to plan every detail of my life, leaving very little to chance. When things were in order, like the jelly beans in the picture above, I felt in control which lowered my anxiety.   http://www.newhealthguide.org/Famous-People-With-Ocd.html

Well, when Huntington’s disease entered by life, I was thrown into a tizzy because, guess what, HD is not a force to be controlled! My planning strategies were thrown out the window because of John’s unknown gene status, along with his three sisters. With the strong bond and deep love John and I shared, we drew strength and clung to each other which calmed my OCD. As I accepted the fact that I couldn’t control everything in my life, and that wasn’t easy and took years, I learned to overlook shortcomings and to compromise, to let go of anger, to find joy in the simple things.

You will find HOPE and MINDFULNESS weaved throughout in my book, Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington’s.  It’s coming soon!

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Have a good day!   Therese

Therese-Author

Just Do It

When John and I first met in college, I admired his ability to be spontaneous, carefree, not taking life too seriously, which was the opposite of my family. I often wondered, with my lack of lightheartedness, why he stuck around. I was a planner, control freak and liked routine and predictability in my life. I mean, for heaven’s sake, I planned out my dates with him on a calendar. I remember hyperventilating one day when he showed up at the house and said, “Go get your tennis racket and let’s go play right now”. Thank goodness he didn’t give up on me.  As we became close, unbeknownst to him, he taught me how to live in the present and not put off the things I wanted to do.

I believe families living in the shadow of Huntington’s disease approach life differently than most since their lives are filled with uncertainty.  HD makes one appreciate how precious life is because we live with the real possibility of our lives changing overnight. Because of John’s unknown gene status for HD, we didn’t wait to do things that we wanted to do; we did them as soon as we could. Once the kids were in the picture, we continued to do the things that were important to us, not waiting……because there may not have been a later.

Through the years, friends have often said, “We can’t believe all that we do”.  And, it’s true; we just do it, now, not later.

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Have a good day!  Therese

 

Photo credit: symphony of love via Foter.com / CC BY & Photo credit: Genista via Foter.com / CC BY-SA