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Mindful, The Marin Siblings

Excerpt from Chapter 18-Watching Their Dance

Chapter 18-A Pre-Symptomatic Test for Huntington’s Disease, Page 153-Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s

“I never forgot that John was now in the high-risk age range and would be for another eight to thirteen years.  Over the past few years, I had realized that this uncertainty, which I had take on willingly, had opened my heart to love much more deeply, and acknowledging that my world could change in a heartbeat made my life with John so much richer.  Life was just too precious to waste a minute arguing over any small stuff.  

Lora, John and Keith in our backyard in 1985. Lora was living with us.

I had learned to overlook shortcomings and compromise without anger.  And the Marin siblings had taught me about forgiveness and unconditional love, traits not common in my family.  I forgave Dave time and time again and never for a moment stopped loving Lora, even when she hurt my feelings.  

Letting go of the anger I felt when I couldn’t control a situation calmed my OCD to a manageable level, and lessing my anxiety allowed me to relax and find joy in the simple things.  Perceiving the future as a blank canvas helped, as did not dwelling on it.  Keith remained the best method of staying in the present, and I drew strength from being physically near John, ever the optimist.  Staying focused was key to this constant battle.” 

 Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book sold in the U.S. will be donated to HDSA.     Therese and John donated $9,015.00 to HDSA that is the profit from book sales since Therese published in April 2017.

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It’s the Little Things in Life

“That smell of coffee brewing in the morning, crawling into bed with freshly clean sheets, a warm hug from a loved one, that first, perfect bite of pasta…they always say it’s the little things in life that make a big difference and that has always proven true. You just have to see it and have the right vision. Open your eyes and witness all of the things around you that you have, be grateful and be thankful.

Appreciating what you have will make everything in your life seem that much bigger. People often say that when you wake up in the morning, say five things your grateful for to yourself. By doing this, it will make all of the bad things, obstacles, or difficulties in your life not seem as bad. Looking at the greatness in your life, no matter how small, can truly make you feel more upbeat, fulfilled, and happy.”

I found this article on   and it speaks to what I truly believe………being mindful and appreciating what you have in front of you at that moment.  I have so much to be thankful for; John, my kids, being able to take this trip to promote my book, my health, good friends and two kind sisters.  Don’t look forward or backward; look at what’s in front of you!

We can never lose HOPE……………….Therese

To purchase Therese’s inspiration story of HOPE and LOVE, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s go to


Being Mindful in my Daily Life

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is a truly inspirational story of hope as Therese shares the path she has chosen may be difficult but it opened her heart to love more deeply and made her life that much richer.” Shared by her publicist, Pat Rose.

Over the years,  I’ve often said Huntington’s disease taught me many lessons.  The first and most poignant lesson that helped me live a meaningful, happy life AT RISK with John, was mindfulness………..a mental state achieved by focusing one’s awareness on the present moment, while calmly acknowledging and accepting one’s feelings, thoughts, and bodily sensations, used as a therapeutic technique.

Mindfulness is now being examined scientifically and has been found to be a key element in happiness. In order to maintain my sanity, staying in the present was key to enriching my life with John. Being mindful took practice and focus and some days I did I did it better than others.

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Enjoy your day!  Therese

Photo credit: AlicePopkorn via / CC BY