A few weeks ago, the Huntington’s disease community witnessed a Huntington’s disease (HD) billboard go up in South Bend, Indiana funded by the Huntington’s Disease Foundation. I was very excited as were many others. Billboards
I personally believe billboards are a great way to advertise.
When I worked in hospice, one component of my job was developing a yearly marketing plan for the outreach hospice committee to follow. I brought the idea of using a billboard to promote hospice care to my boss, but, unfortunately was turned down. It was before healthcare systems, Kaiser Permanente, Sutter Health, Dignity Health (in California) started using them, so, I guess I was ahead of my time.
Thank you Huntington’s Disease Foundation for the billboard; it raises HD awareness on another level. I love this quote on their website:
“We Imagine a World WITHOUT Huntington’s disease”
The mission of the Huntington’s Disease Foundation (HDFI) is to serve as the trusted resource for the Huntington’s disease (HD) community by raising awareness, providing disease education, and funding research.
Through the course of writing and producing a book, I have learned many things that I wish to pass on to authors. Experts emphasize the importance for an author to know who their audience is and learn where these folks, groups, hang out and begin interacting with them. So I began to explore who Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s would appeal to.https://janefriedman.com/how-authors-can-find-readers/
The first audience for Watching Their Dance was apparent because of the subject matter of the story, Huntington’s disease, so the Huntington’s Disease community became my tribe, so to speak.
In the U.S., approximately 30,000 folks have Huntington’s disease and 250,000 are living at risk, so this became an important group to focus my efforts on. My thought went like this: “If the book appeals to, say 25% of the 280,000,that would be 70,000 people who could potentially purchase my book.” I would love to sell that many books.
(Learn who the second audience is forWatching Their Dancein my next blog)
Therese is donating 100% of the proceeds from her book to HDSA in the U.S. and Huntington’s disease organizations in the country where a book is purchased. The memoir/nonfiction book is available on her author website:http://www.theresecrutchermarin.com Amazon, B&N, Kindle, Nook, Kobo and many other book websites.
Promoting my book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, around the world just made sense because Huntington’s disease affects approximately 4 million people worldwide. Because Amazon operates 11 online marketplaces (websites) I can offer the book internationally.
For example, when my book is purchased on Amazon Canada https://www.amazon.ca/ I will donate my profit/ royalties to the Huntington’s Society of Canada. It really doesn’t make a difference to me who I donate to because all the HD organizations around the world have the same goal: Help families dealing with Huntington’s disease and contribute to research.
So, if you live outside the U.S., please go to an Amazon website to purchase the book, and I’ll donate $3.50 to a non-profit HD organization in the country where you live.
Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’sis now available in ebook format. The experts say all authors should offer their books as an ebook because so many folks read on devices now. Our daughter, Vanessa, buys from iBooks and a friend of mine at the gym reads off her Nook device. I’ve read a couple of books on my iPad but I still enjoy holding a book in my hand. On my author website http://www.theresecrutchermarin.com you can purchase a pdf file or an ePub for $6.99 which I will donate to the Huntington’s Disease Society of America.
Since I’m getting close to holding a book in my hand, I’m now strategizing how to make the highest profit selling “Watching Their Dance” as an ebook. By selling my hard copy book on my website, to folks in the U.S., I will make about $10.00 profit. ( It all goes to HDSA). If I sell the ebook version for $9.99 on my website, it is pure profit because it is a just a file. Now I need to figure out how to set the ebook up to sell on my website. I’m stoked! I’ll let you know what I learn.
I do intend to sell both versions of my book on all the Amazon websites throughout the world. I just make half the profit, since Amazon is a middleman, but it allows wide distribution.
Here a two great websites discussing the pro’s and con’s on selling your ebook on your website and how to price your ebook.
The following are the areas I concentrate my efforts on:
My author website, blogging 2x a week delivering interesting content to bring folks to my website. My blog is linked to my Author Facebook page, Google+, twitter and LinkedIn accounts.
My Author Facebook page which currently has 2,809 LIKES and my personal Facebook page that has over 2,700 FRIENDS. Many of these friends are from all over the world who have been touched in some way by Huntington’s disease.
Interacting on the many groups I belong to on FACEBOOK.
I have learned I cannot interact on all the social media platforms out there like Instagram, Pinterest, Tumblr, Vine, Snapchat; there just isn’t enough time. Besides, I want to continue writing and perfecting my craft.
At times, I feel like it’s a slow process but I am an unknown and must build a tribe. All the literature says it takes time and effort to reach the right audience for your book.
Chris Cosentino, Director of Communications and Marketing at the Huntington’s Disease Society of America, at the corporate office of New York will partner with me in the promotion of my memoir, Watching Their Dance.
I had the pleasure of meeting Chris at the HDSA NYC Marathon TEAM Kickoff luncheon yesterday and it was so nice to have a face with a name now.
An interesting piece of history, Marjorie Guthrie, Woody Guthrie’s wife, started the Committee to Combat Huntington’s Disease in the late sixties and this organization eventually became the Huntington’s Disease Society of America (HDSA). Thank you Marjorie for developing a wonderful, supportive organization that has helped thousands of families affected by HD.
It is a fact that 92% of consumers will believe a recommendation from friends and family over ANY other type of advertising.
The power of word-of-mouth recommendations is huge!
With that said, here is my thought on how I hope to use Word of Mouth to market my book, Watching Their Dance: Three Sisters, One Genetic Disease and Marrying into a Family At Risk for Huntington’s. I request help from my Facebook friends, family, friends, fellow writers, members of the 52 HDSA Chapters in the U.S. and Huntington’s organizations around the world, etc.
First, if you don’t know, I’m donating all the proceeds from the sale of the book in the United States to the Huntington’s Disease Society of America (HDSA). http://hdsa.org .
So, the way folks can help is to TALK about my book with your friends, family, coworkers, and stress that when they purchase the book they will be making a Donation that will provide help for today and hope for tomorrow for people with Huntington’s disease and their families.
To put this in perspective, say, if I sell the book for $15.00 and the book costs $5.00 to print, I will Donate $10.00 to the Huntington’s Charity, in the country where the book is purchased.