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Love

Kindness, Love

The Hero’s In My Life

Like many people, I have several hero’s that I hold in high regard.  Most of them, for me anyway, are women who have inspired me, taken chances and usually succeeded, stepped outside their comfort zone to achieve their goal(s). 

#1. Elisabeth Kubler-Ross-A Swiss-American psychiatrist, a pioneer in near-death studies and the author of the groundbreaking book On Death and Dying (1969), where she first discussed her theory of the five stages of grief, also known as the “Kübler-Ross model”.   https://en.wikipedia.org/wiki/Elisabeth_K%C3%BCbler-Ross 

Since I worked in hospice for 10 years, I’m grateful to her for starting the conversation on dying and how hospice can assist the dying to have the highest quality to their life until they pass.  She created the first hospice house in England, and the hospice idea moved to the U.S. in the 1960’s.

#2.  Mother Teresa-Known in the Catholic Church as Saint Teresa of Calcutta, was an Albanian-Indian Roman Catholic nun and missionary. This woman emits unselfishness, kindness, love and hope.   https://en.wikipedia.org/wiki/Mother_Teresa  

#3.  Lora, Marcia and Cindy, are my hero’s not just because they had Huntington’s disease; it was their attitude towards life, and how precious it was to them despite their circumstance.  Also, they were the kindest, most generous, positive women I’ve ever met.   What is Huntington’s disease 

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

We Can Never Lose Hope………………..

 

Kindness, Love

The Wind Beneath My Wings

One of my favorite songs is The Wind Beneath My Wings by Bette Midler; from the movie Beaches. The song depicts the relationship between two woman, Bette Midler and Barbara Hersey, and their undying friendship, love and devotion despite their differences. I love Bette Midler as an actress and singer.  https://en.wikipedia.org/wiki/Beaches_(film) 

Whenever I hear it on the radio, I think of my husband, John Anthony Marin, my rock, my ever positive influencer in my life, the most resilient person I know, who kept me from shrinking into the depth of despair as each sister-in-law left this world because of Huntington’s disease.   http://www.hdsa.org 

John was the wind that supported me as we traveled through turbulent times in our life; he is still my biggest supporter and I would fall to the earth without him.  We now travel together into a smooth, calm breeze of peace and tranquility. 

So I ask you.  Who is the wind beneath your wings?  

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book sold in the U.S. will be donated to HDSA.  http://www.hdsa.org     Therese and John donated $9,015.00 to HDSA that is the profit from book sales since Therese published in April 2017.

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Love

Loving Deeply

Forty years ago, I chose to be with John despite his unknown gene status for Huntington’s disease (HD). This may sound a little crazy, but living at risk for Huntington’s disease with John, for 38 years, and the precariousness of the situation, fortified my marriage.  I say this because when knowing my world could change over night, and steal what I loved most in this world, made me appreciate John everyday, never taking him or our relationship for granted. Living_at_risk_of_HD_  

And, I learned to love more deeply in the shadow of John’s mortality.

John and I rarely fought, we had some disagreements, but never got mad at each other.  Life is just too short not to forgive because we are all human and we all make mistakes.

The things I learned through this journey with Huntington’s disease looming over us, was to appreciate what I had in my life at that moment; I lived mindfully.  Also, John and I also didn’t put off the things we wanted to do and we able to create so many wonderful memories together with our children.  12 Indispensable Mindful Living Tools 

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

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Family, Love

A Message from Author Therese Crutcher-Marin

Many of you know I’m involved in the Huntington’s disease community and a board member on the HDSA Northern California Chapter.  Until I published my book, Watching Their Dance, I was unable to speak about John and my life at-risk for the cruelest disease because of the grief I carried in my soul.  Writing my story was a healing journey which allowed me to place the grief in a book and show the world what Huntington’s disease families go through for generations.    http://www.hdsa.org    

The following are reasons why I wrote the book and outcomes since I published April 2017.

  1.  The book is a personal HD fundraiser/HD awareness project and 100% of the proceeds from books sold in the U.S. are being donated to Huntington’s Disease Society of America (HDSA) to help in the fight against this horrific disease that killed my mother-in-law and 3 sisters-in-law. By heightening awareness, I hope to increase donations from folks who have never donated to our cause.
  2.  It’s an inspirational love story, over 38 years, and how John and I lived in the shadow of Huntington’s disease.  Since April 2017, I’ve sold 1,500 books/ebooks and my goal is 5,000. My book can be found on my Author Website: www.theresecrutchermarin.com, Amazon, B&N and other book websites.  $7.00 is donated to HDSA each time the book is purchased.
  3.  John and I donated $9,015.00 to HDSA in December 2017 which was the profit from books sold since I published in April 2017. 

We Can Never Lose HOPE………………..  

Woody Guthrie Festival 7-2017

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Love

“Watching Their Dance”-A Poignant Love Story

 

“Crutcher-Marin writes affectingly about the way her marriage was actually fortified by its precariousness—she learned to love more deeply in the shadow of her husband’s mortality. She also tenderly portrays the plight of his sisters—beleaguered not only by the deadly genetic inheritance, but also difficult childhoods stained by loneliness and abandonment. This is a rare treat—a true story that is as uplifting as it is heartbreaking.  A poignant remembrance of a love forged in crisis.”

To read the full book review, go to:  Kirkus Reviews   

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

100% of the proceeds from Therese’s book is being donated to HD organizations around the world.

 Subscribe to Therese’s Blog via Email

 Enter your email address to subscribe to Therese’s blog and receive notifications of new posts by email and receive the first chapter of my book, Watching Their Dance, via email.

 

 

About Author, Love

A Fork in the Road

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is a memoir/nonfiction book, reflecting on the many crossroads I’ve been confronted with in my life, particularly a major one in November 1978. We all face them and I believe crossroads are an opportunity to explore our potential.

The following is the first paragraph in Chapter 1 which sets the stage for the story. “Some lives seem to move smoothly along a natural continuum, with one event or decision seeming to slide into the next. Such people seem to have faced no dramatic forks in the road, had few life-altering choices to make. Other lives, at least in hindsight, travel in a particular direction at one particular life-changing moment. That’s what happened to me, when, at age twenty-two, I suddenly had to confront the most complicated decision of my life.”

Life’s crossroads create opportunity for us to choose between different options, and when we see someone embracing the moment when choices are decided upon, it can be awe-inspiring. A crossroad is about change.

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on Therese’s author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file. 100% of proceeds goes to Huntington’s disease organizations around the world.

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We can never lose HOPE…………Therese

 

Love

A Poignant Remembrance of a Love Forged in Crisis

From the Kirkus Review I received last April:

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is a story more about the power of hope than the wages of Huntington’s—a pre-symptomatic test for the disease eventually hit the market, but John refused to take it. As he explained: “I’d rather live my life with the hope I don’t have the mutated gene than find out I do.”

Crutcher-Marin writes affectingly about the way her marriage was actually fortified by its precariousness—she learned to love more deeply in the shadow of her husband’s mortality. She also tenderly portrays the plight of his sisters—beleaguered not only by the deadly genetic inheritance, but also difficult childhoods stained by loneliness and abandonment.

“This is a rare treat—a true story that is as uplifting as it is heartbreaking.”

John and Therese are donating 100% of the proceeds to Huntington’s Disease organizations around the world.  To purchase the book, please go to:   http://www.theresecrutchermarin.com 

We can never give up HOPE…………………………………..

 

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Love

Excerpt from Watching Their Dance Chapter 11

John and I had been married for almost two years, and when we began talking about buying a house, the usual insecurities popped up in my brain. What if John gets sick? Could I make the mortgage payments on my salary? Could I maintain the house by myself? I pushed those thoughts away and replaced them with more reasonable questions: You’ve always wanted your own home, haven’t you? You don’t want to pay rent for the rest of your life, do you?

We agreed it was the right time to make this investment in our future. We both had good jobs, and buying a home was in the normal progression for couples building a life together. Of course, most happily married couples never doubt they have a future.

One day, John, who by then had come to know Placer County well, came home full of excitement. “I found a house for us, Therese! It’s in Loomis, a fixer-upper, but it has real potential. I can’t wait for you to see it.”  https://en.wikipedia.org/wiki/Placer_County,_California

Since he had studied architecture and worked in construction during summer breaks from college, I trusted his ability to see past what was there and visualize what it could become. Loomis, a rural area nestled in the foothills of the Sierra Nevada, was about thirty minutes east of Sacramento along the Interstate 80 corridor. It was said to be a friendly, old-fashioned community.

The night before we went to look at the house, I lay in John’s arms, delighting in his enthusiasm as he described the place once more. “The house sits on an acre, with a well, a septic system, and a pool! It has three bedrooms and two bathrooms, and the original garage has been converted into a family room, but there’s enough land for us to build a three-car garage.” John’s voice faded as I dreamed of verdant pastureland, cows grazing lazily outside the kitchen window.

I left work early to meet John and our realtor, Bonda Robinson. I couldn’t get past the magnitude of the decision, and the terrible questions nagging at me. The old anxiety pushed hard against any optimism I could muster. To calm my fears, I did what I always did: develop a plan. Since I managed our finances, I would be as thrifty as possible and save as much as I could.

Therese is the author of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. To purchase the book, please visit her author website:  http://www.theresecrutchermarin.com  100% of the proceeds from the book are being donated to Huntington’s disease organizations around the world.

We can never lose HOPE…………..Therese

Love

Free 1st Chapter of “Watching Their Dance”

If you’re searching for a touching love story for your summer reading, check out my offer to receive the first chapter of my book FREE. Today is the last day to receive this FREE offer.  If the first chapter captures your interest, you can  purchase the book on my author website below.

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is a poignant remembrance of a love forged in crisis.  I share how my marriage was actually fortified by its precariousness; my husband had a 50/50 chance of inheriting the cruelest disease on the planet, Huntington’s disease.  Knowing my life could change overnight, I learned to love more deeply in the shadow of my husband’s mortality.

To receive the first chapter, please sign up for my blog below and I’ll email the chapter to you:

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We can never lose HOPE………………..Therese

Therese’s is currently writing a historical fiction novel about a young girl in the 1920’s whose Austrian immigrant family is trying to survive in Ottawa Kansas with thirteen children. To read more about it, please go to  http://www.theresecrutchermarin.com

100% of the proceeds from Watching Their Dance is being donated to Huntington’s disease organizations around the world.

 

 

Love

A Love Story-Watching Their Dance

When I explain my book to people, Huntington’s disease always takes center stage, and granted, it very important to the story.  But it is just part of the story.

My book is truly John and my love story.  The Kirkus Review I received said it eloquently: “A poignant remembrance of a love forged in crisis. Crutcher-Marin writes affectingly about the way her marriage was actually fortified by its precariousness—she learned to love more deeply in the shadow of her husband’s mortality.” My full review:  https://www.kirkusreviews.com/book-reviews/unknown/watching-their-dance/

Remember the famous love stories we watched at the movies: The Way We Were, Love Story, The Notebook, Titanic, Gone With the Wind, Casablanca. All these stories were about a love between two people that had a price to it; a challenge, crisis or a struggle that either tore them apart or kept them together.

So, Huntington’s disease was John and my challenge and, fortunately, it created a bond so strong between us, nothing could destroy it, not even Huntington’s disease.

We can never lose HOPE………..Therese 

You can make a donation to Huntington’s Disease Society of America (HDSA) by purchasing my book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.  Please go to:  http://www.theresecrutchermarin.com