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Hospice

Hospice

November is National Hospice Month

In 1991, I began working at the local hospital in our town of Auburn California.  I had just received a Masters in Healthcare Administration which allowed me to change careers, I had been an industrial purchasing agent, and enter the healthcare industry . 

For the last ten years of my career in healthcare, I was privileged to work in hospice; the VNA & Hospice department of the hospital, and it was the most gratifying work I’ve every done; helping community folks when their loved ones were dying.    http://www.sutterauburnfaith.org/services/hospice/  

So, what is hospice care? 

“Hospice is specialized type of care for those facing a life-limiting illness, their families and their caregivers.”   https://www.nhpco.org/about/hospice-care  

Since Marcia and Cindy, my two sisters-in-law who had Huntington’s disease, lived in an Auburn residential care facility for the elderly, they were admitted to my hospice program when Dr. Gerry Lee, their primary physician, felt they were end stage.  

Last June, when I attended HDSA National Convention, there were two sessions on “end of life care”.  I’m so glad the HD professionals are addressing the options available with the HD community.  

Therese’s first book is a memoir/nonfiction, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file.

We can never lose HOPE…….Therese  

100% of the profits from Therese’s book is being donated to HDSA.
Caregiving, Hospice

Hospice Care and Huntington’s Disease

The 2nd organization close to my heart is the National Hospice and Palliative Care Organization (NHPCO)         http://www.nhpco.org/ . Of course, the Huntington’s Disease Society of America is #1.    http://hdsa.org

Since I was a healthcare professional for 20 years, 10 years in hospice care, I want to speak about the service hospice can provide to a family reeling from the anticipatory loss of a loved one. The majority of Americans say they would prefer to be cared for and die at home and yet only 38% of us receive hospice care.  Supporting a persons wish to die at home is one of the greatest gifts a family17131086854_9560cb9d03_z can give to their loved one.  Hospice is an interdisciplinary team approach that supports the family and the patient.  Hospice strives to keep the patient free of pain, have the highest quality to his/her life, teaches the caregivers how to  to care for a bedbound, terminally ill person, offers counseling to the patient and/or the family members, bestows a chaplain if requested and respite for a few hours a week.

Medicare    https://www.medicare.gov/what-medicare-covers/part-a/what-part-a-covers.html

AND

Medi-Cal  (California State Funded for low income)   http://www.dhcs.ca.gov/services/Pages/default.aspx

AND most private insurances have a hospice benefit so there is usually no out of pocket costs to families. Most hospice programs are non-for-profit, but there are some for profit hospice programs.  Just be aware, there may be costs associated with a for profit hospice.

My two sister-in-laws, Marcia and Cindy Marin, were both under the care of hospice, at different times; the hospice organization I was employed by. My best word of advice to anyone caring for a loved one with HD, and they’ve been struggling for many years and your family feels he/she is declining, is to call a hospice program near you, and ask to have him/her evaluated for hospice care.  You can never be admitted to hospice too early.  Hospice can be a huge support to the caregivers.

To locate a hospice program near you in California please see:  http://cahospicefoundation.com/   or   http://www.nahc.org/haa/

Have a good day!   Therese

Hospice

Being Mortal-Medicine and What Matters in the End

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I have just started reading this book and I’m so glad it is a best seller.  Hopefully, those that read it, will think ahead of time about end-of-life issues and discuss them with family and friends.  He speaks about palliative care and hospice care, both so important for folks to know about.

Thank you Atul Gawande, M.D. for speaking about what most folks are afraid to talk about.   

Have a good day!    Therese