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HDSA Fundraising events

HDSA Fundraising events

Jan Nolta Honored at SF Team HOPE Walk

Jan Nolta, Ph.D., director of the university’s stem cell program and the UC Davis Institute for Regenerative Cures Director of the Stem Cell Program at UC Davis School of Medicine, will be honored at the 11th Annual SF HDSA Team Hope Walk on October 21st.  To sign up for the Walk, please go to SF HOPE WALK 

Just a few weeks ago,The California Institute for Regenerative Medicine was awarded a nearly $8 million grant to University of California, Davis, stem cell researchers to launch a special clinical trials program in Sacramento to accelerate the therapeutic development and delivery of stem cell therapies in human patients.

Therese will be at the event promoting her memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. The book is available on her author website:   http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo,Nook, iBooks format.

100% of the proceeds from the book is being donated to Huntington’s Disease Society of America (HDSA).

 We can never lose HOPE………………Therese

 

 

 

 

HDSA Fundraising events

A Big Weekend for Huntington’s disease Fundraisers

I have to shout out about the many Huntington’s Disease Society of America fundraising events this weekend.  All fundraising events, no matter how big or small, are important as they move us closer to a therapy or cure. Other U.S. Huntington’s disease organizations, helping in the fight against HD are:  Help4HD      Huntington’s Disease Foundation          The World in HD      We Have a Face  

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.

CELEBRATION OF HOPE – A NIGHT IN VENICE 

DATE: 10/13/20177PM
LOCATION: 6111 Landerhaven Drive, Mayfield Heights, OH
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1286

                                                                                                                                                         HDSA BOO BASH 

DATE: 10/13/20178AM
LOCATION: American Legion Post Twenty, Keyport, NJ
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1180

TEAM HOPE WALK – LIBERTY, MO

DATE: 10/14/20179AM
LOCATION: Liberty Community Center, Liberty, MO
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1126

NORTH CAROLINA HUNTINGTON’S DISEASE FAMILY EDUCATION DAY

DATE: 10/14/20179:30AM
LOCATION: Gaston College/Kimbrell Campus, Belmont, NC
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=ticket.start&eventID=1306

TEAM HOPE WALK – OHIO VALLEY

DATE: 10/14/201710AM
LOCATION: Voice of America Park, WestChester, OH
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1200

TEAM HOPE WALK – VIRGINIA BEACH, VA

DATE: 10/14/201710:30AM
LOCATION: Mt. Trashmore Park, Virginia Beach, VA
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1237

TEAM HOPE WALK & 5K RUN LANSING, MI

DATE: 10/14/201710:45AM
LOCATION: Granger Meadows Park, Lansing, MI
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1223

TEAM HOPE WALK NORTHERN NEW JERSEY

DATE: 10/14/201711AM
LOCATION: Roosevelt Park – Roosevelt Drive, Edison, NJ
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1192

TEAM HOPE WALK – BOISE, ID

DATE: 10/14/20172PM
LOCATION: Veterans Memorial Park, Boise, ID
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1113

TEAM HOPE WALK & 5K – WASHINGTON, DC

DATE: 10/15/20178AM
LOCATION: Fletcher’s Boathouse, Washington, DC, DC
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1256

TEAM HOPE WALK- MAINE

DATE: 10/15/201710AM
LOCATION: Mast Landing School, Freeport, ME
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1234

Therese’s first book is a memoir/nonfiction, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file.

We can never lose HOPE…….Therese  

100% of the profits from Therese’s book is being donated to HDSA.
HDSA Fundraising events

Fundraising Events for Huntington’s Disease

All fundraising events for Huntington’s disease (HD), large, small, in the U.K., Ireland, Scotland, Canada are important as it moves us closer to a cure or therapy.

Huntington’s Disease Society of America (HDSA) Chapters are holding the following fundraisers the first part of October:

October 1st-Las Vegas, NV Team Hope Walk

October 5thBe The Hope Reception, St. Paul MN

October 7th-Delaware Team Hope Walk

October 7th- Greensburg, PA Team Hope Walk

October 8th-Southwest, MI Team Hope Walk

October 8th-Columbia, SC Team Hope Walk

October 13th-Ohio, Celebration of Hope. A Night in Venice

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.  http://www.hdsa.org         https://help4hd.org/    https://www.wehaveaface.org/

We can never lose HOPE………Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website: http://www.theresecrutchermarin.com and  Amazon    B&N      Kindle    Kobo      Nook 

HDSA Fundraising events

Therese’s Book Tour-Part 2

(continued from Sept. 7 blog)

On June 14th, 2017 John and I arrived at our first stop, Lenexa Kansas to attend our first HDSA Team HOPE Walk on June 17th. I was thrilled to visit Kansas, the state I grew up in and where I still had many relatives living. Aunt Trina and my cousins participated in the walk with us and we had a blast together.

I congratulate Paige Kesler for organizing the walk which raised $11,703.00.  job!  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1083 

All dollars from HDSA Chapter fundraisers are sent to HDSA Corporate in NY to fulfill the HDSA Mission:  “Improve the lives of everyone affected by Huntington’s” disease”.

I sold 11 books at this walk, $7.00 per book is donated, which equates to $77.00, so I rounded up and donated $100.00 to the event.

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, & iBooks format.

We can never lose HOPE……………Therese

HDSA Fundraising events

3rd Annual Freeze HD Fundraiser

Last year, when I was researching celebrities whose family was affected by Huntington’s disease, I came across the “HDSA 2nd Annual Freeze HD fundraiser” and was amazed at the money they raised. It’s truly wonderful!

The Hamilton family share their story for the upcoming “HDSA 3rd Annual Freeze HD fundraiser”. The event is this Friday evening, September 22nd, at Seven-Degrees in Laguna Beach, CA.  Their goal is to raise $230,000.00!!!   All I can say is WOW and thank you to all the folks who support this event. Freeze Fundraiser

These dollars help in the fight against Huntington’s disease which allows Huntington’s Disease Society of America (HDSA) to fulfill their Mission statement……To Improve the Lives of Everyone Affected by Huntington’s disease.

The  The Huntington’s Disease Society of America  is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.

We can never lose HOPE………Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website: http://www.theresecrutchermarin.com and  Amazon    B&N      Kindle    Kobo      Nook 

 

 

 

HDSA Fundraising events

Sacramento Winemaker’s Dinner of HOPE

                                            August 14, 2017 at Rubino’s Ristorante, Rocklin CA 6-9 p.m.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

For more information and/or to make a reservation, please go to:  http://northernca.hdsa.org/userfiles/hdsa-sac-dinner-of-hope-2017-flyer-rev-4.pdf      

We can never lose HOPE ……………………Therese

Therese is donating 100% of the proceeds from her book to HDSA.  To purchase Watching Their Dance: Three Sisters, a Genetic Disease, and Marrying into a Family At Risk for Huntington’s please go to:   http://www.theresecrutchermarin.com   Watching the Dance Huntingtons Disease

HDSA Fundraising events

Upcoming Fundraisers for Huntington’s Disease

I’ve decided to post on my blog HDSA fundraisers across the U.S. twice a month because the Parkinson’s/Alzheimer’s disease organizations publish so many events.  The Huntington’s disease community has lots of events too!!!!!!!

HDSA TEAM HOPE WALK-Dayton OH 8/5/17

Team Hope Walks aim to raise as much money possible in the local community to support the mission and services of the Huntington’s Disease Society of America. https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1221

 John and I will attending the Dayton OHIO Hope Walk!

HDSA TEAM HOPE WALK-TRAVERSE CITY MI 8/12/2017

Walk is being held at Sunset Park.  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1151

 My book is my own personal fundraiser that will continue for years.  In the U.S. I’m donating 100% of the proceeds from the book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s to HDSA (Huntington’s Disease Society of America).  See my author website to purchase it:  http://www.theresecrutchermarin.com 

We can never lose HOPE………….Therese