Trey Gray, a famous drummer, and his friends held a special evening at the Vegetable Buddies establishment in South Bend Indiana http://buddiesdtsb.com/ last October. The band hosted a concert, and because of his notoriety, Trey raised $50,000.00. These dollars are being donated to the nonprofit Trey started in 2015, the Huntington’s Disease Foundation.
The Huntington’s Disease Foundation was founded in 2015 by co-founders Trey Gray, Doug Michael and Anett Pappas. The Foundation is recognized and registered in Texas as a 501 (c) (3) non-profit charity. The Huntingtons Disease Foundation
To watch the television news report regarding Trey’s concert, please click on link below:
“A typical day for Natalya Gonzalez involves far more responsibilities and challenges than those of an average sixth-grader. The Yolo Middle School student balances schoolwork with family responsibilities as she pitches in at home to help her mother care for her father and an older sister, who both suffer from Huntington’s Disease, a debilitating genetic disorder.” Full article: Yolo Student Thrives Despite Challenges
The Huntington’s Disease Society of America Northern California Chapter is organizing a Sacramento TeamHOPE Walk to help families, like the Gonzalez’s. Come out and walk on Saturday, Sept. 8th, at the River Walk Park in West Sacramento. To sign up or donate to the event, go to http://www.hdsa.org/THWSacramento
We are getting close to the Sacramento Team Hope Walk. Create your own Team and help the Northern California Chapter fundraise to continue supporting the four (4) Center of Excellences in Northern California, and the seven (7) Huntington’s Disease Support Group Facilitators.
If you are interested in volunteering for the Huntington’s Disease Society of America Northern California Chapter, there are many opportunities where you can help. http://northernca.hdsa.org/
Here are a few ways you can contribute to improving the lives of individuals and families affected by Huntington’s disease (HD):
* Participate in the planning and execution of Chapter events: Annual Team Hope Walk, annual Chapter Convention, and Kaiser Permanente Education Days * Provide transportation to HD families * Provide light housekeeping/childcare for HD families *Participate in clinical trials and observational studies * Make phone calls to donors to thank them for their contribution * Serve on the HDSA Northern California Chapter Board of Directors *Post on NorCal Chapter social media platforms: Facebook, Twitter, Instagram *Assist with marketing/publicity/outreach
John and I are so excited to share the good news. The nonfiction book I published in April, 2017, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, has generated a profit of $9,015.00 that we donated to Huntington’s Disease Society of America to help in the fight against the cruelest disease on the planet; Huntington’s disease.
I’m going to digress just a bit and reminisce about the 2016 NYC Marathon. Vanessa and Fran were on the Huntington’s Disease Society of America (HDSA) Team last year and we were their biggest fans, rooting them on.
Keith, Fran, John and I flew to NY together on Thursday and Vanessa, Scott, Jim, Dawn, Scott’s parents arrived Friday. HDSA staff threw a Kickoff party for all the participants and it was a lot of fun. I’m in the picture with Chris Cosentino, Director of Communications and Marketing at the party. He’s my contact at HDSA National for promoting my book, Watching Their Dance.
The marathon was held on Sunday, November 4, 2016 with 50,000 runners having to take a ferry to get to the starting line. The day was perfect, weather a mild 73 degrees, a temperature runners love. The girls told us when they were done, that there was constant cheering on the whole route. Because of the enthusiasm of the crowd, they were pumped up, cutting 10 minutes off their last marathon time. Keith, our mountain biker still at age 33, rented a bike and followed them. http://www.tcsnycmarathon.org/
The 2017 HDSA Team, the marathon is Nov. 5, has raised over $132,700.00 surpassing their goal of $100,000.00. This is an awesome fundraiser and HDSA is not the only charity that participates. There are more than 350 Official Charity Partners of the 2017 TCS New York City Marathon.
Huntington’s Disease Society of America (HDSA) fundraisers are going on all across the United States. Find one near you and support a great cause and help to eradicate the cruelest disease on the planet, Huntington’s disease.
Therese is donating 100% of the proceeds from her nonfiction/memoir book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, to HDSA and Huntington’s disease organizations around the world.
A little over two (2) years ago, Chris Consentino, HDSA Marketing and Communications Director in the corporate office in NY, reached out to me because he had heard I was writing a book and it would have a fundraising component to it that involved HDSA. Well, needless to say, I was thrilled and over discussing the project he offered to partner in the promotion of the book. So, began our business relationship. http://www.hdsa.org
Last April, I finally held a book in my hand. Publishing Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s was a dream come true. My fundraising/HD Awareness Project was now ready to be presented to the world.
The second dream I had was taking a book tour to heighten awareness of Huntington’s disease and promote the book. John and I love traveling the highways and back roads, avoiding freeways, taking the time to enjoy the landscape, animals, agriculture in different states, so we traded in our fifth wheel and truck and purchased a 30 ft. motorhome. As John and I began to plan the tour, my job was to plot HDSA events we could attend after the National Convention and John was in charge of mapping out our route. Since we’ve never visited the Midwest, we saw it as an adventure.
The HDSA National Convention was held in Schaumburg, Illinois in June, 2017 and I represented the Northern California Chapter, and also a vendor for the promotion of my book. HDSA was generous and gave me a window on the second day of the convention for four (4) hours to sell the book. In that amount of time, I sold 63! I also attended the Leadership Day and met the new Pacific Southwest Regional Development Director, Anita Dominguez, and Regional Development Manager Nanette Schlarmann. I can’t say enough about the positive experience I had at the convention. http://northernca.hdsa.org/
Therese’s Book Tour will be continued on the next few blogs!
We can never lose HOPE……………….Therese
Therese is donating 100% of the proceeds from her book to HDSA. When the book is purchased in another country, she will donate the proceeds to a Huntington’s disease organization in that country. Therese’s memoir/nonfiction book is on her author website http://www.theresecrutchermarin.com and on Amazon, B&N, & other book website & as a Kindle, Kobo, Nook, iBooks file.
Therese is donating 100% of the proceeds from the memoir/nonfiction book to HDSA in the U.S. and to a Huntington’s disease organization in the country where the book is purchased. http://www.theresecrutchermarin.com
To purchase Therese’s book, please visit her Author Website: http://www.theresecrutchermarin.com 100% of the proceeds from the book is being donated to Huntington’s disease organizations around the world.