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About Author, Fundraising

3rd Leg of Therese’s Book Tour

John and I are entering the last month of my book tour.  The time on the road, two months, has gone so fast; I don’t want it to end! Here’s what we have planned.

August 1-Akron Ohio. Attend a local HDSA Support Group to share the purpose of my book. A HDSA social worker facilities a support group for folks with HD and those living at risk.

August 5-Dayton Ohio. Participate in HDSA Team HOPE Walk and promote my book Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1221  

August 8-Sterling City Michigan.  Attend the HDSA Support Group meeting and share my book with attendees.    

August 12-Traverse City Michigan. Attend HDSA Team HOPE Walk and ask folks to use Watching Their Dance as a tool to heighten HD awareness.  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1151 

August 19-Madison Wisconsin. HDSA Team Hope Walk to promote Watching Their Dance.      https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1152

August 27-Omaha Nebraska.   HDSA Team HOPE Walk.   https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1098

 

 

Enjoy our trip back home.   WooWoo!!!!!!

To purchase Therese’s book, please visit her Author Website:  http://www.theresecrutchermarin.com  100% of the proceeds from the book is being donated to Huntington’s disease organizations around the world.

We can never lose HOPE…………………Therese

About Author

My Favorite Childhood Game

The other night as John and I were watching TV in our RV, I said to John, “I’m living my childhood dream by traveling across the Midwest”.  He looked at me funny and asked me to explain. I said, “When I was a kid, we played outside with the other kids in the neighborhood and our favorite thing to do was play TRAVEL.

My two sisters, Ellen, Julie and me, would run down the street, gather our friends and then we’d all run back to our house to play TRAVEL.  We’d pack our red wagon with old pots and pans, a linen sheet and other miscellaneous items and we’d travel the neighborhood pulling the wagon. Usually, we’d set up camp in one of our front yards, gather twigs for a make believe campfire, cook a meal, create a tent with the sheet, lay down for awhile and pretend to sleep and get up and do it all over again.

So why am I reminiscing about a childhood game? Because I’m fortunate to be playing TRAVEL with John in our 30 ft. RV for three months. I’m not sleeping on the ground or in a tent, in fact it’s a pretty luxurious way to play travel since I have a sink, stove, shower, bathroom and air conditioning. We’re having so much fun visiting/exploring states we’ve never been to before and we have found folks to be genuine and friendly.

Playing travel when I was young provided entertainment, burnt off some of our energy, and kept us out of my mother’s hair. My adult travel game with John does have a purpose, other than entertainment, and that is to promote my book and raise Huntington’s disease awareness.  But who said it couldn’t be fun?

Therese is donating 100% of the proceeds from her book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, to Huntington’s disease organizations around the world.  In the U.S.-HDSA.  You can purchase it at: http://www.theresecrutchermarin.com 

About Author

Book Discussion at Woody Guthrie Center

“A poignant remembrance of a love forged in crisis” Kirkus Review.

On Saturday, July 8, I will be holding a downloadbook discussion on my memoir, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s at the Woody Guthrie Center in Tulsa Oklahoma. It will be held in the WGC Theater at 2 p.m.

 http://woodyguthriecenter.org/events/book-discussion-watching-their-dance-three-sisters-a-genetic-disease-and-marrying-into-a-family-at-risk-for-huntingtons/  

Woody’s songs celebrate the beauty and bounty of America and seek the truth about our country and its people. He turned complex ideas about democracy, human rights, and economic equality into simple songs that all Americans could embrace. Woody spoke for those who carried a heavy burden or had come upon hard times. His words gave a voice to their struggle, and his songs gave them hope and strength.

The Woody Guthrie Center, home to the Woody Guthrie Archives, preserves his legacy and life story and communicates the social, political, and cultural values found in his vast body of work. The Center is a repository for Woody’s writings, art, and songs and an educational resource for teachers and students everywhere.

This is my first book discussion event and I’m looking forward to it. I have a short PowerPoint presentation to begin the conversation.

We can never lose HOPE…………..Therese 

About Author

Therese’s Book Tour Continues in July

John and I have been traveling for about three weeks and boy have we had fun.  We’ve also seen some wild weather, i.e. thunderstorms. So, here is what we have scheduled for the month of July!

July 1-Madison Wisconsin.  HDSA Log Rolling Championship Fundraiser. The organizer of this event is Shana Verstegen who was a keynote (inspirational) speaker at the HDSA National Convention in June. She is an HD advocate and you can find her HD Workout Tips on http://www.hdsa.org  

 https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1258   

July 8- Tulsa Oklahoma. At the Woody Guthrie Center, at 2 p.m., I will be leading a discussion about my book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s.   http://woodyguthriecenter.org/   

July 4-St. Louis, Missouri. John and I will celebrate the 4th of July with  Tom Nadelin and Claire, friend and former hospice coworker who I worked with for 10 years.

July 14-16-Okemah, Oklahoma. We’ll attend the Woody Guthrie Folk Festival to enjoy some awesome music, pay tribute to Woody and promote Watching Their Dance. I’ll be working side by side with the HDSA Oklahoma Chapter.  Okemah is where Woody was born.

http://www.woodyfest.com/

July 22-Hilliard, Ohio. HDSA Team Hope Walk.  Sign up below for the walk if you live in the area.  

https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1189

Vacation time!  Woo Woo!

Therese’s book, Watching Their Dance: Three Sisters and Marrying into a Family At Risk for Huntington’s can be purchased on her Author Website:   http://www.theresecrutchermarin.com

100% of the proceeds from Therese’s book is being donated to Huntington’s disease organizations around the world.

Have a wonderful, fun filled summer!   Therese

About Author

Fulfilling a Dream

I’m the sort of person who perseveres, never gives up, and will finish a project no matter what the cost. So when I decided to write my story, I planned and planned, I have Obsessive Compulsive Disorder (OCD), and by sticking to my plan, I successfully published, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s on April 1, 2017.  It truly was a dream come true. Though, I must tell you, it took seven years to finally hold a book in my hand, and I would do it all over again, and will, as I’m working on a historical fiction novel with a sequel.

So, if you have a dream, here is the first step in achieving/fulfilling your dream:

Believe it is achievable. Unfortunately, too many people will never accomplish their dreams because they simply refuse to believe in themselves. Optimism is absolutely required for dream fulfillment and life enjoyment. If you don’t have natural self-confidence, make finding it your first dream to accomplish.  http://www.becomingminimalist.com/how-to-fulfill-dreams-thoughts-on-an-ebooks-anniversary/

Dreams come in all shapes and sizes.  My dream was to write an inspirational story that offered lessons to readers, and publish the story in a book that would live beyond my lifetime.

What is your dream? I encourage you to not let your dream die; just go for it and make it a reality.  You’ll never regret it and it will be an achievement you’ll be proud of the rest of your life!

Therese’s author website is:  http://www.theresecrutchermarin.com

We can never lose HOPE……………………Therese

About Author, Hope

First Leg of Therese’s Book Tour

Last January John and I began discussing the possibility of a book tour but it didn’t go too far until Huntington’s Disease Society of America (HDSA) agreed to allow me to promote my book at their 3-day National Convention in Chicago in June. Now, we are less than a month of leaving, so we’re busy packing our new RV to visit states and places we have never been to before.

Leaving California for three months is somewhat daunting but we did it in 2010 in our 5th wheel. On that trip, we visited family and friends on our way to Virginia, where my older sister, Ellen, lives.  From Virginia we headed to  the Outer Banks in North Carolina, saw Kitty Hawk and then drove south through Georgia, Texas and on to San Diego to see our daughter Vanessa at C.S.U., San Diego before heading back to Northern California.

This trip will focus on attending events to heighten awareness of Huntington’s disease and I hope to sell many books, because the more books I sell, the more money I can donate to HDSA. We’ll also be exploring the beautiful places in each of the states we visit.

Here is what’s planned the first month of the trip:  Yippee!!!!

1st stop-Shawnee Kansas where my Aunt Trina, Aunt Nancy and cousins live.  On June 17, John, some of my relatives and myself will participate in the Lenexa Kansas HDSA Team HOPE Walk.  I will also promote my book.  If you live in the area, please sign up to support this worthy cause.  https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1083

June 19 & 20-LeClaire, Iowa. Visit the store of TV show American Pickers.  http://www.antiquearchaeology.com/locations.php We love the show!

 

June 22-Schaumburg, Illinois. HDSA National Convention. I will participate in HDSA Leadership Day representing Northern California Chapter Board of Directors.

June 23, 24, 25-Schaumburg, Illinois. HDSA National Convention.The HDSA Convention is the world’s largest Huntington’s disease family event bringing together the best of education, advocacy and research to create three days of family-focused learning for the Huntington’s disease community.  I hope to meet many of my Facebook friends and, of course, promote my book.  http://hdsa.org/about-hdsa/annual-convention/

Tour Chicago area and spend a few days in Michigan.

To purchase Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, please click here:  http://www.theresecrutchermarin.com   100% of the proceeds is being donated to HDSA to help in the fight against Huntington’s disease.

We can never lose HOPE…………Therese

 

 

About Author

Therese Crutcher-Marin Book Signing Event

On Saturday, April 29, 2017, I will be launching my book, Watching Their Dance: Three Sisters, a Genetic Disease
and Marrying into a Family At Risk for Huntington’s
and hosting a book signing event in my hometown of Auburn California. The venue is PlacerArts at 910 Lincoln Way in downtown Auburn from 5 PM to 7 PM.

Please join John and I, and have a glass of Mt. Vernon wine, as we celebrate my dream of helping fight Huntington’s disease by writing my story of living at risk for a rare, horrific disease, with the four Marin siblings, Lora, Marcia, and John.  $7.00 from each book sold that evening will be donated to the Huntington’s Disease Society of America (HDSA).

If you cannot make the event you can purchase my book on my Author Website:  http://www.theresecrutchermarin.com  . For those who live outside of the U.S., please visit the Amazon that serves your country.  100% of proceeds are being donated to Huntington’s organizations around the world.

Thank you PlacerArts!

Cheers!  Therese

About Author

The Truth About Living At Risk for Huntington’s Disease

“Uncertainty is the only certainty there is, and knowing how to live with insecurity is the only security.” ~John Allen Paulos

John and I lived AT RISK for the cruelest disease on the planet, Huntington’s disease, for 38 years.  It was only last year, that John decided he wanted to know his gene status.  Many years ago, the genetic test became available in 1993, I asked him to have the test done, but he couldn’t, and I understood why.

Why you ask?  The reason “why”was staring at both of us everyday for 28 years; that being the faces of his three sisters who died because of HD.  John didn’t want to know; hope was what he and I clung to, and to each other for support.  John’s oldest sister, Lora,  my dear friend, was never tested or diagnosed because she began showing symptoms in 1982 and no test was available.  She became very depressed, a common first psychiatric symptom of HD.  Living AT RISK for Huntington’s disease was emotionally difficult for Lora and I  knew it and so did John and we tried to help but the stress lead to her demise.  Lora chose to self-medicate with alcohol, and, unfortunately, she drank herself to death.  We lost her in 1989 at age 41.

I know how this sounds, morbid, but the world has no idea of what it is like to live with unimaginable uncertainty every day.  Living with the fact that your world could change overnight, how you could be struck down with the disease at the prime time of your life, and then, how you would slowly lose your ability to walk, talk and think over a ten to twenty period of time, is beyond the word difficult.

It’s estimated that approximately 200,000 live AT RISK in the United States and an unknown number exists throughout the world. Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s is the story of how I survived living in the shadow of Huntington’s disease, waiting and watching ever so closely to see who of the four people I loved, would fall prey to HD;  John, Lora, Marcia and/or Cindy Marin.

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Enjoy your day!  Therese

About Author, On Writing

My Healing Journey Through Writing

In 2008, after Cindy died from complications of Huntington’s disease, the third Marin sister stolen from our family, grief and sadness weighed heavily on my heart. The therapist I’d been seeing for years suggested writing my story as a way to heal.  She said, “research shows that writing about life’s stresses helps us heal from both physical and emotional conditions”.

In 2010, I began writing and soon discovered that writing my story was the first time I could truly express my unbridled feelings; joy, pain, happiness, rage, frustration, sadness and grief. Though there were many times when my heartache was so intense, I had to stop writing and put the computer away. But then something wonderful happened. I remembered what Lora, Marcia and Cindy had endured and the fortitude I had witnessed in each of them for years and their fight empowered and motivated me to continue writing and to write honestly.  Acknowledging what happened in my life, sharing my story, and being able to honor my three sisters-in-law, my friends, was very liberating.

And then last year, I found for the the first time I could speak about Watching Their Dance: Three Sisters, A Genetic Disease and Marrying into a Family At Risk for Huntington’s without tearing up.

After seven years of writing and rewriting, I have healed and it is now time share my story with the world.

Below are two articles on how to heal through writing:

http://healthland.time.com/2013/07/13/how-writing-heals-wounds-of-both-the-mind-and-body/

http://www.cnn.com/2011/HEALTH/06/29/writing.healing.enayati/

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Have a good day!  Therese

About Author, Kindness

Remembering Marjorie Guthrie

In 1978, John and I were college sweethearts and planned to marry after we graduated. At the end of that year, my world was turned upside down when Lora, Marcia and Cindy, John’s sisters, discovered the Marin (Cahoon) family secret……………..Huntington’s disease.

Needless to say, the information about HD shook me to my core. At that time, I hadn’t lost anyone close to me; I still had both set of grandparents and both parents. Not knowing what to do, I wrote a letter to the Committee to Combat Huntington’s Disease in New York asking for information.  Marjorie Guthrie, Arlo and Nora Guthrie’s mother, founded the committee in 1967 and was the President of the organization. Marjorie sent me a personal note.  She praised me for not deserting my young man, though at the time I wasn’t sure I could handle living with his horrific disease hovering over us, and she hoped after reading the information she sent I would be inspired to “join” them. She even mentioned starting a Chapter in Sacramento.

Later, the Committee to Combat Huntington’s Disease became Huntington’s Disease Society of America (HDSA). There are now 52 Chapters across the U.S.  http://www.hdsa.org

I still have the information Marjorie sent me in December 1978, and it was helpful to have all the facts because at that time there was not much written information about HD.

To find out  how I found my way back to the man I loved, John Anthony Marin and our life journey together with Huntington’s disease, you’ll just have to read my book.

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Have a good day!  Therese