When I was working in hospice at our local hospital in Auburn CA, the interdisciplinary hospice team addressed the needs of the patient and the family. The family unit was the focus of the care we provided. Caring for a loved one strains even the most resilient people, so the wellbeing of the caregiver, or carepartner, is vital to the patient remaining at home with their family; where their memories were made. Click here for info on hospice care: https://www.nhpco.org/
When I’ve attended a Huntington’s Disease Education Day in the past, there always is a discussion about the wellbeing of the carepartner. I picked this brochure up at the Education Day at Kaiser Permanente in Sacramento last year and thought I’d share it with you.
CAREGIVER’S CORNER WEBINARS-Presented by Huntington’s Disease Society of America (HDSA)
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
Therese and John donated $9,015.00 to HDSA in December which was the profit from the book since it was published in April 2017.