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Watching Their Dance

Watching Their Dance-Excerpt from Ch. 16

In Chapter 16 of my book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, I write about  a very stressful time; my maternity time was up and I went back to work leaving my baby for the first time since he was born.  And, my second sister-in-law, Marcia, the quiet, brave, professional sister visited from New Jersey for Christmas and the HD symptoms were hard to miss.  Except for the Marin siblings who ignored hard stuff until it came to a head. 

Chapter 16-The Accident Buy book

“With the busy lives we led, it wasn’t hard to shove Huntington’s to the back of my mind. At the same time, I consciously had to stop my forward momentum and take time to be thankful for the life John and I had. Hassles at work or the refrigerator giving out or Keith cranky with an ear infection—these were small, petty distractions I didn’t let upset me. John was healthy, not showing a sign of Huntington’s Disease, and our child had brought a joy to our lives I’d never experienced before. My heart was bursting with the love I felt for my two favorite boys.

That Christmas, Cindy and Brad stayed in Canada, but Marcia flew in for the holidays. She looked a little thinner, and she was wearing shoes without heels, which was uncharacteristic of her. Both she and Lora were barely five-foot-one, and both had always worn really high heels.”

Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a nonfiction/memoir, can be purchased on Therese’s author website    Amazon  B&N  & in Kindle, Kobo, Nook, and iBooks format.

We can never lose Hope………………..Therese

HDSA Fundraising events

Jan Nolta Honored at SF Team HOPE Walk

Jan Nolta, Ph.D., director of the university’s stem cell program and the UC Davis Institute for Regenerative Cures Director of the Stem Cell Program at UC Davis School of Medicine, will be honored at the 11th Annual SF HDSA Team Hope Walk on October 21st.  To sign up for the Walk, please go to SF HOPE WALK 

Just a few weeks ago,The California Institute for Regenerative Medicine was awarded a nearly $8 million grant to University of California, Davis, stem cell researchers to launch a special clinical trials program in Sacramento to accelerate the therapeutic development and delivery of stem cell therapies in human patients.

Therese will be at the event promoting her memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s. The book is available on her author website:   http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo,Nook, iBooks format.

100% of the proceeds from the book is being donated to Huntington’s Disease Society of America (HDSA).

 We can never lose HOPE………………Therese

 

 

 

 

HD Awareness

Chris Furbee-Director of “Huntington’s Dance” Film

Chris Furbee will be honored at the San Francisco HDSA Team Hope Walk, October 21, 2017, for his dedication to heighten awareness for Huntington’s Disease. To sign up go to: SF Walk

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. 

When Chris Furbee picked up a camera to document his mother’s struggle with Huntington’s Disease, he used it as a tool to understand not only her struggle, but his own as well. Eighteen years later, with the help of his editor, Herbert Bennett, he crafted Huntington’s Dance, the kind of naked and honest film that gives all of us insight into coping with long-term illness. The film was produced in 2014 and an official Selection of the Slamdance Film Festival 2014 in Park City.

We can never lose HOPE………..Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website:  http://www.theresecrutchermarin.com and Amazon    B&N     Kindle     Kobo      Nook 

HDSA Fundraising events

A Big Weekend for Huntington’s disease Fundraisers

I have to shout out about the many Huntington’s Disease Society of America fundraising events this weekend.  All fundraising events, no matter how big or small, are important as they move us closer to a therapy or cure. Other U.S. Huntington’s disease organizations, helping in the fight against HD are:  Help4HD      Huntington’s Disease Foundation          The World in HD      We Have a Face  

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.

CELEBRATION OF HOPE – A NIGHT IN VENICE 

DATE: 10/13/20177PM
LOCATION: 6111 Landerhaven Drive, Mayfield Heights, OH
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1286

                                                                                                                                                         HDSA BOO BASH 

DATE: 10/13/20178AM
LOCATION: American Legion Post Twenty, Keyport, NJ
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1180

TEAM HOPE WALK – LIBERTY, MO

DATE: 10/14/20179AM
LOCATION: Liberty Community Center, Liberty, MO
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1126

NORTH CAROLINA HUNTINGTON’S DISEASE FAMILY EDUCATION DAY

DATE: 10/14/20179:30AM
LOCATION: Gaston College/Kimbrell Campus, Belmont, NC
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=ticket.start&eventID=1306

TEAM HOPE WALK – OHIO VALLEY

DATE: 10/14/201710AM
LOCATION: Voice of America Park, WestChester, OH
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1200

TEAM HOPE WALK – VIRGINIA BEACH, VA

DATE: 10/14/201710:30AM
LOCATION: Mt. Trashmore Park, Virginia Beach, VA
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1237

TEAM HOPE WALK & 5K RUN LANSING, MI

DATE: 10/14/201710:45AM
LOCATION: Granger Meadows Park, Lansing, MI
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1223

TEAM HOPE WALK NORTHERN NEW JERSEY

DATE: 10/14/201711AM
LOCATION: Roosevelt Park – Roosevelt Drive, Edison, NJ
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1192

TEAM HOPE WALK – BOISE, ID

DATE: 10/14/20172PM
LOCATION: Veterans Memorial Park, Boise, ID
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1113

TEAM HOPE WALK & 5K – WASHINGTON, DC

DATE: 10/15/20178AM
LOCATION: Fletcher’s Boathouse, Washington, DC, DC
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1256

TEAM HOPE WALK- MAINE

DATE: 10/15/201710AM
LOCATION: Mast Landing School, Freeport, ME
LINK: https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=1234

Therese’s first book is a memoir/nonfiction, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file.

We can never lose HOPE…….Therese  

100% of the profits from Therese’s book is being donated to HDSA.
HD Research

Huntington’s Disease Buzz-HDBUZZ

HDBuzz, an online site was founded by two incredible Huntington’s Disease scientists, Dr. Ed Wild and Dr. Jeff Carroll. This team is dedicated to bringing accurate HD laboratory and clinical research news to the Huntington’s community around the world in easy to understand terminology.  HDBuzz

To hear these Dr. Wild and Dr. Carroll’s  discussion at the 2017 HDSA National Convention in Schaumburg, IL, last June, click on link.It’s the 6th video on the link. HDSA2017NationalConvention

 

Dr. Carroll is positive for the HD mutated gene and The Seattle Times wrote his story in May 2017.  The article title was, “Huntington’s disease is going to kill him, but this Bellingham scientist is tackling it head-on”. Here is the link to read his story.

We can never lose HOPE………..Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website:  http://www.theresecrutchermarin.com and Amazon    B&N     Kindle     Kobo      Nook 

 

 

 

 

Historical Fiction

Writing a Second Book

When I talk with people about my next book, I usually say, “The second book should be easier because I’m a better writer and I’ve been through the publishing process”. That’s what I hope anyway.  Deep down I know that isn’t really true, so I’ve begun preparing to write a historical fiction novel. Author Tips on Writing Historical Fiction

Writing one book doesn’t qualify anyone as a great writer. For myself, I believe it qualifies me as a lucky person who found a great editor to work with.  I once read, “The best writers are always learning, always looking to improve”.  That’s me, for sure, because I hope to continue growing as a writer, and I’m willing to rewrite, rewrite and rewrite some more.  Second book syndrome 

Therese’s first book is a memoir/nonfiction, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file.

We can never lose HOPE…….Therese

 

2017 Book Tour

Therese’s Book Tour-Part 3

July 1, 2017-HDSA Log Rolling Championship Fundraiser  http://www.madisonlogrolling.com/mlc/ 

John and I fell in love with Wisconsin, a midwestern U.S. state with coastlines on 2 Great Lakes (Michigan and Superior) and an interior of forests and farms. We enjoyed the uncrowded freeway and the calm attitude of the Wisconsin people.

Shana Verstegen, HD Advocate, Fitness Expert and World Champion Lumberjack Athlete, organized the event.  http://www.shanaverstegen.com/ 

It was so much fun watching the kids, teenagers and adults participate.  John and I stayed the whole day and I sold 15 books and donated $100.00 to the event.

We tasted the famous cheese curds while we were in Wisconsin and found them just awful; they squeaked when you chewed them and tasted like rubber.  (We must be missing something because so many love them).

Watching the Dance Huntingtons DiseaseTherese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle,Kobo, Nook, iBooks file. 100% of the proceeds from the book is being donated to Huntington’s organizations around the world. 

We can never lose HOPE…………..Therese

 

 

On Writing

Words of Encouragement to Writers

Since I have been through the process (fire) of publishing a book, I want to reach out to writers working on a manuscript, and encourage them to push through the writers block, accept the enormous amount of time it will take you to work with an editor to make your manuscript the best it can be, and the gigantic amount of time it will take you to research, submit and wait to hear, if you ever do, from the publishers, small presses, and literary agents who received your submission. (If you choose to go the traditional route)   

Over the seven years of writing and producing a book, I always reminded myself, or my hubby did, “Therese, you have never done this before, so you must be patient and learn along the way”.

So, the bottom line is, DO NOT GIVE UP.  MAKE YOUR DREAM COME TRUE!  No one said it was going to be easy. http://elitedaily.com/money/entrepreneurship/6-reasons-you-should-never-give-up-on-your-dreams/

When I finally held the finished product, book, in my hands, I was filled with pride, and, the joy of success was sweet. And, I was pleased that I had produced something that will inspire readers and that a little piece of me will remain beyond my lifetime.

Watching the Dance Huntingtons DiseaseTherese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website:   http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks file.  100% of the proceeds from the book is being donated to Huntington’s organizations around the world.  

 We can never lose HOPE………………Therese

Historical Fiction

Ottawa Kansas

The setting for the historical fiction novel I’m writing is in Kansas, the breadbasket of the world, and the United States leading wheat producer. More specifically, in the little town of Ottawa, Kansas, where my great grandparents, immigrants from Austria, settled and made a life together.

Antone Mages, my great grandfather, and his brother, worked on a friends farm, the Strafuss’s, in Homewood, Kansas in the late 1800’s.  Antone married Teresa Strafuss in 1900 and his brother, married Teresa’s sister, Barbara. The story focuses on my grandmother, Christina Mary Mages Crutcher, the seventh child  of thirteen children, and the family dynamics as she grew up. She dreamed of leaving her small town and having her own life and bedroom. Chris died in January 2014, and over the years I had been recording her life planning to write a story based on her life.

A couple of my favorite historical fiction novels are:  Gone with the Wind by Margaret Mitchell  https://en.wikipedia.org/wiki/Margaret_Mitchell and Outlander by Diane Gabaldon  http://www.dianagabaldon.com/ 

What is your favorite historical fiction novel?

Watching the Dance Huntingtons DiseaseTherese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website  http://www.theresecrutchermarin.com   & on Amazon, B&N, & in Kindle,Kobo, Nook, iBooks format.

We can never lose HOPE……………Therese

HDSA Fundraising events

Fundraising Events for Huntington’s Disease

All fundraising events for Huntington’s disease (HD), large, small, in the U.K., Ireland, Scotland, Canada are important as it moves us closer to a cure or therapy.

Huntington’s Disease Society of America (HDSA) Chapters are holding the following fundraisers the first part of October:

October 1st-Las Vegas, NV Team Hope Walk

October 5thBe The Hope Reception, St. Paul MN

October 7th-Delaware Team Hope Walk

October 7th- Greensburg, PA Team Hope Walk

October 8th-Southwest, MI Team Hope Walk

October 8th-Columbia, SC Team Hope Walk

October 13th-Ohio, Celebration of Hope. A Night in Venice

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.  http://www.hdsa.org         https://help4hd.org/    https://www.wehaveaface.org/

We can never lose HOPE………Therese

100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to Huntington’s disease organizations around the world.  To purchase the book, go to Therese’s website: http://www.theresecrutchermarin.com and  Amazon    B&N      Kindle    Kobo      Nook