A Love Story

A Precarious Life

The Kirkus reviewer of Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s,  wrote the following regarding my book.           

“Crutcher-Marin writes affectingly about the way her marriage was actually fortified by its precariousness—she learned to love more deeply in the shadow of her husband’s mortality.”

Many folks don’t know how rare Huntington’s disease is, $30,000 people in the U.S. have the disease, and the second fact unknown to many is that approximately 250,000 people live AT RISK.  So, what does that mean? It means those 250,000 had a parent with Huntington’s disease and they have a 50/50 chance of inheriting it. https://www.wehaveaface.org/    https://help4hd.org/           http://www.hdsa.org  

John and his three sisters, Lora, Marcia and Cindy were AT RISK since their mom had HD.  The five of us traveled a precarious road in the shadow of Huntington’s disease, not knowing when and who Huntington’s would attack.

 

We can never lose HOPE…………………………Therese

To purchase Therese’s memoir, an inspirational story of hope and love, please go to   http://www.theresecrutchermarin.com 

 

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