Genetic Testing for Huntington’s Disease

Genetic testing is a very personal choice and approximately 7-10% of folks at risk for Huntington’s Disease decide to be tested. 

Here is John and my journey to genetic testing:

In 1993, when the test became available for Huntington’s disease, I was thrilled to say the least.  I boldly asked John if he would take the test; I thought for sure he would want to know his gene status.  It was a selfish act on my part because I’m a control freak and wanted control of our lives, and knowing his status, I thought would allow us to better plan our future. When he said he wanted to continue living with the HOPE that he didn’t have the mutated gene, I understood. 

John did test in 2016 when Vanessa and Keith became engaged to be married.  John wanted to give his children a definitive answer so they could plan their lives. 

On January 8, 2016, John tested NEGATIVE for which we are so grateful.  

Article on:  Testing for Huntington Disease: Making An Informed Choice

Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website   & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.

John and Therese donated $9,015.00 to Huntington’s Disease Society of America (HDSA) in December which was the profit from book sales since Therese published in April 2017.

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