The Huntington’s Disease Society of America (HDSA) slogan resonates in my soul and I feel privileged to be associated and work with the awesome people on HDSA Northern California Chapter Board of Directors. They share the same passion as mine; we are dedicated to improving (help) the lives of everyone affected by Huntington’s disease (HD).
There are many other wonderful Huntington’s disease organizations helping families around the world. Here are a few:
HOPE was so important to John and my survival as we watched his three sisters struggle with HD. I always felt Hope was more than optimism; more than positivity. I love this definition of HOPE by Dr. Andrew uses from the book The Anatomy of Hope:
Hope is one of our central emotions, but we are often at a loss when asked to define it. Many of us confuse hope with optimism, a prevailing attitude that things will turn out for the best. But hope differs from optimism. Hope does not arise from being told to think positively, or from hearing an overly rosy forecast. Hope, unlike optimism, is rooted in unalloyed reality. Although there is no uniform definition of hope, I found one that seemed to capture what my patients had taught me. Hope is the elevating feeling we experience when we see—in the mind’s eye—a path to a better future. Hope acknowledges the significant obstacles and deep pitfalls along that path. True hope has no room for delusion.
Therese’s memoir/nonfiction book, Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, is available on her author website http://www.theresecrutchermarin.com & on Amazon, B&N, & in Kindle, Kobo, Nook, iBooks format.
John and I donated $9,015.00 to HDSA in December which was the profit from books sold in the U.S. since I published in April 2017.
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